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Limner

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Pathfinder Angel
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Reply with quote  #21 
Yes, mam.  I see the basic internal all-purpose MD (nice Greek ) tomorrow and will see if he will oblige me.  I have to see him to get a pre-op OK & bloodwork to have the port removed in another week or so. 
 
XOXO Mary

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Dear friend, theory is all grey, and the golden tree of life is green. - Goethe
nosurrender

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Reply with quote  #22 
So did you score the Biafine? If not, I will get it for you!!!
I hear it is as hard to get as Stilton



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WE WILL PREVAIL





Limner

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Reply with quote  #23 
Makes me want some fresh mozzarella....  That was cute -  wish I had stuff like that on my TV.

My company switched from BCBS to Aetna, and yesterday it turns out my Greek MD does not take the Aetna, I did not want to fork out 125.00 (didn't have it anyway -)  So no visit, pre-op blood work or biafine.  I have re-scheduled for a new MD on Tuesday.  I did have a chicken gyro for lunch.

I am going to do some research on it and see why the boycott.  Then I will press either Irina the Russian Radiologist, my onc. nurse Cathy, or who ever.  Gina - I am beginning to feel that with a double diagnosis of what they all claim are rare and 'agressive' cancers, I should get what ever I damn well please.   And I am going back to Barcelona.  
 
Thanks for the offer - I will keep you posted on this.  M  

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Dear friend, theory is all grey, and the golden tree of life is green. - Goethe
MsBliss

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Reply with quote  #24 
Limner--remember, throughout this rads process, "your skin, your rules".  NO ONE has the right to talk you out of any type of prescription skin care for radiation.  This is serious.

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Originally Posted by Limner

Well, I met with my newest care-person, the radiologist from Russia - She is a very warm and engaging person, and I felt she was very professional yet open until I brought up the BIAFINE.  She said she found in her experience that it did nothing, and gave me a recipe for blender aloe gel.  She even suggested I drink it, Indie -
 
I know she thinks she has the answer, so I now I have to "cross" her.  She gave me a coupon for Aquafor.  I also do not like putting petroleum product on my skin - hey, I think I have two kinds of cancer from using petro-chemicals. 
 
Gina - does Edge have anything to say about the Biafine?  I need some ammo.  Radiation is another offense entirely.  Tatoos????

Wedsnthings- the bandage adhesive is nasty stuff - your skin may have been reacting to it, as mine does.  What is wrong in this picture? 
 
Radically yours - Mary 


Indigoblue

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Reply with quote  #25 

Many Breast Cancer Patients are denied prescriptions for Biafine, Silvadine, and even mouth rinses for mouth sores.   Forget about pain melds or anti-anxiety drugs.  I think it's a shameful crime,  particularly in the cases of radiation where pain, surprises, and cumulative side effects are KNOWN side-effects.  My MIL is going through similar nonsense in another state, sand she suffers from a rare SOFT tissue SARCOMA which was located in the breast and progressed to the Lungs & medial interstitial cavity.  They were treating her as a Breast Cancer Patient.  Amazing bow "serious" their attitudes were, and how changed when they were given the facts.  That doesn't say much for the lack of respect that accompanies the "average" Breast Cancer Patient, now, does it?  Many, many Breast Cancer Patients complain about the lack of caring, concern;  the brisk, cold,  mechanical, calculated attitude with no emotions, not understanding the fears & feelings of the frightened patient or his/her medical needs.  This phenomena continues to occur at MANY Radiology settings in clinics around the world. The lists of questions are long, however, Radiologists apparently like patients to be quiet & clueless!!!   What's with the attitude, anyway??? GEEEEES!


I don't know why this is an issue.  I was denied these meds, as well as some of the anti-emetics.  I wonder if "financial responsibility", and the costliness of these drugs has anything to do with it?  My Chemotherapy Oncologist wrote me scripts that weren't available, and too many strings attached to ever fill them anywhere.  Sometimes, the physicians and nurses neglect to tell us the real reasons why they don't give us the meds we request.

I was lucky.  The friends at No Surrender & BC-org warned me, and I was prepared ahead of time...didn't make it any easier, but my fears were calmed and I had a back-pack full of everything I needed in case of whatever might happen.  It's important to have a good relationship with your Oncologist or PCP if a patient expects any creams, drugs, or special care. 

Tell me, please, what are our so-called "RIGHTS"?

Love,
Indi

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