Sign up Calendar Latest Topics
 
 
 


Reply
  Author   Comment   Page 1 of 3      1   2   3   Next
nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #1 
Done with everything?

CONGRATULATIONS, SURVIVOR!
That means YOU.








__________________


WE WILL PREVAIL





bac10

Avatar / Picture

Goddess Forever
Registered:
Posts: 203
Reply with quote  #2 
Thanks, Gina!

I called my insurance company today to add some extra coverage to our home owners policy.  My husband had gotten the quote a month ago but I hadn't paid for it yet.  I apologized to the agent and told her I had been going through treatment for cancer and had just gotten behind in everything.  She asked what kind of cancer and then told me she's a five year survivor of breast cancer.  We ended up having a 30 minute conversation about our experiences.  It was so nice to hear such positive things from a complete stranger and she agreed.  We were able to give each other positive support. 

I don't think I'll ever be done with everything because my doctor has already warned me that he will be doing follow ups frequently but that's OK.  The major part of my treatment for now is done! 

__________________
Bev

nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #3 
Bev, that is a great story. You will be finding that a lot. And if it happens in person you usually wind up hugging a complete stranger!

No we are never "done" but your chemo and rads are done and THAT is something to celebrate!!

Love
g

PS- I love your new avatar pic


__________________


WE WILL PREVAIL





Harley

Goddess
Registered:
Posts: 145
Reply with quote  #4 
 
 
When are we 'finished'?   I am finished all my tx, and reconstruction, with the nipple surgery on 5/22, and I just had the last tattoo for the aureola last week...  but I am taking Tamoxifen, so we are not 'finished' until we are no longer taking the hormone treatment, right??  I still have 4 1/2 years left for that!! 
 
I'm happy for everyone who is truly FINISHED!!
 
Harley
 
 
nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #5 
Hi Harley!
This is in celebration of those who finished the chemotherapy and radiation portion of this trip. I know we will be on stuff forever and also be needed more surgeries, etc.

But after you finally finish that last rads appointment... I thought it would be nice to say Happy Graduation, Survivor!


BTW- how ARE you doing????

Love,
g



__________________


WE WILL PREVAIL





Harley

Goddess
Registered:
Posts: 145
Reply with quote  #6 
 
 
G,
 
Thanks!  Sorry for posting in the wrong place...
 
I didn't have rads.   But, I did just finish the nipples and aureola tattoo torture!
 
I'm doing ok.
 
How are you?  I haven't been online much, and when I do, I'm having trouble keeping up with everyone's progress...  I read that you recently had your exchange surgery.  I mentioned this on another thread, so sorry if it's a repeat.  My computer isn't working too well, I keep getting kicked off... wth?
 
How are you doing with Femara?  I am wondering, because I may be switched to an AI after a couple of years. 
 
Thanks for starting this site!  It's nice to talk to others, and know that I'm not alone.
 
Hugs
Harley
nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #7 
Hey Harley!
How are the new nips? Did it hurt??
Don't worry about where you are posting- I can't keep up with half of my posts either.

The Femara hasn't been so bad. The Lupron isn't bad either. And I know this is the exact opposite of what happens to everyone else, but I have actually LOST weight on it!

I updated some things in the lingerie thread. Check it out.

It is good to hear from you. Are you still working in that shop?


__________________


WE WILL PREVAIL





Harley

Goddess
Registered:
Posts: 145
Reply with quote  #8 
 
 
Hi G,
 
No, I quit working at that clothing shop, and will now really start looking for a p/t job that won't be such a hassle!  I did take a Saturday only job, inspecting condos for vacation rentals, on Sunset Beach.  I was supposed to start last week, but I had a trans vaginal u/s, so I won't start til Saturday.  Can you tell I'm having WAY TOO MUCH FUN, with all these medical tests?
 
Yes, the nips hurt, but they seem to be healing ok, and the tattoos for the aureolas were painful, even though the tattooist applied some kind of cocoa butter ointment  to numb them.  Apparently, I have very sensitive breasts. 
 
I'm glad to hear that you are doing ok with your treatments.  Maybe there is hope for me yet.  The hot flashes seem to be abating for now, but I'm still suffering from insomnia, and I'll ask my onc nurse if there is anything I can do about it when I see her next month.
 
As always, it's great chatting with you!
 
Harley
Karen1956

Goddess Forever
Registered:
Posts: 1,218
Reply with quote  #9 

Harley - I too suffer from insomnia.  I take Ambian or Ambian CR most every night as well as Ativan.  I have pretty much needed something for sleep since Dx in 2006. Hugs to you.  Karen

bac10

Avatar / Picture

Goddess Forever
Registered:
Posts: 203
Reply with quote  #10 
Me, too, Karen.

Ambien and Xanax.  My favorite cocktail.

__________________
Bev

nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #11 
Hey Harley!

Ooooh- I am sorry the nips and tatooing hurt! But having sensation in the breast is good to hear - because I have heard of people saying they had no feeling at all.  Too bad we can't turn off the sensation when we have to have yucky stuff done to us and then turn it back on again.

I am glad you got out of that shop. You know it sounded like she hired people so she could get them as customers to buy her clothes!

I hate the T/V Ultrasound. There ain't no way to make that thing comfortable.

It is true, I am doing ok on Femara. If/when you switch, I hope you don't either.
My onc says 1 in 3 patients have a bad time with it.

Great to talk to you too.
love,
g


__________________


WE WILL PREVAIL





nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #12 
 Hey Karen and Bev,
The insomnia does kind of sneak up on us.
I can't take Ambien anymore because it made me a little - um- confused is the best word for it!


__________________


WE WILL PREVAIL





Harley

Goddess
Registered:
Posts: 145
Reply with quote  #13 
 
 
Karen,
 
When I take Ambien, I sleep through the night, but in the morning, I am STILL JUST SO TIRED!!  I haven't tried Ambien CR, so maybe it would work better.  Only I don't think my insurance will pay for Ambien CR!   GRRR..
 
g,
 
My tattooist said that I am a special case, since I haven't lost my feeling in my breast.  As you say, this is a good thing!  This time, the color 'seems' to be staying a little bit better, although I DID still have quite a bit of color peeling off.  At least for now, they seem to be darker.  If it fades over the next month or two, I guess that will just be how it is, since I don't want to have to go through all that pain again! 
 
I was kind of boring working at that expensive store, because sales were so SLOW!  So many people walked in and looked around, and shook their heads at the prices!
 
Today was my first "Saturday" working, and it went ok, I guess...  They had the wrong cell phone number for me, so I only got my calls intermittently.  I am inspecting condos for vacation rentals, and greeting the renters, when they arrive.   The pay is pretty good, so maybe I'll keep doing it til another job surfaces. 
 
I hope the Femara works well for you.  I think I may try that next.  I read that Arimidex has 'lactose' in it, as a binder, and I can't drink milk!  It makes me vomit!  So I don't think that would be a good choice for me.  I will definitely check with my onc, but ... YECK! 
 
The T-V u/s went ok, but I sure wish there was some way to make them more comfortable!
 
Hope you have a great weekend!
 
Harley
nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #14 
Harley, that new job sounds pretty promising.
I have to tell you that so far, knock wood, has been ok. At least, everything that has twinged has been transient.

I have a problem with lactose too.
I think we are related!


__________________


WE WILL PREVAIL





Harley

Goddess
Registered:
Posts: 145
Reply with quote  #15 
 
 
nosurrender,
 
That is too funny, about the lactose problem!  I think we must be related, too!!    I'm so glad to hear that your se's are minimal with Femara, so far.  It gives me hope that maybe I will also have an easier time when I switch to an AI.
 
I am  having alot of shoulder and neck pain lately, and I hope it is just the Tamoxifen, but I'm getting a little worried, since I am not using the computer as much, and I would think it would get better if I stopped sitting and typing, at least that is what my dh thinks.  I haven't told him about it, since I know that is what he will say.
 
Now I have JURY DUTY the week of July 21, and I had an onc appt. on the 22nd.  I tried to get out of the jury duty, because I figure I have been through enough, and I had that onc appt. for SIX months, so they will just need to re schedule the jury duty.  I called my onc, and no such luck.  They re scheduled my onc appt. for July 29th.  I am hoping that my shoulder and neck pain will stop before then. 
 
I get SO SCARED, every time I get pains like this, when there doesn't seem to be a reason for them.  I didn't mention it, though, when I called my onc today about the jury duty. 
 
Well, guess I better get going.  I went to pick up my paycheck and that woman at the dress shop asked me to go back to work for her.  I have even been considering it, so maybe I need to have my head examined.
 
Hugs,
Harley
 
 
 
nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #16 
Harley,
You would consider working for that woman again?? Tell her you want a clothing allowance.

As for your neck and shoulder pain, are you sleeping with an A/C blowing on your neck? I know cold air can get to me too.

The jury duty thing they have up here is you are allowed two or three re-schedules.
Can you do that there? Your Onc is more important!

I know how scary it is to have pains and not know what it is. I was certain this bronchitis was lung mets. Man, how our minds work!

I have to be totally honest and I feel guilty because so many girls have so many problems with Femara - but I am OK. And I have lost 14 pounds on it. If I get the bad stiffness in my ankles I go swimming or for a walk. I really think the exercise is what is saving me.

I will be saying a special prayer for you for your onc visit!

love,
g


__________________


WE WILL PREVAIL





Harley

Goddess
Registered:
Posts: 145
Reply with quote  #17 
 
 
nosurrender,
 
Thanks so much for everything!  You are a very sweet lady!!  Prayers really DO help!  They are what got me through last year. 
 
I called my onc, and re scheduled my appt. for July 11th.  I seem to remember that the nurse who called me said to reschedule my appt. for EARLIER, so maybe they are planning vacation for the last week of July?  who knows? 
 
My shoulders and neck feel better, and I bet they were feeling sore because we have the ceiling fan on at night, while I sleep.  It seems to help a little with the night flashes, but I think it makes me stiff. 
 
I will try to get more exercise, because I think it will help, and I'm hoping it will also help me to sleep at night.
 
That jury duty just happened at a bad time for me, but I'll go if I am required, and maybe I'll be one of the 'excused' people who are asked to leave because the defense doesn't like my looks...

I am praying for you too.  I can't imaging how painful a contracture must be, but it sounds very painful.  You are right... I haven't had too much trouble with the chemo or the Tamoxifen, so far.  I keep telling myself that it could be alot worse.
 
Wishing us many happy and healthy and bc-free years!
 
Harley


nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #18 
Aha! A ceiling fan!
I used to have one - LOVED IT
and I would sometimes get a stiff neck from it.
If I could get one in this house I would do it. But it is too expensive and this is a rental.
I have a tall oscillating fan that blows back and forth so it doesn't stick in one place.

We will get through this together pal!
Praying for the best on the 11th!

love,
g


__________________


WE WILL PREVAIL





Harley

Goddess
Registered:
Posts: 145
Reply with quote  #19 
 
 
Yes, I think we'll get through this somehow!
 
Please let me know how your ps appt went...
 
Harley
nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #20 
Hi Harley,
I have to do a redo on the recon.....
But it will be ok.
I am starting to like anesthesia
Love,
g


__________________


WE WILL PREVAIL





Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.