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Limner

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Reply with quote  #61 
Hi Gina and Carrie, Chrissie, Indie, Cheryl, Calico - 
 
Wow, I am feeling pretty good.  My whole "Ducks in Order" Theme is working like a charm as an organizing principle.,and people just keep coming forward with thier own gifts and un-bidden expressions of  care.
 
Yes, last day of treatment was Tuesday.  Now Irina the Russian Radiologist says this trestment will continue to 'cook' so to speak for at least two weeks.  So no more tests for a month.  It is a holding period.
 
Meanwhile, she has put me on a very slowly graduated course of reducing the steroid dexametasone from 12 mg /day to 8 mg a day for a week, etc.  Right now I already feel less shaky and puffy after reducing for 2 days,  I do Not feel more SE, which was the concern.  I have been up all day without naps, walking more evenly and  often, less optical effeects, though the eyes are an issue.  heat still sets off all the red flags.
 
 I also attribute a lot of the reduced SE to the Edge-CAM supplements I am taking under Edge's supervision - to reduce inflammation - Boswellic,  curcuminoid, feverfew, etc.        
 
 Tonight my friend Rosil the planner from K&S where I work took me over to the pharmacy to pick up an ointment for the biopsy incision .  It was all healed, but the radiation caused it to start draining and being generally weird.  Anyway, we bought some beauty stuff, too - then she took me back to her condo - she lives in the same complex that I do - and prepared me a perfect Mediterranean meal of Lentil Soup, Corvina fish marinade, spinach salad and sent me home with a huge pomegranate!  She is also a yoga instructor, so we talked about meditiation.  
 
I seem to be doing fine at home alone, and try to keep out of mischief. 
 
 Generally, the comfrey, burdock, and red clover tea infusion my sister Violet sent me that I brew seems to be the very best dressing to put on irradiated skin.  It was the concoction  that healed the sticky red irritated tender skin of my breast after 33 radiation treatments.                                                                                          
 
Work-wise right now the plan is use medical leave, max out the disability benefits I have been paying for through Prudential, then re-group when the are used up maybe 25 weeks.  Hey, that is half a year!  I would not qualify for those benefits if I tried to work part-time.  
 
Well , that is where it is at.  I am grateful for my new primary care internist MD Michael Greenberg.  He spent at least and hour with me, gave me his cell phone # and is going to be my whole-body advocate.  He advised many small mono-ingredient meals, no "whites' - pasta carbs, etc. walking in water for exercise, and took care of the weeping wound.

I feel I everything to hope for, given the state of the art care and direction from No Surrender ~  and my great Holy Cross Med team.   
 
 the lightness of being - It seems the lighter I tread, the better it gets, Indie -  Did you ever see that movie, the Incredible Lightness of Being?  
Love, Mary                                                                               

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Calico

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Reply with quote  #62 
Wohooo Mary,
that is such an inspirational and positive post.
Glad you can reduce the steroids.
Your meal sounded very yummy, seems like a very nice friend to help you out.
Pretty nifty tea infusion I have to say, I've read about burdock before, it is also in Essiac (I have not tried, just read)

Hope you get some rest.

Constantine,
In case you read here, I am so glad we have you

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Indigoblue

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Reply with quote  #63 
MARY, MARY, MARY, MARY, MARY, MARY, MARY, MARY, MARY...
 
 
YES !!!
I am thrilled to know you, a remarkable woman, remarkable, remarkable, remarkable...
 
Speaking of mark, it's time for you to return to painting your master-works of art.  I clicked onto your painting. again, and thought...please Dear G-D, Angels, Faeries and Galaxy Guardian...a sensitive mind, a true heart, one who sees, needs you now...she will change the world...
 
Saw the Incredible, loved the title...it's always been my philosophy in the light of life, to rise above it all, find perspective, and then figure out where, who and what you are...Twinkle, Twinkle, Little Star...
 

 
Love,
Indi
 
ChrissieD

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Reply with quote  #64 
Hey there Mary,

You sound like you are doing so well despite the circumstances.  I was so happy to read your post.  I hope it "cooks" all the bad cells right out of you and pray for preservation and healing of the good. 

Just dropping by to let you know you continue to be in my thoughts and prayers.  Be sure you are resting lots and continue to take careful care.

Hugs,
Chrissie


Limner

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Reply with quote  #65 
Well Thank You ladies = Indie - surely twinkle twinkle is one of the first we learn - That was a very tranquilizing little vid.  And as far as painting, I am looking at about 6-7 incompletes - moving in that direction.  maybe new beginnings, mamybe finish what I started.
 
WBRT is kicking in as far as less SE - and as far as turning my head rather red at this point.  i did nto realize they were doing the forehead - don't know what I thought they were pointng at! 
 
Happy Halloween - M

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nosurrender

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Reply with quote  #66 
Mary - how wonderful!
I was so happy to read your post. Reducing the steroids is such a good thing. Your neighbor sounds wonderful... yoga can also be very helpful, maybe when you feel better you can work in some gentle stretches.
Your doc gave you his cel number? Wow! That sounds like a good man!
I totally agree with the non- white regimen...
You can switch from regular pasta to whole wheat pasta - especially the kind that is made with flaxseed.
You are an amazing, wonderful, amazon warrior woman... I found this lady today and took her picture because she reminded me of you



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k4katz

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Reply with quote  #67 
Mary,
So glad to hear you are hanging in there!  I hope your side effects get less and less until they are completely gone!

Sending hugs and prayers,
Kristin

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Limner

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Reply with quote  #68 
Thank  you for all your encouragement.  Getting used to the idea of being 'retired' - I have been at it all my life and at age 59 it does feel nice to be a Grandma to a little girl who seems to have a very curious and intuitive mind - Indie- she is another Aquarian!
 
gina, that is a very neat statue - do you Know where it is?
 
I had a dear roomate, Rike, from southern Germany while is was in grad school 2003.  She lived in a litttle town near Konstanz.  See below the statue of Imperia that stands in the Lake there, and check out that bosom!  fFROM Wikipedia:  The Imperia is a statue at the entrance of the harbour of Konstanz, Germany, commemorating the Council of Constance that took place there between 1414 and 1418. The concrete statue is 10 meters high, weighs 18 tonnes, and stands on a pedestal that rotates around its axis once every three minutes. It was created by Peter Lenk and erected in 1993.
Imperia(Statue) Konstanz Abend.jpg

The Imperia shows a woman holding two men on her hands. The two men represent Pope Martin V and Emperor Sigismund. Martin V was elected during the Council while Sigismund was the king who called the council. Both are naked except for the symbols of their power.

The statue refers to a short story by Balzac, "La belle ImpĂ©ria". The story is a harsh satire of the Catholic clergys' morals, where Imperia seduces cardinals and princes at the Council of Constance and has power over them all. The historical Imperia was a well-educated Italian courtesan named Lucrezia de Paris who was born 1485 in Ferrara, well after the council, and never visited Konstanz, where apparently there was huge Papal conference inthe old days. 

i feel good.  just vacuumed with lavender oil. 

Yeah, G - itry to avoid all pasta, even the WW.  Just using whole grains - Love Kasha.  OK, I used organic french cous cous for protein now & then.  Soaked oat grain, quinoa.   

Do you think I should forgo the yogurt and kefir? - I mean avoid diary altogether - mostly because they say it creates an acid environment? 

I find myself closigng my eyes a lot - wonder if that is from all the melatonin! 

Thanks for the hugs Kristin and Chrissie - Love, Mary


Click on the picture below for a better look a the irreverant detail of Imperia. 

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Calico

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Reply with quote  #69 
Mary,
sending hugs your way...hmmm vacuumcleaning?? I have a million excuses not to do it lol
Glad you feel well. How do you do it with lavender oil? Put it inside so it smells good blowing air out?
I have a Dyson, bag free...hmmm...


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nosurrender

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Reply with quote  #70 
I love that statue mary!

The melatonin would definitely make you sleepy.

My statue is from the entrance to an estate here that has been turned into an arboretum.  Here is the information about them from the Planting Fields site:

One of the largest undertakings in this period of landscape development was the installation of the Carsharlton Gates, the Main Drive, and the Gate House in 1926. Walker and Gillette designed the Gate House, while the design of the drive and the installation of the gates were completed by James F. Dawson of the Olmsted Brothers firm.


The Main Drive was carefully landscaped by James F. Dawson to take the visitor from groves of beeches, gradually revealing rolling lawns and taxus fields up to Coe Hall. Mai and W.R. Coe purchased the 18th century Carsharlton Park Gates while on a buying trip in England in 1921.

Sussex metal worker Thomas Robinson created the gates in 1711 for Sir Thomas Scawen of London. Italian artisan Catalini carved the stone pillars and John van Nost the Elder executed the massive lead sculptures of Acteon and Artemis. The gates had been installed at Scawen's estate Carshalton Park in Surrey, but the estate was never completed."

Here are some other views I took. The other side has a man...



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Jennine

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Reply with quote  #71 
Thinking of you Mary....all the time..xoxoxo

Love you, Jen

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Limner

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Reply with quote  #72 
Very interesting Landscape Architectue lesson Gina - I will check it out - historic to say the least. 
 
The WBRT and/or the Tumeric have definitely reduced my symptoms.  Walking straighter and balanced, more tolerant of heat, and less vision issues.
 
Jen - My old friend Barbara who went to greece and came back and drank retsina is here for the weekend - no retsina for me; perhaps a feta omlette.  Thank you for your strength and passion in my direction.
 
I am so wired on steroids I am only sleeping 4-5 hours a night - don't know how my body is really coping with this.
 
night - M
 
 

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nosurrender

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Reply with quote  #73 
(((((MARY))))))

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CherylG

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Reply with quote  #74 
((((Mary))) so glad the WBRT are reducing symptoms for you. You are an amazing warrior. I think and pray for you every day.
Hugs
Cheryl

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Calico

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Reply with quote  #75 
Mary,
you are such a strong lady!!!! So happy for you that supplements help reduce symptoms!!!!
I am a big believer in Turmeric!!!

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Reply with quote  #76 
Hi Mary,
Just dropping by to send you healing vibes .

Hgs,
Carrie

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saying.. i will try again tomorrow.
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Indigoblue

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Reply with quote  #77 
(((Mary)))
 
Please check-in....
 
A bell is ringing, singing, and lingering to jingle-jangles. 
 
Hoping, praying, and in the shower of faerie kisses, that you are well, feeling better each day, and enjoying life.
 
Miss you!
 
Love,
Indi
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Reply with quote  #78 
For you,

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csp

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Reply with quote  #79 
Hi Mary,
How are you dear? Thinking of you and hope all is going well.
Gina I want that painting. It is so peaceful.

Lv&Hgs,
Carrie

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courage does not always roar. sometimes courage is the quiet voice at the end of the day
saying.. i will try again tomorrow.
~maryanne radmacher
Limner

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Reply with quote  #80 
http://nosurrenderbreastcancer.websitetoolbox.com/post?id=3825095&pid=36210225#post36210225
 
 
Gina made this thread for me.  iit is harder to read and type with the vision issues - blind spots I am having, so mostly I will be hanging out in my garden.   I get frustrated with all the typos, so I may jus leave them!  The painting looks like a blakelock.  My little Olivia's fist sentence was I See the mOON! 
 
More scans DEC 7 -& 9 Robin will be here to assist and witness MD discussions.  as I wait, I am reserching options for the next chemo/whatever.   I love you - and pray for our healing and sweet experiences along the way

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Dear friend, theory is all grey, and the golden tree of life is green. - Goethe
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