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Limner

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Reply with quote  #21 

Doing good today sisters - I wrote back last night but the somehow lost it and got frustrated - Love that picture !  Mo Later  = I am riding on your prayers and Love - M


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Calico

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Reply with quote  #22 
Mary,
went up the hill today praying, glad to see you post!!!

You are in my thoughts!!!!

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csp

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Reply with quote  #23 

 




Thinking of you this morning Mary, Reaching out to hold your hand as you walk this journey one step at a time.
 

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courage does not always roar. sometimes courage is the quiet voice at the end of the day
saying.. i will try again tomorrow.
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Limner

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Reply with quote  #24 
Today was a break from treatments - spent most of the day vertical, felt very alert and like progress is being made.  I am visualizing return to normalcy and my body just takes care of everything in it's own wisdom.   Much Love to you all - Mary 
 
So fine to have fun, cancer-survivor artist son Robin here tonight !!  He is so sane.   beautiful image, CSP and I heard the prayer from the hill Calico - XOXO

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Dear friend, theory is all grey, and the golden tree of life is green. - Goethe
Indigoblue

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Reply with quote  #25 

(((Mary))),      
Prayers, beautiful dreams, and hope, and lots of fairy kisses, too! 

Have a beautiful time away from medical-medical-medical, and please, Sending everything I can gather together in the underground, middle-ground, foreground, background, and arialground...and all the dimensions in-between are on the way:  prayers, love, hugs, laughter, joy, and big hugs!  Now it's time for you to rest, relax, and retreat...while you heal, feel better, and re-group.  I hope you have a wonderful weekend.,,what's left of it...where does the time go?       
 
Love you, Mary!  Pink healing thoughts and clear blue waters....for sailing true!
 
Love,
Indi

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Reply with quote  #26 
((((Mary))))
Thinking of you and praying hard for you and so happy to hear you are going to enjoy your day!



Many many more beautiful mornings for you!!


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CherylG

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Reply with quote  #27 
Hope you had a good day away from treatment Mary! You are inspiring.
Hugs
Cheryl

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Calico

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Reply with quote  #28 
Hey Mary,
hope you are well and resting, thinking of you!!!

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ChrissieD

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Reply with quote  #29 
Hi Mary, thinking of you lots.  Hope you are doing okay. 


csp

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Reply with quote  #30 

Hi Mary,
Just stoping by to tell you I am thinking of you.
Hope today went well.
Hgs,
Carrie
 


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courage does not always roar. sometimes courage is the quiet voice at the end of the day
saying.. i will try again tomorrow.
~maryanne radmacher
coco

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Reply with quote  #31 
Hugs and healing thoughts, Mary....
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k4katz

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Reply with quote  #32 
Hi Mary,
Sending hugs and positive thoughts!  You are in my prayers every day....
Kristin

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delphinus

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Reply with quote  #33 
dear Mary, sending you love, light, and positive vibes through the ether...I think you must be almost halfway through the WBRT--way to go!!!! I hope you are feeling better already, but I'm sure MUCH more healing is on it's way...you are strong and lovely and an inspiration!

xoxox
janet

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Reply with quote  #34 
Mary, some laughter for you today...
This is the kind of humor that just slays me...



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Limner

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Reply with quote  #35 
You all are awesome - I just finally got on the internet  for the first time in over 24 hours - and WOW you have all been out there sending me all this love and vibes --  it is  no wonder I felt so cheerfull today while my poor oncologist and his nurse were besides themselves with angst.   they felt they had nothing to offer me but triage. 
 
My son Robin and i went to the 7th radiation treatment, them met with my oncologist, the nurse Cathy, the social worker Christina - for about an hour this afternoon.   Thank god Robin knows me so well -
 
i thought we would talk about the chemo to come, etc.  But my oncologist opened with that I should "retire".  He is seeing a complicated and agressive  3N cancer that will cause me more or less trouble in more or less time - The poor nurse was beside herself, really, feeling she could offer me no hope, but even brought up hospice.

Anyway - they were pretty bleak - Robin and I desieled through it and went and had Greek food.   I am grateful that he can be by my side and know my thoughts and when the time comes, he will have peace about the decisions he and my son JJ make.   But not yet!!  
 
Meanhwhile, Gutierrez does not care what Boswellic substance I take at this point!  Or aroma this or that. 
 
 I should say the rough plan at this point is to see how the radiation minimizes the effects of the many tumors in my brain - apparently two very near the brain stem.  He said it would take 6 weeks after treatment to see the results.  then nurse Cathy told me how tired I would be - might lose cognisance, etc. -- Like you're fu--ed up and then you die kind of thing -   Robin said, "Jesus - she is too mean for that - " 
 
Gutierrez is also suggesting a possible a parp -inhibitor NCI stage one trail in Bethesda as a possibility.  I have to investigate that with Edge.   
 
Meanwhile retire?? HAHAHa  I am living on donated sick time right now - 700 dollars in my retirement account.  Do not qualify for Disability - have not worked 5 out of last ten years on paper.   family in same boat as me - hand to mouth.   But the lights are on, the weather has cooled - I live breathe and have my being and rejoice that you have been sustaining me through this - foot prints in the sand and all that - NO F--KING SURRENDER!   I fianlly sent away to vitacost for Edge's actual doses and recommendations instead of guessing  my own at whole foods. 
 
fairy dust is the main ingredient - Love, Mary



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Dear friend, theory is all grey, and the golden tree of life is green. - Goethe
Calico

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Reply with quote  #36 
They said Whaaat????
You haven't even started let alone had a true assessment as in a scan!!!!

You are right to order Boswellic.
At least they are mentioning a trial, good for you!!!
How far would you have to travel??

Sounds like your son has humor good for him!!!!

I do think it is intersting to see the emotions in your nurse. What to do when somebody is helpless, what to say? They give you an assessment, you take the trial.
If I could remember zip I would know more about parp but I have to read up on everything trice

glad you are not giving up Mary!!!!

Since you are stage IV, isn't there an exception with retiring...as in medicare and such.....I am a complete helpless idiot? and I am really angry right now!!

I'm sending you hugs, vibes and prayers!!!


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nosurrender

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Reply with quote  #37 
F*CK THAT!
Pardon me but that is bull crap!!!!!!

MARY- WE GOT YOUR BACK. YOU KEEP FIGHTING LIKE YOU ARE!!!!
Take the Edge regimen.
Let me see what I can find out for you re the trials. I met the woman who runs ALL the clinical trials in the US. She is the one I have been talking about. SHE IS AWESOME and thinks just like we do.

We are going to fight, fight and fight a little more. We will take time off to have great food and look at beautiful art.
As far as your money goes, I will look into our Florida resources for you too.

I love you, girl. So glad that Robin is with you.

GO GET 'EM!


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k4katz

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Reply with quote  #38 
Mary,
WTH???  Yes, TN is aggressive but there are still other weapons in the arsenal!  Gina will bring out the big guns for you!

Keeping you in my thoughts and prayers!

*Hugs*
Kristin

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MicheleS

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Reply with quote  #39 
I vote for the PARP trial.  The animal studies are very, very promising.  When I get to work later, I'll pull some papers. 

xxoo

ChrissieD

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Reply with quote  #40 
Guess they have not seen the NoSurrender BIG GUNS before, huh?!! 

Are you eligible for social security disability benefits with your stage diagnosis?  I think you are. Check with the hosipital social worker.  They may be able to get the paper work for you.  If you can get it and then can afford to not work I would recommend it.  Fill your day with things that lift your soul  - deep breathing, healing meditation, a trashy love novel if you are up for reading, great food, daily nap (that is my favorite). 

Sending lots of hugs and prayers for you!
Chrissie

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