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Cynt

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Reply with quote  #1 
Coming here because I'm waiting to get a scan on Tuesday, and I haven't told anyone in my life about what's really going on yet, so figured I could say stuff here without worrying my DH.

Saw my oncologist last Friday; he wanted me to get a scan right away, but there were no openings, and my son is taking up all my time with his own medical things on Monday, so Tuesday was the earliest. I'm not worried, but I am curious. I was a bit surprised that my onc wanted a scan, because he'd been saying maybe no more scans for me, because they've all been clear, and when I told him of my new symptoms (night sweats that are limited to my head, I get full too fast, feeling of pressure/discomfort in my chest, especially if I have eaten, and it's often difficult to find a comfortable position if it puts any pressure on my chest at all; puffy swelling at the base of my neck above the clavicles, and ongoing swelling of (mostly) my right inner ankle, and surprisingly to me, a slight fever when the nurse took my temp, and fatigue). It may be more digestive, because I've been having difficulty not only feeling full before I really want to stop eating (mostly due to the fact that I'm enjoying the taste and don't want to stop after only a few bites!), and dashedly uncomfortable in my whole upper body after I eat more than a snack, but in the last month I've gone from no problem with acid reflux to horrible problems with acid reflux and being full up to the back of my throat. At least "it may be more digestive" is what the onc said. But I also did research on the symptoms, and they line up with lymphoma; I have several risk factors for lymphoma, too. I'm on an immune suppressant ointment, but I think even more importantly, I have autoimmune hypothyroidism plus breast cancer, and I believe both of those raise my risk of lymphoma?

Anyway, whatever the CT finds is fine. Doctor suggested that my complaints mostly sounded intestinal, he couldn't feel any nodes with the "neck puffs", my ankles could be (still) a side effect of chemo (tho the swelling did not even start til earlier this year), and that a supplement I'd been taking (Rhodiola Rosea) could be responsible for the changes to my intestinal tract. I do think the Rhodiola is having an effect, and told him so...ever since I'd been taking it, my energy and my appetite had increased, and in fact, I'd gained ten pounds, most of which I've now lost again. I was getting a bit frustrated because I wanted to eat more than I was able to. He didn't know my supplement and didn't trust it, so I'm keeping off of it for a while to make him happy, but my energy has taken a hit. But at least my appetite is easier to manage, because sure enough, I don't want to eat as much. We'll see on Tuesday if there's anything there, and if not, guess I get to talk to the gastroenterologist that just did a scope on me. Found a polyp. Typical. Not even 50 yet...my body is definitely not my best friend.

Thanks for letting me talk about stuff here (lol, like you all have a choice...), but it feels good to be able to talk about it without worrying the people around me. There may be nothing wrong at all, or at least, nothing serious...and I'm not worried either way, but I'm a TALKER, and keeping something quiet til I know for sure is HARD for me! I've kept quiet on my symptoms for a while now, not wanting to go running for a scan if there wasn't something there. I hate that! I got a brain scan in June because I'd developed a tremor, and there was nothing. So I felt stupid and since there's been nothing on my scans and they were talking about no more scans, feel like they are thinking I am overanxious. So I waited til my regular appt, but if it'd been any later, I would have called, because things are definitely getting to the point where I feel like I have enough symptoms to warrant investigation. I don't feel like I jump at shadows, but I do like to investigate. Can anyone relate?


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Calico

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Reply with quote  #2 
Hey Cynt,
this is the place to vent

I frequently like to lounge on the ceiling fan myself after clinging on it for a while and then think I may just stay there indefinite

I would take those symptoms seriously too and meanwhile rationalize all possibilities for a good outcome.....after all, our bodies have failed us once with bc and now we wait for the other shoe to drop!!
The acid reflux could be a 'good' sign.....as if the culprit. Maybe this is the only reason that makes you uncomfortable when having eaten food?
The head flush....this was my first hotflash....it started in the back of the head as if somebody rubbed a jalapeno pepper on my scalp....soooo weird....Do you have other hotflashes too? Or only this new head ones?
And there is the thyroid........

I certainly hope the scans reveal nothing and all of it can be explained away.....cheeech.....In the meantime I feel your worries and hold your hand.....there is always a spot on my ceiling fan



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Cynt

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Reply with quote  #3 
I'm not on the ceiling, honest. But I would like to know. I'm curious like that!

The acid reflux...the only thing about it is, it came on so suddenly! I had a scoping where they found very mild reflux, right at the juncture into the stomach. I'd had no symptoms. So, after looking at the side effects of Prilosec, I decided I'd rather try natural supplements and not eating 3 hours before bed. Only it got worse, to the point where it was a burning agony, and I gave in and started the Prilosec. Within a few days, the burning pain was gone, but the pressure discomfort remains, and that increases if I eat, but it's there no matter what, worse when I'm laying in a position that puts any pressure on my ribcage.

I'd stopped having any hotflashes, and mine were always mild and short lived, anyway. The sweating doesn't seem to come with being hot. In fact, sometimes I wake up because I'm cold. I keep soaking my pillow. It's highly annoying.

I'm not worried. Cancer and death don't scare me, I'm certain God is working all things to the good, and I don't try and define that, anymore. I used to. But now I trust, and let me tell you, that was a hard lesson to learn! Life or death, I'm His no matter which way it turns, and I will live accordingly no matter what comes.

I admit, I have felt for a while it was serious, but wanted definite symptoms before talking to the doctor about it. But maybe I'm just overthinking it. I'll find out Tuesday, maybe? Well, scan on Tuesday, I'll find out when they tell me what the scan saw. Did I mention I'm not good at waiting? lol.

Thanks for the spot on the ceiling fan, tho. I'm happy to keep you company while you wait, too!


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Reply with quote  #4 
Dearest Cynt,
I am sorry you are going through all of this.
One thing that jumped to my mind was gallbladder. Many women, after breast cancer treatments get gallbladder issues... some requiring surgery. The discomfort you describe really reminds me of others who eventually were dx'd with gallbladder problems.
if your tests are inconclusive, I would ask for a HIDA scan. That will show if your bile ducts are blocked.
Much love,
g


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Cynt

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Reply with quote  #5 
Thanks, Gina.

I'm not so sure about the gallbladder...the women I've known who've had that had symptoms akin to severe stomach flu, with a LOT of pain. I also don't fit the profile, but, I didn't fit for breast cancer either, so who knows!

My symptoms could best be described as discomfort. You know how you feel if you're trying to do something at an awkward angle and kinda squished, how you can't breathe well? Maybe it's uncomfortable to breathe because of the limitations, but there's nothing wrong with your lungs...that's pretty much how it feels, and it gets worse the fuller I make myself. The fullness part...I'm getting fuller faster than I did just a month ago. A snack fills me like a dinner, but there's no nausea or anything associated with eating, just the discomfort of being overstuffed...which for me, carries the additional complication that the food backs up the esophagus, plus, there is the addition to the "awkward and cramped" feeling in my chest. The overfull problem only used to happen if I ate a massive amount; now it's happening anytime I eat what used to be a regular portion for me. I never had much problem with heartburn, but I think because the food has regularly been backing up into the esophagus, now I do. Well, I did until I started using the Prilosec. To compensate, I'm eating far less, which has the advantage of helping me lose a few pounds, and not eating for at least 3 hours before I go to bed, which is also helping the weight. I had gained about 10 pounds this summer, and in the last month have lost about 7. I am hoping that the Prilosec will let the gastritis clear up, and so I won't have to keep taking it. I guess I'll just watch the food volume. Which is funny to say, because I would have said I wasn't eating that much in the first place, because I have to watch my food intake because of my thyroid, because I don't want to have to try and lose weight with that as a ball and chain. Had to do that in my 30s when the thyroid thing showed up, and it's HARD!! And it would be harder now.

I'm feeling the most discomfort in the upper chest/clavicle/sternum areas, plus there's a rib that keeps bugging me, and sometimes I feel discomfort from pressure all around my chest, and even in my spine, at a bit above bra strap level. Tho, realizing that, I've realized that if I breathe from my diaphragm, it's better.

I dunno. I go back and forth with myself, sometimes feeling like maybe I'm just thinking about it too much, and so exaggerating the problem, and maybe it's nothing. Maybe it's just heartburn and tension. I'll be glad to get the scan tomorrow, to settle my mind. I'll either feel vindicated that there was a reason to complain, or I'll feel unsure as to what's going on, but at least it won't be cancer. Tho I admit, I do not trust CTs in diagnosing cancer as much as PETs, so if it doesn't find anything, part of me will wonder if it was really clear, or it if just didn't see.

Thanks for the discussion! This was why I posted here. If I tell my DH, he may worry, and what if it's a false alarm? So I post here instead, this time.


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Reply with quote  #6 
((((Cynt))))

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Cynt

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Reply with quote  #7 
Thanks, Gina

Well, got scan today. Naturally, I still know nothing. Ah, waiting...how I hate it. Here's hoping I get more info tomorrow!!


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Cynt

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Reply with quote  #8 
Scan results: Nothing they saw looked suspicious. The swellings at the base of my neck, best theory is, lymphedema (oddly enough, more on the side that WASN'T radiated). (That makes me unhappy, but so does most of what my body has decided to do these days.) Fatigue? Dunno. Feeling of pressure? Um...gas? Low grade fever? Well, maybe you were sick. Night sweats? Part of that menopause thing (I'm about to scream at the whole menopause thing. I am hating waking up several times at night to try and find a dry spot on my pillow!) He says if my rib is still sore in a few months, we'll do an MRI (was going to do one in about 4 months to see if there is anything obvious going on around my implant; my body hates foreign objects, and there are multiple places where it just plain hurts on the reconstructed side). Doctor theorizes that my body is just upset at everything, says sometimes they have patients that happens to, and it often settles back down. That was his best guess for why it feels so awful to wear a bra these days; it makes my whole rib cage feel like it's under pressure (but oddly, not specifically where the bra is; the bra is not too tight, either. Even more oddly, it's not every time I wear it.)

Ahh, isn't my body FUN. Can't wait to trade up.

So, the good news is, no cancer visible in a CT. The frustrating news is, I'm not feeling great and there's no definitive reason, and so of course, no remedy. Well, maybe things will become clearer with time. Thanks for the hugs and concern.


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Reply with quote  #9 
GREAT NEWS CYNT!!!!!!
YAY!
now, if your GI probs persist, get the HIDA scan. Not all Gall bladder disorders cause excrutiating pain, sometimes it is discomfort that builds over time because there is what they call "sludge" in the bile ducts. The HIDA will rule that out.
I am so happy everything was clear!


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Reply with quote  #10 
Cynt,
trading up sounds like fun

Are you able to work out (no other ailments?). That keeps me sane.....I started to walk, then intervall runs....now it's 5 miles on the trail in the woods, uphill and downhill.....I am loving it....can't do without.
I neglect my upper body and core though......need to redo my workout a bit 
Edge CAM is next on the list....helps me with aching and squeaking. Eating healthy (except chocolate and coffee....well....both are made of beans.....so kinda veggies loool)
Feel better!!

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Cynt

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Reply with quote  #11 
I do workout, except the fatigue has been affecting my ability to do so. Usually I do 30 mins of aerobic exercise on my indoor bike (a knee with no cartilage prevents me from doing much weight bearing, like walking and running). However, I've been unable to complete a workout without stopping for a rest before I can complete it ...well, at least a couple of months. I'd taken a little break from doing it every day due to some operations and procedures, and thought I'd be back to full steam by doing it all the time, like I did before...but the exercise that I used to be able to do continues to be just out of reach for me, endurance-wise. Last night I was feeling more pain and pressure, and was actually beginning to wonder if there is something going on with my heart...but surely they'd have seen if there was anything like that. That would explain why the pressure discomfort is worse sometimes, I suppose.

I'm really tired of talking to doctors, tho, because they never find anything. I'll just wait til something becomes more evident. Maybe it's just a temporary thing that will go away. If it gets worse, I'll call my primary.

Thanks, all! For advice and support. Love you all!


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Reply with quote  #12 
Hi Cynt!! YAY for clear scans!! yippee!!!!
Cynt

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Reply with quote  #13 
Thanks!

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