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chemoabi

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Angel
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I had an interesting case to evaluate yesterday.  A young woman at the age of 44 who was diagnosed with DCIS and BRCA1+ 5 years ago.  She had prophylactice bilateral mastectomy and then developed Fibromyalgia.  She went to Mayo clinic because of severe muscle aches and pains and was diagnosed with:
 

Paraneoplastic Syndrome

 

These syndromes are a group of complicated degenerative disorders that are triggered by the immune system in response to neoplasms or cancerous tumors.

 

Neurologic paraneoplastic syndromes are believed to occurs when cancer fighting antibodies or white blood cells known at T cells mistakenly attach normal cells in the nervous system.

 

Symptoms begin to develope over a period of days to weeks to years.  The symptoms may include

 

...difficulty walking or swallowing

...loss of muscle tone

...loss of motor coordination

...slurred speech

...vision problems

...memory loss

...seizures

...sensory loss in limbs

 

Severe muscle, neurological, and immune system disorders may be caused by this syndrome.

 

I just found this whole concept very interesting when comparing it to some of the things we are experiencing ourselves since our diagnosis.

 


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SoCalLisa

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That is very interesting to me Nicki..I know I developed those symptoms a couple of years prior to my DX (you figure the tumors had been there for a while)..some of them cleared up during chemo (maybe those cells were killed as well)..I will have to look into this...thanks...

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CherylG

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Reply with quote  #3 
 Thinking 
Well well well .... now wouldn't that explain a whole lot of things!!! They always jump to fibromyalgia ... this sounds very interesting! Thanks Nicki!

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chemoabi

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SoCal:  From what I read, if you have this "syndrome" frequently the symptoms occurs before diagnosis.  Sometimes confusing or delaying the bc diagnosis.
 
CherylG:  Yes it is interesting, dont ya think.
 
Nicki

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Nicki..wonder if the high doses of methothrexate in CMF helped this as well...I know they use it for RA...

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chemoabi

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Bumping for Karen


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NuttyNickiNurse
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Reply with quote  #7 
Just reading through the posts...so interesting Nicki.

You know what this reminds me of? Tinkermax from the brc.org. She has numbness in the hand and nobody knows a thing.....wow...wouldn't that be a coincidence if she could put a name on her condition?

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