Sign up Calendar Latest Topics
 
 
 


Reply
  Author   Comment   Page 3 of 3      Prev   1   2   3
suzfive

Goddess Forever
Registered:
Posts: 205
Reply with quote  #41 
Deb,

I am so happy they "sprung" you so you could go home and get some rest and be with your family. 

We are praying for you that whatever it is - God will give you the strength and the doctors the knowledge to fight it. Will keep you in prayer as you undergo all those tests next week. There is still the possibility that this might be a very, very rare side effect of chemo - maybe the Avastin?? Was poking around the net and found reversible posterior leukoencephalopathy as a rare side effect of Avastin (<1%) - causes visual disturbances, lethargy, seizures (but not always) - usually hypertension goes along with it but again not always -especially when caused by chemo - just a thought.

Love and hugs,
Suz


__________________
"Life is not measured by the breaths we take, but by the moments that take our breath away"
DoreenF

Princess Kindheart
Registered:
Posts: 974
Reply with quote  #42 
Deb - I'm sooo glad that you talked them in to letting you go home to rest. I'm sorry that you still don't know what's going on and that the tests were inconclusive ...  keeping you in my thoughts and prayers and hope they figure it all out next week and can quickly treat whatever the heck it is. 

Fancy's got a good idea with that book -  can't hurt ...  maybe you could  have your daughters read the book  to you ... it would really let them help you in a meaningful way.

Wish I lived closer so I could come over and help out and give you a great big hug.

Know that you continue to be in my thoughts and prayers. 

Love and Hugs,
Doreen


__________________
"Cancer May Leave Your Body, but It Never Leaves Your Life" - Lance Armstrong Foundation Manifesto.
silvergirl9114

Avatar / Picture

Silver Goddess
Registered:
Posts: 204
Reply with quote  #43 
Deb--

Two good posts just before this spot. Suz---thanks for investigating Avastin SEs---that's a possibility, yes? We all know you are a rare person so why not develop a rare side effect? Sounds totally logical to me!

I have seen the doc referenced and heard him talk about his experiences with visualization. He's not a kook and very well informed. Visualization is different from the happy talk crap the uninformed insist on dumping on us. Do you still have Super Deb? If not, I'll send you another one! When you're feeling better ask me about my Mom, the Norman Vincent Peale freak. She lived to be 81---shouldn't have, but she did. BC survivor, among other things.

We're all having a little difficulty smooshing into the recliner with you, but we're managing. Now someone is sitting on my hair. You've met me so you know what short hair I have. Just a visualization to let you know how many of us are right beside you!!

Jeannie
SoCalLisa

Avatar / Picture

Goddess Forever
Registered:
Posts: 2,134
Reply with quote  #44 
deb..the noise must be deafening with all of us in the room with you...
Sending more hugs...




__________________
"One's mind, once stretched by a new idea, never regains its original dimensions."
-Oliver Wendell Holmes
AlaskaDeb

Avatar / Picture

Angel
Registered:
Posts: 673
Reply with quote  #45 
Thanks for all the research and ides. Suz - I will mention that side effect to the docs.  It is worth checking in to.
Jeannie - I still have super girl.  She was even at the hospital with me   Along with my daughter's favorite stuffed dog and lots of other good JuJu knicknacks
I will try and reply more later.  I got all caught up on reading and am once again in awe at the knowlede, power and love that comes together here...
Huge hugs
Deb C

__________________
http://glassylady41.spaces.live.com/
chemoabi

Avatar / Picture

Angel
Registered:
Posts: 2,320
Reply with quote  #46 


__________________
NuttyNickiNurse
CherylG

Avatar / Picture

Goddess Forever
Registered:
Posts: 1,755
Reply with quote  #47 



Love always

CherylG


__________________
When you get to the end of your rope, tie a knot and hang on...Franklin D. Roosevelt
SusieSwan

Avatar / Picture

Junior Member
Registered:
Posts: 37
Reply with quote  #48 
Deb,
I don't have much more to offer than everyone else has...only know that you are on my mind day and night and I'm praying so very hard that you have a speedy recovery.  I love reading that Mayo's is involved...if they can't figure it out, no one can and with all the tests, I'm glad nothing is showing.  Easier to smoosh a pea than watermelon. 
Big Hugs,
Susan
Karen1956

Goddess Forever
Registered:
Posts: 1,218
Reply with quote  #49 

Deb - you are truly amazing - thank you for keeping us so well updated.  Hugs to you.  Karen

Indigoblue

Avatar / Picture

Queen Blue Sky & Golden Light
Registered:
Posts: 1,681
Reply with quote  #50 

Deb,
 
"Easier to squish a pea than a watermelon!". to quote SusanSwan.  Thanks Susan!
 
Using your own docs, and with the superior experience of Physicians at the Mayo Clinic investigating your case, pea soup!  Yay!!!  I love Pea Soup!  The side effects for Decadron, Abraxane, Avastin, and all of the Gold Star Drugs have similar side effects, and they are known to accumulate, linger, but kick cancer out of your house!
 
So many great prayers, thoughts and positive thinking...I like to think I think through your head, and the place I visualize when going to peace, calm, clean, vivid, wild and free, is the Top of the World, somewhere on the coast of Alaska, sleeping on an Iceberg, waving to the Polar Bears, Seals, Walrus, Whales, and Salmon...and the King Crabs, all dressed up for the "Lobster Ball".  An Otter swims up and we have a discussion about the latest Top Seal Dinner.  The Seals are clapping their fins, and I wave as I glide across Chrystal waters, furlong the current from the warm winds from Hawaii. It's perfect weather, warm equatorial peace, mixed with clear, cold and crispy Northern Glacial Temperate Zone. 

Eventually, I see an island ahead, where I will continue my journey.  Inuit Tribal Medicine Chiefs and Healers are waiting for my arrival.  The water is dangerously cold, but it feels good as I dive off the Magical Iceberg and into the clear icy waters, accompanied by Killer Whales and Dolphin.
 
A Grizzly Bears is standing on the shore with a soft warm blanket, and leads me through an ice tunnel, totem poles, and the spring wildflowers, and Pine.  A Great Gray Owl, circles the sky, and lands on my shoulder.  The blanket made by healing hands and woven in my "colors, green white, gray, turquoise, indigo blue, sea spray sky blue, and the pale pinks of morning light.  The Great Gray's talons do not harm the skin, I am protected; it is a healing spirit, guiding me to this spirit place, unknown to all, but those who are keyed into the dream, the song, the drum and the knowledge of before time, now time, and time everlasting; have visited this place many times. 

There is a mountain, and a long glowing neon-blue tunnel, waterfalls cascading in the echoes where firelight glimmers in at the far-off "end of the tunnel".  A golden peace envelops the spirit, mind, sensations, and the splendor of love resounds;  sparking and snapping, with mellow songs, and a deep salt pool of aqua water.  My loved ones are there, the Shaman is there, and the scent of lilac, rosemary and sage fills the air.  I drink a cup of sweet, herbs and honey-like sun, warm, painless, and content. 

The singing continues, the chants and meditation, the icy cave walls, the warm waters sooth the fear, pain, and hope fills my soul with love, God's blessings, and the Great Spirits of this awesome universe.  I am blessed, joyous and happy.

I wake up.  It is a deep meditation difficult to describe, thought I would give it a try.  It's where I have always gone when life becomes too difficult, painful, and hardships more than a single person can bare, bear, care-bear? lol. 

It works every time, bring down blood pressure, slowing a racing heart, swelling in my knee, it was horrendous, but the visualization and meditation, call me crazy, must have helped it, because I woke up the following day and it was almost completely reduced in size.  (lol, from a watermelon to a pea).

Everyone usually has a special place they need to find.  This is my bubble, and no one has ever been able to destroy it.  It's my secret place, and I remember being two years old, wondering why I was here and not there.  It's far more detailed, but it's easy to get there when I'm beside myself with fear, anticipation and sadness.  Sometimes, I can't get there, and it takes a lot of work; I have to build a canoe using stone tools and birch-bark, animal skin and fur,, and whale bones found along the shore.  Of course, there are glistening rocks abalone shells, and the songs of seagulls and Snow Geese, and the voices singing, distant drums and wildflowers blowing in warm gentle breeze.  Since it's a meditation, there are no mosquito's or black flies, bees, or Great White Shark-squito's......lol. 

I know you likely have a secret place, and I think it's how we're able to stay half-sane throughout this tremendously difficult time.

Get well, my thoughts are with you, and "Ouch", "was that So-cal Lisa foot?", "no, it was G's, telling me, enough already!!!",  lol. 
 
Love you Deb,
Prayers and meditations your way, via the North Star, the North-winds, and the Northern Lights!
 
Love,
Indi
 
Sleeeeeeeep, Reeeesssst, Dream Healing Heart, and softly sleeeeeeeep.  Tomorrow is another day, after all (Scarlet O'Hara Butler says, as Cancer is outa there (I thought Rhett was actually a rather revolting character, in many ways, she was better off without him!).


Love you,  

nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #51 

All are different
Some are blue and some are green
All of them have been washed up on shore
Their edges smoothed
Their colors muted
The more they are tumbled about in the waves &
The harder the time they have against the rough sand,
The more beautiful and rare they become
The precious ones have been beaten about a lot
And if we are really lucky, we will find one

I am so blessed we have you in our lives

Love you dear Deb
g


__________________


WE WILL PREVAIL





Naniam

Goddess Forever
Registered:
Posts: 1,341
Reply with quote  #52 
Deb,

Sending you a Monday morning hug.  I know there is lots on your plate this week. 

Know that we are wishing you only the best and sticking close to you.

Love ya,  Brenda
silvergirl9114

Avatar / Picture

Silver Goddess
Registered:
Posts: 204
Reply with quote  #53 
Deb---

We're all right by your side while you go thru the new testing and waiting. A busy week for you but we're all right here, holding you close and rubbing your back. That always zones me right out.....

Jeannie
DoreenF

Princess Kindheart
Registered:
Posts: 974
Reply with quote  #54 
Deb - wanted to let you know that you're on my mind ...  thinking about you ... I'll be with you as you get those tests done today ...  you know that the room will be overfilled with all of your sisters - right ??

Love and Hugs,
Doreen

__________________
"Cancer May Leave Your Body, but It Never Leaves Your Life" - Lance Armstrong Foundation Manifesto.
CherylG

Avatar / Picture

Goddess Forever
Registered:
Posts: 1,755
Reply with quote  #55 
DEB... thinking of you always and praying for you. We all love you
Hugs
Cheryl

__________________
When you get to the end of your rope, tie a knot and hang on...Franklin D. Roosevelt
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.