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nosurrender

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Reply with quote  #21 
Calico-----
WHAT FANCY SAID!
And HOW!


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nosurrender

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Reply with quote  #22 
Indi, what is going on???
The doctors MUST tell you what is going on. Does your DH tell them not to???

We would be more than happy to go to bat for you!

Love
g


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Fancy

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Reply with quote  #23 
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I want to know what is going on and am I required to hire a lawyer to get the facts?  This is getting to be a ridiculous and painful game the doctors are playing; they don't care who I am or how I feel; I am just a statistic, a number, and a billing account to the insurance company. 




Hugs to you, sister.  You have really been through the wringer.

I have good news!  You don't need a lawyer. The legal work is already done.  Your medical records belong to you per the Federal HIPPA laws.  You actually have the right to pick them up and walk away with them.  There is NO WAY the doctor's office can refuse you copies, and they MUST provide them at minimum cost.  Mine cost nothing.  IF they refuse you copies, look them straight in the eye and say, "My lawyers are Smith and Wesson.  Do I need to call them in?"  Anyway, don't take any sh## from them over whether or not you can see/read/copy your records..

Sounds like you need an Ugly Hat too. 


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the Frog's Princess
12/05 ILC 1C NX M0

4/1/08 Stage 4
and looking for NED
Indigoblue

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Reply with quote  #24 
Thank you Fancy & G!
 
I knew a little about the Hippopotamus Laws...take chemo and get fat, mad, and progesterone mad!  lol...just kidding.
 
I would like to know what records we are, in fact, allowed to have given to us?  There are recordings, written after procedures; there are notes...there are witnesses during and after procedures, along with the testing procedures, techs, chemotherapy nurses, night on-staff doctors, etc; is any of it on record?  The discussions with the Surgical, Oncology and Radiology Techs and Nurses...are those recorded?   That's where the information is hidden; and they aren't talking. 
 
They are protected, and they are not recorded (as far as I know).  Besides; I don't want to get anyone fired or in trouble. 
 
I want a simple little fact...the truth.
 
Why is it so difficult to find out the truth?
 
It's a hopeless problem that's annoyed me my entire life. 
It why I despise lies and liars.  It seems like everything I love becomes a lie.  I am fearful of love, because I fear my own trust will turn on my world; only to discover, my life if a lie, and that love doesn't exist.
 
This cancer ordeal has magnified it beyond the lens of Gods, Devils or Angels.  I don't know what love, truth or hope means; or that it even exists.  I don't need a lawyer to tell me our world is full of liars, heartless fools, and that they are all "Waiting for Godot", myself included.
 
Thank you my sweet sisters!
 
Love,
Indi
Calico

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Reply with quote  #25 
G,
I did have the PET, that was a scan....needless to say it left me a little rattled after I read about following a enchondroma.
But the onc says nothing about that....soooo....nothing I can do.
I will discuss it when I get my "medication" appointment for depression.....and will point out the ovaries that they saw that I don't have....or do I
Maybe the gyn took out my gallbladder instead???

Indi,
get a copy of the MRI report and we help decipher!!!



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Fancy

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Angel
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Reply with quote  #26 
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I read about following a enchondroma.
But the onc says nothing about that....soooo....nothing I can do.


Oh, but there IS something you can do.  Ask.  And keep asking.  And if your onc refuses to answer, see my post of 10/16, above. 
                                    or
you COULD look it up on the 'net!

Enchondroma (en-kon-DRO-ma) is one type of benign (noncancerous) cartilage tumor that appears                 on the inside of the bone. These tumors usually begin and grow in childhood, then stop growing but                 remain present throughout adulthood. They are often found in patients between 10 and 20 years of                 age. Some cases become dormant or burned out.

               

These tumors are very common and often occur in the small bones of the hand and feet. In fact, they are the most common tumor of the hand. They also occur in the long bones of the upper arm and thigh.

               

In rare cases, multiple tumors can appear as part of a syndrome. These syndromes are Ollier's disease and Maffucci's syndrome. Single enchondromas can become cancerous, but this is very rare.



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the Frog's Princess
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4/1/08 Stage 4
and looking for NED
Indigoblue

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Reply with quote  #27 

Thanks Fancy;



I remember hearing about Endochondriomas as a kid.  I have always had large, strong hands, bones, and strength throughout my life; but there have been months; sometime years, when an odd weakness appeared out of nowhere.  I remember hearing that word; no tests were done, and the symptoms always improved after a while.  My family physician was a psycho; he as so many family physicians, was overworked, underpaid, had 12 kids, and his wife was a nurse who was his only employee.  (I doubt if he paid her). 
 
They lived in a beautiful mansion with stained lass windows, Stickley fruniture, heavy and dark, and crystal windows shining rainbows on the oriental rugs; old and beautiful throughout his home.  I cried when they sold the property and tore the beautiful Tudor English home down to build a mall. 
 
He retired a few years later...I still think he was pscycho...
how could a doctor not be in the days of "crappy antibiotics", no cancer help, no understanding about the world or medicine and it's complications; and all was left to the poor family doc who had so many patients; his plight was worse than the "There was an Old Mother Who Lived in a Shoe (doctor) had so many paitients didn't know what the "F" to do?;
 
He was a good doctor for all he had to deal with; like my crazy mother and her five crazy kids!
 
Love,
Indi


Calico

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Reply with quote  #28 
Indi,
the last sentence of you post is what scares me....they can become cancerous...with the luck of my family hitting the jackpot.....I feel doomed...I will try to relax a little....

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Calico

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Reply with quote  #29 
I'm getting an MRI of the lumbar spine and both hips!!! That's a start, went to a sports medicine doc and he wants to see whats going on before he treats me with something.
I try not to worry since I have pain now radiating down my back thigh (hamstring) and prolonged sitting really bothers me. That means no excuses for exercising

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nosurrender

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Reply with quote  #30 
Oh Calico... good luck with the MRI!!!
That pain going down the back of your leg sounds like sciatica.
When are you going? Gotta file  a flight plan for the Fluffman!

Love,
g


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Calico

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Reply with quote  #31 
Tomorrow,
where is Mr. Fluff going???

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nosurrender

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Reply with quote  #32 
To your MRI!

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Calico

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Reply with quote  #33 
Ohhhhhh

Thank you!!!!
I really could use a big kitty like that to mangle through, it is so relaxing! My senior feline has gotten so skinny and I am afraid he won't withstand a bear hug

I appreciate all the support very much. As usual I am holding my breath until results, am half a person with even less brain....

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nosurrender

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Reply with quote  #34 
Oh he's big alright!



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FLLoriK

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Reply with quote  #35 

and georgeous!!!!!

Calico

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Reply with quote  #36 

He is definately gorgeous and I think he knows it I am clenching my teeth as I write this as in 'I can barely hold back the mangling' lol


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