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Limner

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Reply with quote  #1 
Thought I would freshen this topic up a little -
 
Started today - at 1:00 - should the skin be itchy already??

6:21 PM - I think I just had the heebie-jeebies.  It feels fine now.  During the treatment today, the "computer went down" and I lay there while they re-booted it, which greatly boosted my confidence.

I was just reading that it takes days and weeks for the radiation to actually kill cancer cells, but the process continues for weeks and months after treatment stops.  Interesting.....      
 
Thanks for listening - - M

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coco

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Reply with quote  #2 
Hi Mary,

Maybe the itchy feeling was a touch of anxiety (only natural). I finished rads last August, but find that if I get a little too over-heated I will still get itchy. It feels like prickly heat; it's mildly uncomfortable and doesn't last too long and it's not a hot flash. Try to dress light, avoid the sun (right, I know, you're in Florida!) and stay cool.

It is unsettling when they stop treatments to do maintenance -especially if you're on the table AND it's your first time (I'm so sorry!)- but my hunch is that is fairly common. It certainly was the case at my center. Hope all goes smoothly tomorrow.

Hang in there.

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nosurrender

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Reply with quote  #3 
I felt itchy too!
It goes away. I swear we were separated at birth.
MARY- START THE BIAFINE NOW!!!!!!
The trick is to start before anything happens.

Coco- I know- it happened to me and freaked me out!


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Limner

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Reply with quote  #4 
Dude, what is with this new font menu that has a mind of its own?   Coco, it is reassuring to hear that the computer stopping is not an isolated event.

They really are a decent bunch of people there, and I am getting used to the routine.  My breast has a lingering rosy-pinkness that comes and goes from the surgery.  The surgeon said it was rubra-something.  Well, the radiation seems to have made it pinker immediately, and warm to the touch, even hours after.   I get paid tonight at midnight, and will get some biafine tomorrow.

What do you wear to work instead of a bra?  I usually wear underwires, and that is not going to work.   

Well, good night.  The font seems to be behaving in this dialog box - keeps it interesting - Love, M   


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energybunny

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Reply with quote  #5 

Hi Mary!  Just wanted to pipe in about your question about what to wear vs a bra!  I remember last summer during my rads that I go really good at wearing some cool cottom camis from Walmart.  They had them in several colors (white, black, gray) and they had enough oomph in them to hold up my one 34C breast that I had left!   I would then just pin in the soft form for the other side and go.  I did get used to wearing layers.  Seemed the most comfortable thing to do.  When I really needed the bra, I'd do it for a time, but not for more than a few hours as it irritated me.  Got used to those wife beater t=shirts as ewll, but I really needed support for the remaining boob!!  Good luck!  Also, very soft exercise bras worked pretty well for me as well.  Goodluck!  Hugs,  Lee


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Lee
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Reply with quote  #6 
Mary, we are under the misguided hands of drunken monkeys.... god knows what they will do to our poor little forum next!  I am working on finding us new digs- I promise!

You really need to get the biafine started immediately. That is the secret to preventing it from getting bad. I am tempted to see if I can get a deal with the makers of it to get samples so I can send them to you guys.

Lee you are right about cotton- that is all you should have next to your skin now Mary and the U word should be out of your vocab! Pull the underwires out of your bra if necessary- it is easy, just snip the end of the fabrib and pull.

I hope you are eating your protein..... remember to do that!


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Limner

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Reply with quote  #7 
Ya.  I am so vain.  Or maybe so visual and aesthetically critical.  I am also 5' tall, "short-waisted" as my Mom used to say - she was too.  My breasts are low on my chest.  What I am saying is the underwire gives a little shape where needed.   Maybe if I lose the weight it will be a moot point.  My sister is 2" taller than me, and the 2" is in her back - she always looked so much better than me in the same clothes.  

Treatments changed to 8 AM - good, it is not breaking up the day.  Today, the machine was down again - electrical storms here in Florida.

I will check out the cotton camis, Lee - thanks!  At work it is not advised to have one's nipples apparent, however, as the Latino men (heck, all of them - ) take it as an invitation from a desperate woman.  I have been wearing the sheild-type cups! 

Got paid - will check out the price of Biafine tonight - My breast is kind of achey inside tonight, on & off.  Love, Mary

PS, I will ask son JJ the java architect if he knows capable site managers, Gina.    


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Reply with quote  #8 
((Mary)) I wish I could get you some Biafine....

I hope you get something comfy to wear....

I hear you about the nipples, I used to be a chef.

But I miss them now!!!!

Love to you
g


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Limner

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Reply with quote  #9 
Gina, my bra feels so nice without the underwires in it!  It was just fighting with my bulges.  I love you, but I am sick of writing - I have been writing all day at work,  proposals, casting bread on the water.  All is well.  Where is Indie?  Fondest to my friend - Mary

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Limner

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Reply with quote  #10 
Almost two weeks now of radiation.  Breast has been pink and warm from the beginning,  Monday the Dr. said "Lovely, just fine" - gave me a coupon for Aquafor, in case.  She advocates aloe in any form, pure gel from the leaf whirred in the blender and stored in the fridge, preferably.  Told me she did not care if I used Biafine, but she saw no benefit to it.

Now I have a few itchy red little bumps under the breast.  I am continuing to wear a bra to work, minus the underwires.  Drinking aloe, putting Weleda baby product calendula in almond oil on the breast.  I switched from the French Boiron calendula lotion, becuase the almond oil stuff has healed a few other sore spots on me.  I wondered if the lotion components caused the bumps.  OK with the Dr. - she said , "Oh, that is an old remedy -"   After reading old posts, it seems this little rash is common.

I wonder if arrowroot powder is as effective as corn starch?  I happen to have a new bag of it.

My valet greeted me with 'Good Morning Miss Mary' today.  

No work tomorrow - we are on forced 4-day weeks, no pay on Friday.  That is going to hurt. 

Love to all who labor and carry on - Mary



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StacyL

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Reply with quote  #11 
Hi Mary, Lee, Coco, Gina and whoever else Ive missed in here_

I start rads. June 2nd, so this will be my new most posted forum.
Just letting you all know. Sounds like it hasn't been too bad for you, yet
Mary. I hope it all goes well, I sure hope the machine doesn't do any funny stuff on me.
I will be the first person at The University of Iowa to get rads for breast cancer on their stomach.
Leave it to me.
My Rad Onc wasn't happy w/ the first alignment, worried too much about skimming the heart.
So, we realigned using the MRI and CT and was told I'd be front down w/ left breast hanging through a hole in the table.
ANYTHING TO KEEP THE RADS AWAY FROM THE HEART.

I'll be back soon. With tons of questions, I'm sure and hopefully be able to offer some support to the rest of you going through this.

((((((((((((((HUGS TO ALL)))))))))))))))

Stacy
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Reply with quote  #12 
Hi All,

I haven't posted lately but I've been keeping up with everyone. I had the last rad treatment today (Hooray) and will have 5 boost starting on Tuesday. My skin has turned a lovely charbroiled color but I have used Biafine like it's going out of style. Everyday sometimes several times a day. I have no cracks, bumps, or peeling. It does get itchy from time to time but I reach for the Biafine and it soothes the skin. I'm considering using aloe vera also but not until after the very last boost. I just want to say the 6 1/2 weeks have gone by very fast and so far no machine malfunctions. Best of luck to you Stacy and for everyone else that is in process use that Biafine!!!!

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NATALIE
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Reply with quote  #13 
Natalie! You are doing great!!! I am so happy to hear of your success- it is almost over and then you are FREE!!

Mary, did you read Natalie's post? I am just saying.... seems like the Biafine helps! As far as arrowroot- I have no idea. I know that it is a substitute in cooking for cornstarch, but for rads? I don't think so. I am glad you and your valet saw each other again!!!

Stacy this is new- you have to report about this type of rads- I am VERY INTERESTED in it!!!


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StacyL

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Reply with quote  #14 
Natalie -
great for you. I can't wait to get it over with.
I'll be on here a lot looking for advice.
Biafine??  otc lotion or what?
I'll ask my rad onc.

Gina - do you have any concerns about this type of rads.
         face down? tell me, I want to know what you think.

thanks,
Stacy
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Reply with quote  #15 
Stacy, I think it is a brilliant idea! I wish I had that kind of rads!!!!

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Limner

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Reply with quote  #16 
Very Interesting, Stacey - Are you having a good Memorial Day weekend with all those boys of yours?  I had an x-ray - or was it a sonigram, or an ultrasound?  - i n the same position, face down, with the breast suspended through a hole in the table.  I will ask my Russian radiologist MD about this when I see her Tuesday. 
 
Meanwhile the heat has set in, and I just read somewhere that it is not a good  idea to sweat a lot while doing the radiation - and I was so proud of myself for staying on the treadmill for 30 minutes and sweating a lot! 
 
Gina, precious, I love you, and I know you agonize that I am not using the biafine.   Humor me and let this be an experiment.  So far, so good.  The biafine is loaded with petro chemicals, and I have had a lifetime of them and am highly sensitive to them.  It may be what has caused the lymphoma.  I am staying as far away from added chemicals as I can.  Skin is very conductive of what ever you put on it, and the lymph system, liver, etc. will have to deal with every bit of it.  Nail polish remover (acetone), lotions, soap,  hair products, etc - they can be toxic or nourishing.  I try to do what I can to keep it simple and as close to mother nature as possible.  It was not always that way, though I knew better.   I amay be stuck with the grey hair, too!  Maybe some henna.....
 
  Mary

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mrsb

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Reply with quote  #17 
HI everyone i am a natural blonde and only burnt up the last week.I used to come home after each rads session strip to the waist and lie on the bed with a fan blowing on the girls..I did this religously and i am sure it helped.I also wore a soft bra thought out. good luck don't forget to take lots of naps when you feel fatiqued..Shelagh..
kmobley

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Reply with quote  #18 
Just reading with interest.

The MRI I had shortly after being diagnosed was done with me face down on a table with both girls hanging through holes.

I want to hear about Stacy's new procedure too.  It sure makes sense to me to localize as much radiation as possible.  That is what they are doing -- right?

Mary, you are so entertaining. 

When I was doing the Mammosite radiation, the machine quit one day and held up treatments.  I always worried that if the seeds were in me and the machine would quit, how would they retract them.  Surely there is a plan in place.  Surely???

Kay
StacyL

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Reply with quote  #19 
well, I hate to disappoint everyone, including me, but.....
I got a call from Rad Onc. today and she sees no benefit to doing the rads face down. Now, I wonder about my heart. She said it would be okay, I will find out more on Monday. That's the simulation: at 11 a.m
So, I will post soon after. I do believe I have a say in the treatment and if there is that much of a concern about skimming my heart on my back then... I am concerned. I don't know. I have to trust her, but also have learned to go with my gut on these things...the hard way sometimes. I will be reading all weekend on the risks of rad to breast and any possible affect on the heart. My tumors were on the lower part of the breast, right above the heart and lungs...hmmmm.
Lots of reading ahead for me.
Kay, all of my MRI's have been face down with "the girls" hanging through holes. I will get rads to the whole breast for the first 25-30 treatments (not sure on the number) and the last 5, or so, will be focusing on the surgical area, where the tumors were. The Boosts.
Mary, hope all goes well with you, I will be right there with you in a few days. My rads starts Tue. Hoping for the best for the side effects and skin irritation. My chemo wasn't all that bad (the SE, i mean). I'm just hoping for loss of appetite...hee hee

Take care all, until next time -

Love,
Stacy
Limner

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Reply with quote  #20 
Well, glad to oblige.  I did ask Dr. Grosman about the table with "breast holes", and she said it was a newer thing, Holy Cross does not have one, but she did not see a benefit to it over the usual method.  At least you are on the cutting edge there in Iowa, Stace.  I work with a man from Iowa - he was telling me yesterday how cold it is and how you can't even grow dogwood trees where he is from. 

They want to stay away from the vital organs, while at the same time do a do a broad "field" to cover any stray bad cells.  This would depend on type and size of tumor, etc.  But my "field" goes from mid-chest, over the breast, and around the side to under the right arm; from about an inch under the collar bone, over the breast to about an inch under the breast. - if you can picture that, it is half my chest.

3 weeks down, 3 more + to go.  Will I have a date with the valet before this is over?  Is there a professional conflict of interest there?  Should I even want a date with him?  He is very simpatico, but I wager even more younger than me than I thought.  It is just nice to have someone opening and closing doors for me, even if he is paid to do it.

Turns out I did have some henna lying around from when I had hair, and I did it up on the little bit that has come in. It did make my hair shiney; otherwise little effect on the color (gray) - it was golden henna.  What a mess it makes! 

Yes, Kay- these professionals do seem to have a plan for the unforseen as far as their equipment is concerned.  Generator? 

I just realized that I may never see my valet again if I stick to the new 7:15 AM appointment plan, as he comes on at 8:00AM.  Well, we will see if he misses me then.

good night and sweet dreams - Mary


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Dear friend, theory is all grey, and the golden tree of life is green. - Goethe
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