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crabbycakes

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explorer
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Reply with quote  #1 
I just wanted to let you know that, after dealing with BC for a long time, as a lot of us have been,---Please use your own judgment and not your doctors alone!
 I recently just completed 8 weeks of Abraxane/Avastin and was checking my follow-up visit to (one of the top hospitals in the country, I might add) and discovered I was only scheduled for blood work. I called the nurse and she said, well that's all he said, but I will ask him again. I get the same answer and a bit grouchy I might add. Sooo I had hubby called cause I thought he would be more diplomatic,and he was. Then I called and said this doesn't make sense so she adds, "oh you haven't had an ultra sound in awhile" HUH? Soo being totally fed up I called Pt. relations and finally got a call to say I could finally get my PET scan.
I really let the doctor know that I need to understand what my plan is now and in the near future. He agreed with me that his nurse screwed up and that it was all right there in my record, as he showed me.
I also cancelled the Ultra Sound on my own, but was told I couldn't unless the nurse did. So I left a message for her and just said I will be there for my PET, but not this test.
I hope you never experience this but don't ever feel bad about questioning your treatment plan.
Today isn't your grandma's doctor!

DoreenF

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Reply with quote  #2 
crabbycakes - good for you for being persistent and advocating for your own health. It's sad that we have to do this ... but on the other hand ... it's our health and diligence matters!

Also kind of sad that the doctor is pointing out that it's in your chart and the nurse made a mistake ... I'd be asking what are you going to do to make sure that mistake doesn't happen again !  (that's what we do in our work - try to prevent mistakes from happening again in the future  -  learn from things ... and continually try to improve.)
Doreen


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crabbycakes

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Reply with quote  #3 
crabbycakes - good for you for being persistent and advocating for your own health. It's sad that we have to do this ... but on the other hand ... it's our health and diligence matters!

Also kind of sad that the doctor is pointing out that it's in your chart and the nurse made a mistake ... I'd be asking what are you going to do to make sure that mistake doesn't happen again !  (that's what we do in our work - try to prevent mistakes from happening again in the future  -  learn from things ... and continually try to improve.)
Doreen

Doreen, you are right, they got off very easy.  Would you believe they sent in another nurse to go over my case before I saw the Dr.?  Then the Dr.'s real nurse ran in dumped my orders and was gone before I could even look up to see her.
Pam

 

nosurrender

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Reply with quote  #4 
Hey girl, you rock!
I love your attitude and you are so right - this is NOT our grandma's cancer!
Being our own advocates is how we survive.

WTG!!
By the way- I LOVE your avatar!

big hugs,
g


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snhb

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Reply with quote  #5 
"Would you believe they sent in another nurse to go over my case before I saw the Dr.?  Then the Dr.'s real nurse ran in dumped my orders and was gone before I could even look up to see her." 

I would believe this, and good for you for speaking up. 

I've also learned to speak up for myself with regard to any side effects that I get from various medications. Even if the side effect that I am experiencing is listed as like 2% of the people who took it complained of headaches.  I tell my doctor that I must be in that 2%.  Thank goodness, he is the type of doctor who listens to me, but I know many women who are told to just keep taking meds and learn to deal with the side effects. 
As your post stated, "To thine own self be true", and that is a lesson we must take to heart. 
crabbycakes

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Reply with quote  #6 

Quote:
Originally Posted by nosurrender
Hey girl, you rock!
I love your attitude and you are so right - this is NOT our grandma's cancer!
Being our own advocates is how we survive.

WTG!!
By the way- I LOVE your avatar!

big hugs,
g

Thanks so much! I am still learning my way around the boards. It has been a while since I have been on forums. 
When I learned that Constantine was going to have a forum.  I just had to join. He has long been a dear friend and advisor.

You all are just great.  I hope to participate more in the future.

Hugs Back,
crabbycakes

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Reply with quote  #7 

[I would believe this, and good for you for speaking up. 

I've also learned to speak up for myself with regard to any side effects that I get from various medications. Even if the side effect that I am experiencing is listed as like 2% of the people who took it complained of headaches.  I tell my doctor that I must be in that 2%.  Thank goodness, he is the type of doctor who listens to me, but I know many women who are told to just keep taking meds and learn to deal with the side effects. 
As your post stated, "To thine own self be true", and that is a lesson we must take to heart. 

Absolutely! I know sometimes, myself, I have said, AWW this isn't really happening. It must just be in your head. Unless we took stupid pills with the meds, LOL we feel, what we Feell!
I am so glad that your doctor sees your point of view.

Best to you,
Crabby

nosurrender

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Reply with quote  #8 
Crabby, you know what I have found? That docs just don't listen or they don't give a dam.
I have many antibiotic allergies and they ignore it.
One I am very allergic to- have been since I was a kid- is E-mycin. I can't tell you how many docs prescribe it or other mycin drugs even after I tell them I can't take them.
We really do have to our ownselves be true! You are right!



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Indigoblue

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Reply with quote  #9 
Crabby.
I've long wondered what "recreational drugs" many of the physicians are taking.  A nurse friend who practiced in my Grandmother/Mother's day, drank whisky and smoked cigarettes during the operations!!!  It was permitted in those days.  Things are better anyway, at least (we hope) they wash their hands between each patient visit.  I have seen some pretty filthy clinics, though, and cleanliness is next to G-dliness!  There is still much need for improvement, in every way.  I open my big mouth all of the time, and then they don't like me anymore...careful...tiptoe, speak intelligently, and it's still a crapshoot!

I love Constantine, too.  I don't know how I would have survived without Gina, the members on this and a couple other boards I visit occasionally.  This is home, and I love each and every person here!  Welcome to No Surrender, it's good to read your crabby post!  I LOVE it!!!

love,
Indi
StacyL

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Reply with quote  #10 

After my allergic reaction to Taxol. And all of the red flags I ignored. I will speak up if I have a head ache, runny nose, any type of itch, etc. I use to feel like a hypochondriac. Now, I know I'm an advocate for my body, the only one I have. I know myself better than anybody, we all need to listen to ourselves.

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