Sign up Calendar Latest Topics
 
 
 


Reply
  Author   Comment  
SoCalLisa

Avatar / Picture

Goddess Forever
Registered:
Posts: 2,134
Reply with quote  #1 
Just wondered if anyone saw this today

newsday.com/news/nationworld/wire/sns-ap-breast-cancer-chemo,0,2857625.story

__________________
"One's mind, once stretched by a new idea, never regains its original dimensions."
-Oliver Wendell Holmes
jenni__ca

Goddess Forever
Registered:
Posts: 693
Reply with quote  #2 
i caught it today too    
oh well i could only go with what they knew at the time .....
be curious to see how this plays out ...

__________________
5 years !!!!!!! and counting
nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #3 
What about Taxotere and Abraxane?
Studies have shown that Abraxane does have cancer killing abilities in cancers other than Her2+ cancer. Taxol is such an archaic drug when you think about how it is dissolved in detergent and the way you have to get it infused. With Abraxane, it is carried straight to the cancer in a little bubble of albumin.

I think women will be getting Abraxane in the future and Taxol will become a thing of the past- and Abraxane IS Taxol, only it is PURE taxol, not dissolved.

Thanks for this post Lisa!


__________________


WE WILL PREVAIL





Indigoblue

Avatar / Picture

Queen Blue Sky & Golden Light
Registered:
Posts: 1,681
Reply with quote  #4 

Why do all the toxic substances given as chemo"therapy" have so many frickin' names?

I hope nobody read my post...all wrong.  If you did, please delete it from your memory banks...I was looking up Taxol and Steroid Side Effects, as I was allergic to the Taxol and had 12 wkly treatments, I had to triple dose on the Steroids (turned bright red, streaky, and would pass out). 

All the Oncology Clinic gave us was a little cardboard information sheet with very little information.  Sometimes I think they put a "memory loss" additive in the mix so we just "forget about it". lol.

Anyway, sorry I posted the wrong information; haven't slept in a few days because the pain from Costochondritas (Costo Chocolate itis?), Taxol Neuropathy, Osteoarthritis, Myalgia, whatever it is...

Skipped the family doctor appt. yesterday because shoulders, arms, hands, neck, dizzy stuff; was really afraid to drive the car.  
I have an appointment with the Onc at the end of November, forgot.  Might have to go see him sooner since I am feeling so wretched. Don't like going, prefer to "forget about it".

So sorry (feel like such a dork!)

Indi

nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #5 
Indi Indi Indi!!!
I wish you were feeling better!
You know they only give Taxol because it is the CHEAPEST of all the taxanes.
ABRAXANE is the SUPERIOR taxane to all of them. It is taxol in its purest form. It isn't dissolved in a harsh detergent- it is wrapped in albumin and sent to your tumor that way, leaving the rest of your body pretty much ok.
My onc told me that he feels Abraxane should be FIRST LINE treatment but the insurance companies will never go for it. Even if it is the superior med. he also said that many of the lingerining s/e's from Taxol are not from the Taxol itself but from the friggin Cremephor it is dissolved in!

I was lucky to be allergic to the Benadryl- because I was they couldn't give me Taxol. They HAD to agree to pay for the Abraxane.  My onc said that sometimes insurance companies make you "fail" Taxol TWICE before you get the Abraxane.

I have an Rx for you. Works for me everytime

One Pint of Ben and Jerry's Phish Food- STAT
Eaten from the container in one sitting in front of a Little Rascals Marathon on TV.

Love,
g


__________________


WE WILL PREVAIL





Indigoblue

Avatar / Picture

Queen Blue Sky & Golden Light
Registered:
Posts: 1,681
Reply with quote  #6 

Thanks Gina,
 
They should re-spell Abraxane, "Abrax-Brain", for smart patients only.  I remember begging for it before agreeing to the Taxol.  I was given some high-fa-looting dialog's song/dance routine as to why Abraxane would be ineffective and might be difficult to tolerate.   After the treatments, I found a price listing for chemotherapy drugs; At that time, I believe, there was a price difference of about $l0,000 or something. 
 
I read an article, which I copied and took to the oncologist's office, about how doctors will often give the least expensive drug treatment in exchange for kick-backs and deals made with pharmaceutical and insurance companies.  My Oncologist seemed hurt and offended, and at the time I felt kind of bad for implying I was not given quality treatments. 
 
The "cumulative" side effects started to affect my body, and it's been a little over a year since I finished the last 12 of 12 weekly treatments, August 30, 06.  Time consuming, it's confusing when one trys to figure out the treatment schedule. 

I've been upset about the Taxol, Abraxane, Triple Negative Treatments since the beginning of this entire experience. If you're not aware, they don't tell you anything unless you ask, and even then, patients are given the ring-around-the-rosey bull, fall-into-the-prickers speech. "Trust the medical profession, fix your car by a trained mechanic", medical school jargon to make patients even more dumbfounded...
 
How would a patient know if they had an allergy to Benadryl?  Never took it in pill form, but they did put it into the mix of Decadron and anti-nausea meds, mixed in some Aranesp, and meanwhile tripled the steroid saying I was allergic to the Taxol.  Now I read Taxol should be stopped if a patient shows any allergic reaction.
 
How does one discuss this with the Oncologist/or Surgeon.  They refused the MRI, as well, which I asked for last Spring.  The summer sped by, I had another Digital Mammogram in August; still, denied an MRI.  They said "maybe" they will "let" me have one in November. 
 
I wish I had a watermelon... or an advocate, or a husband who would stand up for me.   I lack the moxy, or what ever it takes to convince... what's the word...balls?  Can't think of the word; in any case, I've been gullible, and apparantly not worth the price of Abraxane and an MRI.
I scream, you scream, we all scream for ice cream!

Love you Gina, and everyone who posts here!  Let me know how you manage the wiley ways of the medical world with the magic to make them move mountains!

Indi

 


Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.