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Reply with quote  #1 
I was recently diagnosed with LCIS. I have rec'd two opinions. One was to do nothing and the other was to have both breasts removed.

Does anyone know how to proceed?

Is this the correct place to ask this?


Posts: 1,940
Reply with quote  #2 
Hi Erika,
Welcome to No Surrender.
I too have been dx'd with LCIS or Lobular Neoplasia . and like you received
very frustrating and conflicting advise from surgeons
and doctors as to what my next step should be.
I came to the conclusion for me I wanted a bilateral
mastectomy, but because of another medical condition
I was unable to. The surgeon felt it was too risky the
surgery is very long with reconstruction. The only sure
thing I have found out about LCIS is there is conflicting
opinions in the medical community.
I understand your frustration I truly do.
These are the questions you may want to consider when trying to decide what is best for you.
1. What is your family history? Do you have first degree
family history? Have you done a Genetic  Study?
2. Have you had more than one surgery or biopsy that
the path showed high risk cell changes.
3. How comfortable are with  doing careful surveillance. Our risk does not decrease over the years .
4. How is your general health .
5. Does taking a chemo preventive med such as Tamoxifen
 or Raloxifen if you are post menopausal help calm your fears .
No one can tell you what is best for you.
Hope this helps a little

courage does not always roar. sometimes courage is the quiet voice at the end of the day
saying.. i will try again tomorrow.
~maryanne radmacher
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