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FLLoriK

Angel
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Reply with quote  #1 
I was asked to be the main speaker at a bc awareness dinner. I was surprised bec. just because I have bc doesn't make me an authority on the subject. Has anyone else come across this?
also, I'm not that comfortable talking about my ordeal. Maybe I can talk about family involvement or some abstract topic. Any ideas?
nosurrender

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Reply with quote  #2 
Congratulations!!!
I think telling your story from the heart is the most empowering thing there is.
Everyone sees the TV side of cancer, not the real deal.
Tell them what it is really like. People don't  know what we go through.
I had that happen this week with my friend. She had no idea what this "world" is all about.
If I was ever asked to speak I would start by saying something like, "I know this is a BC awareness event, and I am meant to make you all more aware of breast cancer, but I know there are women out there who are AWARE. So I am going to tell you my story, the real, unedited one, from the day my doc told me I had cancer and take you through how I got here today. The survivors in the audience will be able to relate and I hope you will be able to see what it is really like to have breast cancer today" and then start talkin!

Good luck!!!!
Love
g


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jenni__ca

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Reply with quote  #3 

i agree gina ... also that there are more aspects to bc than the surgery/chemo/rads .... side effects/family impact/financial/self image issues .... some of the reasons this disease is so overwhelming are these other issues ... another reason is that because there is no "test" for bc we have it hanging over our heads constantly wondering if we are being vigilant or becoming a hypochondriac ....


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Bren

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Reply with quote  #4 
FL Lori,

If you're not comfortable talking about your own experience, definitely don't do that.  It's personal.  I was asked to do a newspaper article, initially said yes, and then changed my mind.  Too personal and too soon after dx and tx.  Also, I found out after the fact that the focus was not on my bc journey, but on their free healthcare system. I am new to the area and decided I didn't want my personal and financial situation on the front page of a small community newspaper where I didn't know anyone, but they would most certainly know me after the interview was printed.

Do you know who will be comprising your audience?  The one thing I didn't know about bc before being diagnosed was that there were so many different kinds.  I had no idea that there were so many different types, stages,etc, and that the treatment varied so much for each.  Nor did I know that women died from it.  And, I never thought it would happen to me.

Also, that bc is not a "girly" type disease.  The pink ribbon, while easy to identify, is very deceiving.  It's a disease that makes warriors out of women.  That 1 woman will die every 15 minutes in the U.S. from bc and every 2 minutes another is diagnosed with bc, including DCIS. 

That lumpectomy, radiation, mastectomy, reconstruction, chemo is not the same as a tummy tuck and boob job.

That the effects of treatment can last for months and years, yet we continue to care for our children, husbands, homes and work.  The poor and uninsured aren't being adequately treated.  They are losing their homes and going bankrupt to pay for their treatment. 

These are just a few of my thoughts.  A few of the things I had absolutely no knowledge of before I was diagnosed.

If you decide to do this, I know you'll do it with grace, dignity and the strength that comes from being a bc warrior.

Let us know if there's anything we can do to help you.

Love,
Bren
FLLoriK

Angel
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Reply with quote  #5 

thank you! You have given me the strength to speak out. I do know the audience. They have supported me when I was first diagnosed.But as the months turn to years, that support seems to die out. I think it's a really go idea to talk about all the different types of bc there are and how many different types of tx. there are. Most of all, that it does come back and we do live with it. Does anyone know the stats on how many bc women have mets?That would be interesting to know. Lately, I have heard about more mets than initial diagnosis. it might be that I'm just more in tune to it. I'm up for any ther suggestions.

deese

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Reply with quote  #6 
Lori, How did it go? Can't wait to hear! I just love getting the info out there because, like you, I was absolutely clueless when I was told I had BC! I'll tell anyone who will listen!!!

Kudos girl!

Deese
nosurrender

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Reply with quote  #7 
Lori, I heard a girl speak the other night. She had mets. She said that although she loves to hear about the stories of early diagnosis, she wishes more metsters would talk about LIVING with the disease.
I think you will be helping a lot of people.

I am giving a speech next week about triple neg cancer and my story.
Guess what? I haven't given a speech since the seventh grade!
I am going to wing it!

Love,
g


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SoCalLisa

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Reply with quote  #8 
Gina..you will be wonderful...

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deese

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Reply with quote  #9 
 
Holy smokes! I'm so proud of both of you!!! Hey, if you just get up and say "here I am", (you know that will touch someone, it just will!), well then, you are still my hero and now someone else's hero!
 
Lot's of love and support,
Deese 
FLLoriK

Angel
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Reply with quote  #10 
The speech is this Saturday and I decided not to tell my story. I decided to focus on living with mets, living for tomorrow and tomorrows tomorrows etc. Of course I will talk about our sisters that have not be able to finish living their dreams.
but mostly, I want to talk about attitude. That a positive attitude does not keep cancer away. It just helps us live with it. 
BYW- I haven't written the speak yet either!


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Reply with quote  #11 
Lori,

You're going to do great!  I'm excited for you.  Looking forward to seeing your speech posted if you will!


Charlene
deese

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Reply with quote  #12 
I love it Lori! Sounds like you have started writing it, just in your head right now! Love it already!!!
 
Go for it,
Deese


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Reply with quote  #13 
Cant wait to hear how it goes Lori.  I know you will do great.

You will too Gina.  I like the idea of winging it.  Heck we know this stuff first hand dont we?

Amy
FLLoriK

Angel
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Reply with quote  #14 
Hi Everyone!
It was a success! Think you sweat from hot flashes? I was sweating worse!!! I wrote my speech in 26 font just so I could see it! 
When I spoke about BC in general (different types and lots of tx. out there), I had to read it but then my confidence kicked in. I spoke about the support I receive late at night here and on bco. I spoke about the wonderful Florida ladies I met in Tampa last month at the conference and I spoke about the pink ribbon as a symbol of courage. I hope to think that the message was uplifting.
The dinner was great! Since the place we had the dinner was under renovation, there was not kitchen facilities. So like breast cancer, we made do with what we had. We made 6 different salads and two different soups at my house. We had wine (YES!) and cheese first, a friend of my daughter played violin. He was actually practicing for his music slass. He is majoring in music at Florida State Univ. We had a women from ACS speak about Realy for Life and then it was me. The night ended with a chocolate fountain and lots of desserts. It was amazing how many people came up to me and said thank you for speaking. Some were survivors and needed to hear me talk. (?) I didn't get that.
But mostly it was good for me. I needed to speak out. It is the first time I spoke publically about bc and now I can say proudly," I am Lori, wife, mother, soon- to-be teacher and I have bc" NOT "I have BC and my name is Lori, wife, mother, so-to be-teacher."
FLLoriK

Angel
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Reply with quote  #15 

Gina- How's your speech going? Who are your audience?

nosurrender

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Reply with quote  #16 
Lori that is GREAT! I am so happy your speech went so well!!

Mine didn't work out. The timing wasn't right. Hoping to reschedule tho.

I know I would be sweating too!!!

Love,
g


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deese

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Reply with quote  #17 

A STAR IS BORN!!!

I just can't help but be proud of you! Sure hon, there are survivors but going through the motions doesn't mean that you had the support so needed. I have a second cousin who doesn't even know what kind of BC she had nor what meds she took. I can't imagine how lonely and lost she must have felt.

I'M SO PROUD OF YOU!!!

Deese
FLLoriK

Angel
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Reply with quote  #18 
thank you....I finally got a handle on this horrible, sneaky, pain in the butt disease! I still hate it and I know it sucks but I know I am in control now, not the bc. 


deese

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Reply with quote  #19 
That's my girl!!!

Deese
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