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Cherlilly

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Reply with quote  #1 
It has been interesting to see the different things oncologists suggest as far as what to put on our skin.

My oncologist and group all ask that we start putting on this before we start radiation (2 days before) and then twice a day, but not to put it on less than 4 hrs. before a treatment or skip it and put it on before nighttime.

It is Lansinoh.....It is sold in the breastfeeding supplies at Wal-Mart, etc.  It is 100% pure lanolin and has no added waters, etc.  It is the purest form of lanolin. 

So far it has worked and Friday will be the end of my 2nd week.  However, I do have 5 more weeks to go so I know alot can change by then!

My oncologist also says no deodorant on the lumpectomy underarm.  I can put it obviously on the other side.  I am just glad I am getting radiation through the winter and no summer!!!!! YIKES!  That would stink!  HA!

A big group hug to us going through radiation right now. 

Anyone else have any good skin tips to share that have been through radiation or anything to share at all to help us?

Cheryl

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Angel
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Reply with quote  #2 
My rads onc, a WONderful man. walked around with tubes of cold-extracted Aloe-vera gel. They used in in Hiroshima and Nagasaki after they dropped The Bomb. That is still the best specific for radiation burns, AFIK. I had no burning, very little orange peel, and now, 12 years later, the radiated skin appears normal. I would be hesitant to put something like lanolin on a burn. It needs air to heal.

Cool water helps.  I had rads in the summer, with no air conditioning--I was miserable.  I wore a very old cotton  undershirt of my husbands and soaked the radiation side with cool water.  Helped a LOT.




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12/05 ILC 1C NX M0

4/1/08 Stage 4
and looking for NED
Cherlilly

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Reply with quote  #3 
Where do you get EXTRACTED Aloe Vera Gel?  I want to get some.  I do not have any signs of burning yet but want to get some.
How many times a day did you apply it?
Did you put it on before your treatments or make sure you were dry there before you went to treatments? 
Thanks alot for the info!

Cheryl

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DX 8-14-07
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Stage 1c
Grade 3- Poorly Differentiated
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Angel
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Reply with quote  #4 
Ask your rads onc--he ought to have it. If he doesn't, shame on him. You won't burn for a while. I went there dry, and put it on as I dressed. It's a little messy--be warned.  But I went back to my t-shirt as soon as I got home, so it didn't matter.

You can get it at any drug store: Cold Extracted Aloevera Gel.  It ain't cheap, but it's awesome. Be sure you get the kind with no additives.  Good for sunburns and chafe; lasts a LONG time. I always made sure to squeeze the air out of the tube so it wouldn't dry out.


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4/1/08 Stage 4
and looking for NED
Indigoblue

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Reply with quote  #5 
Thank you, FANCY!
 
I used "Lilly of the Desert" pure ALOE 99% gel, which can be purchased at whole food stores, health food and medicine stores.  I discover they also sell the same product as a drink; and has exactly the same ingredients, much less expensive.  I bought it in gallon "jugs", lol...I think it was $9.00. 
 
Don't drink it...or if you do, ask your Oncologist about it.
 
The drink form didn't have pectin, or cornstarch, which you can add to it to make it "stay".  Cornstarch is good to use under your arms as a "natural" deoderant. 
 
Nothing before Radiation Treatment, however! 
 
I kept the Aloe Vera gel (and later, the juice) in the refridgerator.  As soon as I got home, I took a cool shower, applied the aloe, all over...arms, armpit, ribs, entire chest, neck, collarbone.  After it dried, I applied the Aquafor goo over it at bedtime...I rarely sleep, but had a lot of fatigue.
 
Thanks for the information about it being used in Japan on radiation victims.  I never heard that story.  I've used Aloe since I was a child, mother always had the plants growing in the kitchen window.

Always, always, always kept it in the studio  when I was teaching glassblowing, sculpture, and clay and ceramics.  
It never failed... someone would always get a serious burn somewhere, somehow. I saw some serious burns; and the method was running the burn under cool, not cold, water for about 20 minutes, cover with ALOE gel, apply sterile bandage loosely around the burn.
 
(personally, I would take asprin or an anti-inflammatory, but it's wise to let the docs give the drugs; even an asprin or tylenol can cause liver damage and anti blot clotting complications) 
 
After wrapping the burn wound, the patient would be driven to the nearest hospital or clinic. It was always amazing at how well this worked, and kept the burns from becoming worse and/or infected. Students would grab or touch glowing red hot steel, or glass; or get burned when opening doors to the kilns/ ovens.  We also kept it nearby when  bronze casting, forging metals, or anything where "hot" is involved.
 
It was great for sunburns and great to put into the cooler when going to the beach.  I don't remember when or where I discovered one could purchase "gel, pure with no additives". 
It's great for so many things; poison ivy, athletes foot, even HOT Flashes...
 
Can't say enough good things about Cornstarch...a zillion uses and great on the skin. 
 
I used Neutragena liquid soap...expensive, but less so at discount stores.  I liked it better than anything; gentle, oderless, and non-drying.  I tried baby wash, and it was good too. 
 
Wore cotton (bell ringers, or workgloves) gloves, because my hands would sweat, as well as many others.  The bar (not every machine has the handlebar) was always wet..grossed me out.  It's important to keep your hands clean, and use antibacterial lotion/gel during Rads.  You never know what you might pick-up at a hospital...germs, bacteria, viral, staph infections, skin infections...
 
It never hurts to be cautious and careful, especially when one's immune system is compromised.
 
 
Cherlilly, I never heard of using Lanolin products, either!  In fact, I was advised  NOT to use Lanolin; some people are allergic to it, and it has other chemicals to stabilize it.  I was also confused about the Aquafor because it contains PETROLEUM...so I stopped using it, too.
 
Only used the Aloe and Cornstarch...that was over a year ago, Halloween of 06. 
 
I had no burns, blisters, or even darkening of the skin.  It was a little red before I stopped using the aquaphor...
 
Hmmmmmm.
 
Good luck, and why, why, why!!!!! do Radiology Oncologists, Chemo Oncologists, Surgeons, and physicians seem NOT to know about the largest organ on our bodies?  SKIN!
 
I believe a Dermatology Oncologist should be involved and demanded as part of the "team".   I had a candidas yeast infection which was a horrible rash after chemotherapy...
Nobody knew what it was; Family doc knew immediately, gave me Diflucan and baby rash prescription powder...immediately disappeared. 
 
The Cancer Breast Nurse told me it is very common for women being treated for breast cancer to aquire a skin "YEAST" infection; it's the same as athlete's foot, baby diaper rash, vag infection, etc. 
 
So much to absorb; too much to remember when one is going through all of this.  I could not and would not get radiation treatment until I was rid of the rash...fortunately, my family doctor specials in skin disorders.  
 
Hope all goes well...cotton boys T-shirts...the best!
 
(((gentle hugs)))
 
love,
 
Indi


Karen1956

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Reply with quote  #6 

My rad onc would not let me use deod during rads but said to use cornstarch.  I continued to use it for months after rads.  Funny thing is, I rarely use deod anymore - don't seem to need it in this hormone deprived body (think of prepuberty girls).  My rad onc would not let me use any creams during rads, but when I started to burn and scratch the nurse gave me some creme to use - of course without checking out the tube in the bathroom, I can't remember the name right now.  Nurse also gave me some compresses to wear with some sort of fishnet t-shirt to hold it on.  She also suggested Domboro to use as a compress.  My skin is still darker on the rad side, but overall it is okay now, but relatively speaking, from what I've read here, my skin did okay during rads.  Karen

Linda7411

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Reply with quote  #7 
Hi,
I'm new to this site.  SoCalLisa told me about it when I met her a couple of weeks ago for lunch while I was visiting San Diego.

I was advised in the Chat Room when I was going through radiation to use Crystals deodorant that you find at Walgreens.  It does not have aluminum.  Ask your rad onc about it.  I didn't use it the day of rads.

They had me use radiagel and aquaphor at first which helped prevent burns.  I'd get pink and then gradually had a brownish haze over the area.  Then I began getting an actual burn at the end of rads, especially when I got dose dense rads the last 2 weeks.  They gave me Biafine gel it it worked great.  Most rads centers have these gels in small tubes to give you.  Ask for them and get them to give them to you.  You are paying a lot for the treatments and you need to protect yourself.

I finished my rads last August and I don't have any signs on the skin left except that I now have a lot more moles.  I still have scars from the surgery but not the radiation.

I wish you well with your treatments.  They go fast.  Keep moving, walk, whatever.  It will help with the fatigue.  Continue to drink lots of water.  They will let you take antioxidants during rads; ask.  They help you heal.
Love and prayers to all,
Linda

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Linda
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Reply with quote  #8 
hi Linda!
I don't think we have met!
I love that biafine. It has helped me through this session of rads so much.
Now I have had to add cortisone cream because I get itching too.
Bev and Cheryl- how are you hanging in there?!


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energybunny

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Reply with quote  #9 

Hi there,  Where do you get biafine cream?  I will start rad on 6/12/08 and the nurse already gave me a script for xclair cream.  She had not heard of biafine and didn't know where to get it.   Thanks for any information. I had a mastectomy so I will have  large area irradiated.  Thank you!


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Lee
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Reply with quote  #10 
Hi,
Biafine is a prescription. So your doc or his nurse would have to give it to you.

I used it from the beginning right through to the end of rads and did really well with it. The first time I had BC I burned and I didn't use it. But the radiation machines have improved a lot since then too.

I am not familiar with X-Clair. Maybe it works just as well!

G


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jadesloge

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Reply with quote  #11 
You can try this: http://www.prairiewomanproducts.com/healing_comfort.html

I haven't tried it yet because my radiation doesn't begin for a few more weeks, but I know people who have used it and it worked well for them. Even on sunburns. One friend of mine whose dad had cancer of the mouth and jaw said that the radiation oncologists were surprised how smooth his skin was.

Julie


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Reply with quote  #12 
Hi All,  Ok, I am using the X-clair cream and it is fine.  So far, but haven't been at the rads long enough to have my skin react.  I'll let you know how it goes.  The nurse that works with me on my skin is also going through rad so we discussed the biafine and she was familiar with it.  She said it was oily, etc., and causes your skin to actually change molecularily and that if you miss a dose you will have a problem?  Anyway, she suggested I stick w/the x-clair.  She did add the ibuprofen (2 tabs, twice daily) to my schedule, though. 

Any thoughts by your experienced 'Rad Ladies'??    Thanks,  Lee

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Reply with quote  #13 

PS:  Do you like the picture of my dog, Erin?  That is the picture the breeder sent us that sent my daughters and me over the edge to run to meet her last spring and adopt her!!    Just had to add that!!  -Lee


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Lee
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Reply with quote  #14 
Is that a Cavalier King Charles? What a cute dog! Can you post a bigger pic?
If you don't know how to post pics here, what you do is open an account (free) with Photobucket or Tinypic and then down load your photos there.
Then you copy the "direct link" box that appears under your downloaded photo and when you post here, click on the box above that looks like a mountain picture in a frame and paste the direct link url from photobucket there.
Your pic then appears when you hit reply.


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energybunny

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Reply with quote  #15 

Hi Gina,  Erin is tri color cocker spaniel.  She is so pretty!  She looks like she has makeup on!!    I will try and post a pic of her sitting on the deck last summer with the pool behind her.  She looks like the Queen herself!!    Seeya!  Lee


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Lee
mrsb

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Reply with quote  #16 
Lee you might try this.. every day after Rads I sprinkled corn starch(I took a little ziploc bag with me daily with a soft  powder puff) on and under my breast( I had immediate reconstruction) it broke my heart to see my new breast blasted). I also came home from treatment and stripped off and let the fan blast the area for a couple of hours. I did this religiously and only washed the are weekly with prescribed soap. I didn't burn until the last week of treatments 6 weeks. Take care mark off each day and before you know it you will be halfway though and then done. All the best Mrs B
energybunny

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Reply with quote  #17 

G,  I am trying to post this photo of Erin.  Hope it works!  -Lee


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Lee
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Reply with quote  #18 

http://i283.photobucket.com/albums/kk314/leecven/Picture011.jpg


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Lee
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Reply with quote  #19 
Thanks MSRB for the advice.  I will try it! 

Hope I didn't wreck this thread w/picture of my youngest, Erin, but isn't she a cutie! 

Back to rads today after a weekend away.  First time away since this all this started!  Feel great!  Enjoyed the weather, lake, etc.  There is a light and fun during this process!!    -Lee

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Lee
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Reply with quote  #20 
LEE! I love her!!!!
Oh how cute.
I just want to hug her


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