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CherylG

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Reply with quote  #81 
Still praying for you sweetie
Gentle hugs ... hope things are improving
Hugs
CherylG

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lizws

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Reply with quote  #82 

Hi everyone,  I just had a wonderful visit with CY.  She sounded good.  She went in for rehydration today and will do it again tomorrow.  She will be doing this weekly for now.  She said her pain is better now and she's learning on how to control the break through pain.  She does see her doctor on Thursday and get chemo. 

 She wants everyone to know how much she appreciates the calls.  If you want to call her, she ask that you call her in our afternoon. In other words, she's two hours ahead of me so I would call after 2 or so.  She tries to rest and stay in bed until 11:00 am her time.  She knows the time difference is confusing.  I still get confused but I'm learning.

 She says hi to everyone and she'll update us when she can.

 Gina she said to tell you she's sorry she's missed your calls and hasn't called back.  She's thinking of you. 

Hugs

Liz


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AlaskaDeb

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Reply with quote  #83 
Thanks for the update.  Hugs and prayers for CY
 
Deb C

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chemoabi

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Reply with quote  #84 
Thank you for letting us know about CY.  I have been thinking about her everyday.  If someone calls her - please send her a hug and tell her that I love her.
 
Nicki

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MargaretB

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Reply with quote  #85 
Just saw this on BCO and thought I'd post it:

7 hours ago

WOW! What a relief! I just spent a little bit of time over at Cheryl's... I was VERY concerned after the phone call and another text message she wrote me that was virtually unreadable. I guess she had been trying to call her step daughter and got my phone by mistake, hence why I didn't understand what she was talking about. She made the calls while she was falling asleep.

She says the best time to get her is when she first wakes up and  after the rehydrations.

We are 2 hours behind Arizona, and Florida we'd be 3 hours behind to try and help you with time frames... for example if you live in Florida and it is Noon, then here it would only be 9AM. So those of you who live on the left coast or midwest you'd want to try her after 2PM. Our Mum says she does much better after then too.

 She can only handle activity for an hour or so at a time as long as it is slow, easy activities. She get's pretty wiped out easily. This weekend was a rough one for her, mum says, and I agreed as she didn't look like she was doing well at all, and I was really worried about her. But tonight she had much more color in her and was more her usual teasing, big sister, self.

The liver is visably enlarged and she has to stay on the Chemo and pain management medications for the long haul now. Again the brain scan is scheduled for Friday.... around 9-10 AM our time for those wanting to storm the room with her again.

Other than that, I am doing better, on the antibiotic...appears my troubles were an impacted sinus cavity. Nothing major or new as I am prone to that. I am back to working 10+ hours a day in the deep freeze (I am a production accountant for a sea food company). And my apologies to those trying to call me... I am rarely near a working phone as my cell phone doesn't work at work too well (I barely do in the freezer he he, but it keeps them King Crab nice and fresh) and I get my calls at home pretty late too, usually after I visit with Cheryl.

I had a tossing turning night last night and Cheryl was very much on my mind. Apparently I was not alone in that. But hopefully all those that were up with her, got her through what needed getting through and we can all rest a bit easier tonight. She goes for Chemo Thursday. And our folks are going to come by my place tomorrow and let me know how she's doing.

OH and before I forget... I am working on setting up a trust account for fundraisers and donations... I will let everyone know when I have that all squared away and available too... probably after the weekend.

But for now... I'm pooped... so I am heading for bed. HUGS for everyone!

Charlie

 
AlaskaDeb

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Reply with quote  #86 
Sending hugs and prayers
 
Hugs
Deb C


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lizws

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Reply with quote  #87 
Update from Charlie a bit ago:

Just spoke with CY, she sounds much better. She is on oxygen as needed. She was unable to get Chemo today due to her red and white blood cell counts being too low. I asked about the Onc saying she had to stay on or else, and she said the Onc said it would be OK not to get it because she is still taking the pill form of the other chemo and her liver function has improved. They gave her shots to try and improve the counts so she can get chemo next week. Her color has defintiely improved they said. CY trusts her Onc and is OK with not getting the chemo today. She did get another rehydration today.

She goes in for her MRI tomorrow. I will be talking a half day at work and getting by the bank to see what needs to be done to set up a trust fund for her. Then I will scoot by and see her for a little bit in the afternoon.


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FLLoriK

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Reply with quote  #88 

I hope this is the beginning of an upward journey! You deserve a break!  

lizws

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Reply with quote  #89 
Update from Charlie about brain MRI:


Just got back from CY's... she's wiped out today. The MRI showed that the gamma knifed lesions are fading... but it also showed 4 new lesions. Being the less fine MRI they say that there is quite probably more, just as last time where it showed the 5 then 12-15. One of the 4 new spots is near the area of the brain where the stem cell fluids go.



They want to try and let the chemo work. I am not sure who "they" are but they also do not want to do the full brain radiation yet due to the side affects. They say the confusion and jumbled words, and tremors in her hands and equilibrium problems are more from being tired or the pain medications. Now they are thinking of changing the pain meds because they think they might be too strong. At any rate they do not plan to redo the MRI for another 4-6 weeks to see what happens.



They have also canceled her re-hydration for tomorrow saying that she is retaining water in her legs.



Forgive me if I sound really confused or short... I just don't get all this. One time they say one thing is bad for her and will kill her... then they turn around and say that the very thing they say is bad is what they are going to do.


Crap!

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Bren

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Reply with quote  #90 
Most recent message from Charlies posted 12 hours ago on BCO:

CY goes in for her liver scan tomorrow, she is really worried about what the results will be. She's had a really bad couple of days here, as her legs are so swollen she is falling a lot and not able to keep her weight on them. Scott threw out his back trying to get her up when she fell between the bed and the wall trying to get up out of bed. She's also having trouble off and on recalling what she wants to say... it comes to her after a little while of thinking about it, but there's some disconnects. Her daughter said she is getting frustrated trying to read things at times too, that she knows the words are supposed to be saying something but she can't make it out. The brain stuff is intermittent, sometimes she does well, but more and more often though it's very difficult for her, and you can see the frustration and her wanting you to understand in her eyes.

Her speech has also been affected and sometimes you have to really listen to make out what she is saying, though having an older sister with Cerebral Palsy actually makes this a bit easier for us who grew up deciphering her speech. It's very much the same patterns just quite a bit easier.

She has also gotten more and more anxious and unable to stay put for long at a time. She's constantly telling people she supposed to be doing something or that she's forgetting something that she has to do. When she's more "with us" she says that she thinks that is because she is so used to being on the go that her subconscious mind is telling her she is supposed to be at work, or appointments, or shopping, etc. This may be very true.

All in all though it's really hard because you so want to just make it all stop doing this to her and you can't.

At any rate she goes to see if she can get Chemo again on Friday and they will discuss the results of the scan then.

Hope all is well with all of you and thanks again so much for your love and support {{{{HUGS}}}}

Charlie

Bren

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Reply with quote  #91 
Cy and Scott,

You're in my thoughts and prayers today.  God bless you today.

love,
Bren
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Reply with quote  #92 
Charlie - thanks so much for keeping us in the loop.  I know this is hard for you too.

Cheryl & Scott - you know we all love you and are praying for you.  ((HUGS))

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Karen1956

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Reply with quote  #93 

Hugs to Charlie, Scott and Cy.  I wish there was something I could do.  Karen

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Reply with quote  #94 
Keeping Cy in my thoughts and prayers. 

Sending gentle hugs,
Kristin

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CherylG

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Reply with quote  #95 

Keeping you in my prayers always dear CY


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Bren

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Reply with quote  #96 
Latest update from Charlie
 
10 hours ago
Edited 6 hours ago by CB3

No results until tomorrow on the scan of the liver. Sorry ladies... that's the way this has been... nail biting waits. I won't be able to get on to tell you until evening tomorrow either (7-9 PM our time tomorrow, because they'll block the website at my work because it has "breast" in the name).

CY was not doing well tonight, color is off, forgetting what she was saying, real antsy, eyes duller that usual  and she didn't smile once even at jokes. she's been falling a lot - she has bumps on her noggin from them I saw... I worry so much for her. I wish I could do something more!

She's even more worried now too, her work told her they don't pay for her medical insurance while she is on disability... only if she is actually working. She can keep the insurance, but she has to pay it out of pocket. She doesn't have the capacity to find out what directions she can go from here and when I spoke with our Mom about it, it sounded like what I thought were options aren't yet. They've applied for SSI but haven't heard anything yet. Anyone have any ideas how I can help her any more with insurance or medical bills?

 
Gals,
 
Please remember the fund that was created  by Charlie for Cy's medical expenses.  I feel so helpless too, Nicki, I just don't know what to do.  I'll start checking into other options.
 
Love,
Bren

The "Cheryl Thomason Cancer Fund".
Donations are Gratefully accepted at any Bank of America location. 
chemoabi

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Reply with quote  #97 
Bren:  Thank you for posting this.  I feel so helpless.
 
CY and Charlie:  Know that you are in my prayers and my heart.
 
Nicki

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