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Debris

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Reply with quote  #1 
On Friday I had a PET/CT scan, a 3-month follow up to those done in September.  However, I have a "palpable" node on my neck, right where they previously excised one of theTNBC-infected lymph nodes.  So, I'm a little anxious about the result.  (Also having brain MRI next Thursday...)

Funny, I don't worry about any of this when I'm not waiting for scan results.

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mrsb

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Reply with quote  #2 
Hi Deborah just  wanted to say a quick hello. If you haven't had a brain MRI before it can be a bit disconcerting , noisy and if your claustrophobic a little anxious. I have a few tips to share, take lots of nice slow breaths. i have the tech put a wash cloth over my eyes that way i am not tempted to open them. Ask the tech to tell you how long each part of the MRI takes.e.g this part will take 3 mins. it helps. I have had so many now that i just lay down and not fuss . Sometimes they will play music, ear plugs are good but all those magnets are noisy.We will hold your hand and you sit in the waiting room and hope for good results.Shelagh
delphinus

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Reply with quote  #3 
hi (((((Deborah!))))) Shelagh has great advice (((((hi Shelagh!))))). You could also ask your doctor in advance for a little lorazepam to help relax you during the brain MRI. (or to deal with anxiety around waiting for results!) I, like Shelagh have had many brain MRI's and they really aren't too bad. It is always so hard though waiting to get the reports, but like Shelagh said, we will hold your hand. Sending good vibes to you for hopefully great news from both your PET/CT and your MRI. We're here for you no matter what. Cheering you on! Hang in!

xoxox
love
janet

Debris

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Reply with quote  #4 
Thank you so much, Shelagh and Janet.  Your kind words of encouragement (and advice) are so appreciated.

Currently in Georgia, we're dealing with the ice-storm that passed through during last night.  For Georgia, it is a big deal because folks are not as used to driving in "winter weather conditions", as they are in the North.  So, much of the State (especially in smaller towns) is closed down.  Which probably means more delays for the test results to come through.  Added to which, my Onc. has gone on 2 weeks vacation (to Australia) - a well deserved break, I might add.  He promised I would not have to wait for his return to get the results, though.  I'll check with his office tomorrow...

I'm not a frequent poster (most of my questions have already been asked/answered previously by members on the Board, and I don't feel competent enough to give advice to others, yet), but I do read many of the posts, and am always so amazed at the generous support given to many by many.

Thank you!

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“The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore all progress depends on the unreasonable man.”
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Reply with quote  #5 
Dear Deborah,
We are all waiting with you.... I have heard of your terrible weather- plus your onc is not getting very good weather in Australia because of the flooding... he may be home sooner than expected!
I am so glad you find encouragement here... please post wherever you want, we love hearing from you!



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Debris

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Reply with quote  #6 
Thank you, Gina and all, for "holding my hand" as I wait.

The PET/CT scan results are good, though mixed.  There is no evidence of disease in the chest, abdomen and pelvic areas.  A small node in the neck still. 

(At least, I hope it is "still" and not "new".  The last scans I had in September came back "NED" throughout.  But I'm hoping this one was just too small to notice that time.  Don't know why it would make a difference, but to me it does...)

I see my Oncologist this coming Thursday, so we'll see what he has to day about it.

Still waiting on the brain MRI results.

God Bless us, everyone!

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“The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore all progress depends on the unreasonable man.”
—George Bernard Shaw
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Reply with quote  #7 
Deb, what happened with your follow up appointment? I hope all is well!!!!

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Debris

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Reply with quote  #8 
Hello Gina and all.

The brain MRI came back clear. 

So the only worry is now the neck area that is not clearing up.  Radiation has been suggested, and I'm due to start 6 weeks radiation, at 5 days per week, on Monday.  It will be the left side of my neck and down to the clavicle area.

At first the Radiologist said he would recommend that I stop Avastin during the radiation (which I was not happy with, having just also stopped the Taxol), but the oncologist has since talked to the Radiologist and I will not have to stop getting the Avastin.  (It is only every three weeks now, anyway.)

Thanks for asking!

Deborah.

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“The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore all progress depends on the unreasonable man.”
—George Bernard Shaw
nosurrender

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Reply with quote  #9 
Deborah, I see you have gotten some great advice on the neck rads.... I hope all is going well now. Great news about the clear brain MRI!!!!!
lots of hugs,
g


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Calico

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Reply with quote  #10 
Deborah,
yayyy for a clear brain MRI, what a relief that must be.

Prayers and good vibes for the rads, glad you continue with the chemo during that time.

Hugs!!

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