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ninel

explorer
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Reply with quote  #1 

I have just been diagnosed with triple negative idc. My tumor is about 1.8cm on the mammogram. I am scheduled for an MRI this coming thursday. I am young (34) and have too much to live for. I want to increase my chances of survival as much as I can. I know this type of cancer is aggressive and I want to be aggressive in treating it so I am leaning towards having a bilateral mastectomy with reconstructive surgery. What I am afraid of is if I won't have any breast tissue left and have a recurrance that means it's metasticized, correct?

I would like to know how many women out there have had a bilateral mastectomy?

How many of you were diagnosed with a reocurrance? And how long were you in remission before it reocurred? Where did it reocur?   Or on the flip side.... How long has it been since you've been diagnosed and it hasn't reocurred?  

I need to know what I'm up against.

Ninel 


 

Indigoblue

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Queen Blue Sky & Golden Light
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Posts: 1,681
Reply with quote  #2 
Hi Nine,
 
It's a difficult decision, and in my reading about triple negative disease, for "peace of mind", many women opt for a bilateral.  You will know more about your tumor's characteristic once you've had the MRI.
 
You are very young, and one thing to consider is the pace at which research is advancing to understand and provde successful treatments options for women with TND.  Visit the No Surrender Breast Cancer Help, and it simplifies the questions you are asking.   
 
I regret not having genetic testing, and insisting on a bilateral; but time and time windows forced me to believe in the breast surgeons recommendations.  This was Dec., 05.  and there wasn't anyone to tell me much regarding yes, no, and now what? 
 
Hope, prayers, and peace to you, in making the best choice for yourself.  Try not to panic, as I did, keep your wits, and find the best surgeon possible.  It's important to have an honest relationship, make certain the surgeon shows you your test results, biopsies, MRI, and explains everything. as well as providing you with options, counseling, and prognosis.   
 
Take a tape recorder and two clipboards with copies of a concise list of questions; give one to the surgeon. Take a medically-educated friend, if possible. It helps to talk to women who have made the choice to remove both breasts.  
 
Good luck, and let us know how it is going.  Hope it helps.
 
(((hugs)))
 
Indi

Karen1956

Goddess Forever
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Posts: 1,218
Reply with quote  #3 
Ninel - I am glad that you found us.  I am not triple neg, but I did have a bilat.  I was Dx with ILC in right breast (and it was all over) and both surgeons I interviewed recommended a bilat.  That was good as it was one of the questions I had for the surgeons.  It made sense to me. The "good" side ended up being not so good with being ALH - so the bilat just took away one worry for me. I wasd Dx 2/3/06 and had my bilat 3/1/06 followed by chemo, rads and ooph. 
Wishing you an easy journey and years of dancing with NED!!!  Hugs, to you.
CherylG

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Reply with quote  #4 
I wasn't triple neg but I had bilat. I'm very glad I did because the path report showed I had it on the other side too. I didn't do recon though. I wanted to be as agressive as I could but didn't feel like I wanted any of the extra surgery etc that recon might involve. I am 3 years out from surgery and 2 years out from chemo and rads.... doing great.
Do what you feel is right for you... best of luck to you.

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