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Harley

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Reply with quote  #41 
zscweeb,
Yes, you have to get a letter from your dr, because ANYONE could just make up something, and write their own letter.  That would mean NOTHING to the court system.  Sorry.  Maybe every town is different, since it worked for you, that is good. 
 
g,
 
Yes, I decided to go back to work at that dress shop, but I have only started one day a week.  It is really too slow there, and I just don't have enough to do.  Now I am not making enough money to buy all the necessary things I need, so I may have to work someplace else FULL TIME, even though I don't want to.  When I worked full time, I had more money, but never had a chance to go anywhere to spend it.
 
Yes, I think that letter needs to be on letterhead, so I will call my onc's office and tell them this on Monday.  I sure hope they will do this and ASAP, because I have to go on July 21st for crying out loud!  Funny, it feels like FOREVER, while I wait to see the gyn onc on July 22nd, but if you are waiting for a letter to be sent, excusing you from Jury Duty, it feels like there isn't enough time!
 
Crap!  I could never have children!  So you are telling me that I can't have laparoscopic hyst.?  I thought that a woman I work with at the clothing store said that SHE had a laparascopic hyst., but I don't know if she ever had children.  Just my luck!!
 
I would usually agree with you about wanting to see the DR, and not the P.A., but my onc doesn't have a very good manner and can be real abrupt, so I was glad to see the P.A.  Actually, Jenifer is an ANP, do you know what THAT is?  I don't. 
 
That is still crappy, about your reconstruction...  You have been through so much already!! 
 
I'll be thinking of you.
 
Hugs
Harley
P.S.  If your vitamin D levels are high, you won't have too many se's from Femara?  That is good to know. 

nosurrender

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Reply with quote  #42 
Susan, Nassau County will catch up with you next year... believe me!

Harley, that is just what my Gyn told me. Maybe it isn't true for everyone. We were talking about a Lap ooph I said to him, why not take out everything that way? And he said if I wanted the full hyst he couldn't do it Laparascopically because I never had a baby. So I said forget it.
Maybe it is just my anatomy. Plus my gyn is so overprotective it may just be a quirk with him. I call him Dr. Belt and Suspenders.

Retail clothing is dead in the summer. I once had a job at a dress shop at a marina during the summer. It was so boring because no one ever came in. Who feels like buying a dress when you are going out on your boat?

My beef with PAs here is you meet with them first and they take all these notes and then they go into the room with you and tell the doc what is wrong with you based on the notes they took - as if we don't know how to speak. It drives me crazy because there are things that you want to say to or ask a doc and you have to sit there and listen to someone else's version of what is wrong with you. Maybe I am too much of a big mouth to stand it. LOL

ANP? American Nurse Practitioner? Assistant Nurse Pract? I have no clue!!

Start taking your D and not only will you tolerate the AIs better, but your meno symptoms improve!

Stay cool this week!

Love,
g


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DoreenF

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Reply with quote  #43 
some gyn's can do a laproscopic hyster if you've never had kids ...   mine was done laproscopically and I never had a child ...  he did tell me though that he wouldn't know for sure until he started the surgery if he'd be able to do the full thing laproscopically or not.  At followup visits he told me it was a difficult surgery but he was glad he could do it laproscopically as it is soooo much easier to recover from that way.

I think they get a good clue re: the feasiblity of doing the surgery lap from the ultrasound. 

Doreen


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nosurrender

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Reply with quote  #44 
This is good news Doreen!
My gyn said something about he may have to open me up for the ooph too!
I told him no way. If he finds out he has to do that then he should leave everything in there! LOL


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Bren

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Reply with quote  #45 

I had a vaginal hysterectomy a long time ago pre b/c.  They left my ovaries in.  About 10 years after that, my ovaries got all twisted up and I had a 9 cm tortion cyst.  By ultrasound, the docs couldn't tell what it was.  They suspected some type of abdominal cancer.  At any rate, the cyst/ovaries were removed by opening me up with a horizontal incision running from my pubic region to my belly button.  The recovery from my hysterectomy was a few days.  The other was about 6-8 weeks and was a lot harder.  No vacuuming, no lifting, etc.   

Harley

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Reply with quote  #46 
 
 
Ladies,

Thanks for all your experiences with hysterectomy.  I am thinking that this gyn onc will open me up all the way, so he can make the biggest scar!! 

And to think, I NEVER had ANY surgery, until this bc dx last year!  Now this will be surgery #5!  The biopsy, the bi-lateral, the reconstruction, and then the nipple surgery...  and NOW a hysterectomy!!  I am so sick of all this crap, it isn't funny!

Sorry, I'm kind of depressed, because July is the Month from HELL, with all these dr. appts. that I have...  it is really getting old!  Friday, I had an onc. appt., and saw my P.A. who agreed that I need to see a gyn onc about the 'endometrial thickening'.  I have an opthalmologist appt. today to check for cataracts, since they run in my family and tamoxifen causes them!, tomorrow a dentist appt. to fill two cavities, and then on Tuesday, I'll see the gyn onc.  Just the idea of seeing yet another onc scares the heck out of me!  But, I hope he will do the surgery ASAP, so I don't have to wait so long to get my path. report from the hysterectomy.

But, the good news is that I got excused from jury duty next week, because of this issue, and I get a break from Tamoxifen, until all this is straightened out.

Harley



 
Primel

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Reply with quote  #47 
Harley, I just went through the whole thing and I never felt better, with or without "the nursery parts". Ultrasound showed a polyp in my uterus late March, had a D&C early April: polyp was bad (complex hyperplasia WITH atypia), got everything out April 25: scar horizontally (bikini line), since the gyn wanted everything out in ONE piece (uterus, cervix, tubes and ovaries) in case there could have been cancerous cells already in there... the good news is there was nothing at all except what they had already found in the polyp and in the endometrium where the polyp was attached.  I did not have children (I am 55), so she did not want to go the laparo way.  Another advantage: she had a good look inside, she said: liver and guts looked just fine. And a plus for me: no more Tamoxifen (maybe the culprit of this polyp going haywire)... switched to Aromasin May 1st and, apart from the phenomenal hot flashes, still, I have been feeling ten times better: very little joint pain, much more energy (Aromasin has a steroid in it), did not gain weight (I watch it, though... hungry...), I do not (never had) mood swings... The nurse at the hospital (where I stayed 2 nights) told me I'll love it not having to worry about all these spare parts:  I do... and I do not feel "different"... as if nothing happened except for the very thin scar. The gyn explained that she did NOT cut trough muscles, just pushed them apart to work... so I do feel just fine and as strong (I followed the instructions for the first 6 weeks... did not "push" myself at all... no biking, no swimming either, that was the bad part). So do not fear the big classical cut (why should it be vertical?).  Good luck to you, and to Gina, too (Hi, sweetie :-))

Catherine
Harley

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Reply with quote  #48 
 
Primel,

Thanks for your experience with hysterectomy.  I was worried about having them cut me from stem to stern, and I imagined that I would get cut like my MIL, from my navel straight down.  It just seems too painful!  I never had children, I can't due to premature ovarian failure, and a woman I work with also told me that she couldn't get laparoscopic because if they are looking for cancer, they can't do it that way.

I am hoping that this will not be cancer, because I don't want to have to do chemo and/or radiation again.  I am hoping that just getting the hysterectomy will take care of all my issues.  These parts have NEVER worked right anyway, so I want them out!

Thanks!
Harley

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Reply with quote  #49 
Harley, in the words of my gyn...
"Get rid of those ovaries, they're nothing but trouble!"
IT WON'T BE CANCER- we will NOT permit it!

Hey Catherine- so glad you are doing well!

Love
g


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Harley

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Reply with quote  #50 
 
g,
Thanks!  I know you all will be praying for me and that helps! 
 
Indi,
 
A woman I work with told me that she also has seen this same dr., and she liked him!  She also told me that if they are going to send these parts to pathology, they won't be able to do laparoscopic hysterectomy.  They need everything to be WHOLE, so they can examine it.
 
I'll let everyone know what I find out tomorrow.

Thanks!

Harley

 
Naniam

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Reply with quote  #51 
Harley,

Just a short note to let you know I'm thinking of you - sending you a big hug.   

Brenda
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Reply with quote  #52 
GOOD LUCK HARLEY BABY!!!


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Harley

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Reply with quote  #53 
 
 
Awww... you are so sweet!  Thanks for all the warm thoughts and prayers.
 
This guy was nice, but I don't agree with him. I am not really sure he was listening to me, either, because although he said "I hear you!" when I told him that I am NOT going through all these tests, and living with fear that I'll get cancer.  I said I didn't want any more biopsies, and he said... did you have an endometrial bx?  See, he wasn't listening... I said... "the breast..." 
 
He flat out refused to do the hysterectomy, although he said that 'if I insist, he will do it.'  He wants to do a biopsy in the hospital, and there are ways for him to get a 'better view', so he will get a good look at things....  I will only agree to this, if I am ASLEEP, and don't know what is going on.  I just can't go through all this again...
 
Oh I am so fed up with all this crap!  If I had a knife, I would do my own hysterectomy, but I'd probably bleed to death! 
 
Harley
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Reply with quote  #54 
Harley, definitely INSIST if that is what it takes for this guy to get off the pot!
And from what I have heard about an endometrial bx is definitely get it done asleep!
But here is what I don't get- why put you through one when you want a hyst anyway?? Seems it would save you a lot of wear and tear.
Maybe you need a new doc. I know it is a pain, but maybe you could try one who lives in this century!

Big Hugs,
love,
g


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Harley

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Reply with quote  #55 
 
 
g.,
 
Thanks!  I don't think my insurance will allow me to see anyone else without a referral, and now I don't think any other gyn will see me!  The last one refused to even examine me!  He said that since I have  so many problems, and 'a history of irregular bleeding' ... WTH? he didn't feel 'comfortable' doing an endometrial biopsy, but I should go see a gyn onc, and I just don't think there are very many of those around.

Harley

 
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