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joykeeperorg

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explorer
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Reply with quote  #1 

Hi Im new here an first an foremost I really want to thank GINA from the bottom of my heart for having a great site like this! I read so many of your post on bc.org an you are such a inspiration!

I have been having a hard time these past couple days...... Its like my body just wants to give up im so sick an tired of being sick an tired I was dx at 23 in Aug 07 Stage IIIA 4/34 nodes triple negative...... Did AC & T for 4 mths dose dense had a bi lat mast Jan 23 08, started rads in Feb I have 6 more to go! waiting on genetic results had a horrible family history grandma, aunt, and 2 cousins (who are sisters) died of this horrible thing called breast cancer. All but my grandmother was under the age of 40!

I jus am so scared that this is going to my fate all I can think about is how horrible my skin is right now cause of rads I have to keep my arm up cause once it rubs on my skin i jus cry cause of the pain from it, blisters are starting to form. Im tryin to keep fighting I dont want to give up but its so hard days like this when i dont feel good about myself....... I know there has been so many deaths lately with this gift that keeps taking away an it hurts my heart................Thanks for listening


Chantal


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csp

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Reply with quote  #2 

Hi Chantal and welcome!
First of all so sorry you are feeling so tired of everything.
It is okay. You have been through a lot your body and spirit
need time for healing and your strength has been zapped from
 treatment. I know others will be by to give you some info on what
to do for the blisters just hop right in anywhere you want this is
a safe nice place and the women here are awesome.  6 more to go
you are almost there baby!!! I will keep you in my prayers.

Just for you Chantal~
James 1:2
[ Trials and Temptations ] Consider it pure joy, my brothers, whenever you face trials of many kinds,
 

Lv&Hgs
Carrie


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saying.. i will try again tomorrow.
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wildabouthorses

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Reply with quote  #3 
Hi Chantel...my goodness you have been through the wringer with this journey. Has your rads doc given you anything at all for the skin? Mine gave me samples of Aquaphor. They told me to put it on after each treatment. Not sure what to tell you though for blisters already there.

Hugs from another BC sister on this journey.

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cmb35

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Reply with quote  #4 
Chantal

Welcome to you, I'm sorry you're at such a low point right now, but believe me, it is because you are physically and mentally exhausted. You have been through a huge ordeal, and you are almost at the end of active treatment, which is huge, but scary in and of itself.

You have done everything you possibly can to beat the cancer, take comfort in that.

Aquaphor did wonders for me, I think it worked better than the pure aloe even. Your rad office should be able to give you a sample of it, or you can buy it in any drug store.

Know that you can come here anytime and ask for help, the women here will rally around you, lift you up, and help you find the strength to keep putting one foot in front of the other. It's in you, we just sometimes need a little help finding it.

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lizws

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Reply with quote  #5 
Hi Chantal,  bless your heart.  You have had a long trip haven't you? I didn't do radiation so can be of no help to you.  Know though, that I aml here for you. 

Hugs & Many Prayers
Liz



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Calico

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Reply with quote  #6 
Hi Chantal,

welcome. I am so sorry you are suffering so much right now.

My PS gave me a vitamin C ointment from Bioesse as well as a hyaluronic acid spray called Hydro-Moist (actually I bought them from him per his advise) and my skin really improved.

Hang in there.
Sounds like you have been agressive in treatment and that is good. Hoping for good genetic outcome.
I'll keep you in my prayers.

God Bless

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jenni__ca

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Reply with quote  #7 

joy
ask your rad nurse about adeptic bandages & if your rad onc approves such a thing  ... mine gave it to me and it was quite a bit of relief ... i had rads after a mast & and have very fair skin ....  it is a petrocarb (or some such thing) soaked gauze and lay it over the rad burns and then use a light gauze wrap to hold it in place ...it was soooo soothing to my bad burns

also when i finished rads it was amazing how fast big sections of skin turned mottled white and healed .... while i had a couple of deep burns that took a long time to heal probably 80% of it was significantly improved in a week ...


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nosurrender

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Reply with quote  #8 
Hello Chantal,
I am so happy you are here.
All the suggestions you have been given are great ones.
So I won't add on to those.
But I want you to know that when I had rads the first time, back in 2002, I had no skin left whatsoever. It was horrible. But, it all healed and got much better in no time. So just remember, this is only TEMPORARY. You will get through this!!!!
I promise!

Love,
g


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AlaskaDeb

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Reply with quote  #9 
Chantal -  Sending you hugs and prayers
 
Deb C

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suzfive

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Reply with quote  #10 
Hi Chantal,

So sorry you have to be here, but it is a great place for support. I used the Aquaphor for my radiated skin but found that natural vitamin E that I squeezed from a capsule worked even better - skin healed within a few days. My rad onc said it was okay to use this - just use it after rads and don't put it on your skin before treatment - same thing you would do with other creams. If they can't give you samples of Aquaphor - I think it was on sale this week at either CVS or Walgreens if you have either of those near you (my chemo brain may be wrong and it could have been the week before).

Sending you hugs and prayers for healing,
Suz

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cowgirl

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Reply with quote  #11 
Chantal,
My family history is historic. My mom, two aunts and great aunts all had BC. I got mine at 46 two years before my aunt did. My mom got BC after 5 yrs of Tomaxifen, and yet I tested negative for the gene.

The test doesn't tell everyone what gene is in their family. It is only the few genes they have indentified. Either way this is your basket, and now you have to figure out how to handle it. This beast is not fun, or easy. But what I know is you will find out things about yourself and this place that will astound you. Believe me I hardly recognize the old Kathy. I was not at all who I am today. My life is full and round, I love my kids, my animals and my Hubby with a passion. There are times I can not breathe and I come here and vent. It is okay, most of us fully understand that pity parties have been earned.

I am really in a busy time of my life, my kids have a show this weekend. This show marks my knowledge of my cancer but I was not public with it when I was diagnosed. This show I can walk around and not have a black cloud over me. My kids did miss the fall show because my cancer, three years ago I was so worried. Now I am different. Not that I don't still have bad days, but I can handle them.

So even though I don't reply right away, as I work and scoop poop I pray for each lady I know. It is my special prayer time. God gets me, thankfully. He knows how much I love to scoop poop.

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joykeeperorg

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explorer
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Reply with quote  #12 
WOW....... Im at a lost for words you ladies are SO SWEET! My Onc gave me Biafine to put on 4 times a day! Its kind of weird cause I still dont have a lot of feeling in my chest but it hurts hopefully that makes sense! I only have 4 more treatments to go WOO HOO!

I guess I was just having some down moments lately an Thank you for your prayers an kind words! I wish you all well for the rest of this week!

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Madison

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Reply with quote  #13 

Chantal,  Hello..........and I am definitely praying for you..........


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Madison
nosurrender

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Reply with quote  #14 
Chantal, how are you doing?
Please check in with us!


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