Sign up Calendar Latest Topics
 
 
 


Reply
  Author   Comment  
Cherlilly

Goddess
Registered:
Posts: 143
Reply with quote  #1 
I have my last chemo tomorrow (AC/Cytoxan) and I am literally sick all 3 weeks in between treatments.  I am sitting here just one day before treatment and so sick to my stomach!  If it wasn't for the nausea through this, it really hasn't been too bad.  But, I have spent the majority of the past 9 weeks on the couch.

Here is what I get:
Emend- Zofran- Dexamethasone.  The Zofran is ONLY on the day of chemo, and the Emend/Dexamethasone is for the next 4 days total.  They did add the drug metoclopramide which didn't seem to help at all so I quit taking it.  I also will take Phenegran which helps a little and lorazapan (which I hate!)

They are changing my drugs for the last one and will use Aloxi instead of Zofran.  Just wondered if anyone has taken this?

AND......what drug therapy do you get that has worked?  My oncologist feels horrible for me and says that 96% of people getting chemo do not experience nausea like I do. 

Cheryl

__________________
DX 8-14-07
Invasive Medullary Carcinoma
Triple Negative
Stage 1c
Grade 3- Poorly Differentiated
Lymph Node-Negative
Naniam

Goddess Forever
Registered:
Posts: 1,341
Reply with quote  #2 
Cheryl, I had some nausea, one time bad the day of chemo; I know I was luck.  I just felt so awful - think it was the Neulasta or combo of chemo and that shot.

Anyway, I had the Ativan (lorazapan) but I put it under my tongue and got better control of the nausea - I used it that way and maybe that is why I didn't get so sick.  Downside is that when you take it for nausea, you an use more frequently but it just makes you sleep. 

Since you have this anyway, try one under the tongue and see if it helps.  This little tip was given to me by another chemo patient that was having a very hard time too. 

Congrats on your last chemo treatment tomorrow.  That is quite a milestone to reach.  Good luck!   I'm sure some of the other girls will have other things that worked for them.

Hugs,  Brenda

bac10

Avatar / Picture

Goddess Forever
Registered:
Posts: 203
Reply with quote  #3 
I got Zofran IV the day of chemo and then had a prescription for it to take at home.  It worked very, very well for me and I feel like it was a lifesaver.  The only downside...it was the nastiest tasting thing I have ever had in my mouth.  It looks like a squashed white chocolate chip, feels like dried foam and tastes horrible.  I had to let it melt on my tongue and then try to eat something to wash down the taste.  I took it every eight hours.  

I still get nauseated every time I eat anything and it's been two weeks since my last chemo.  I had to go in this morning for an iron infusion and a shot of Aranesp so I asked the nurse about it.  She told me that it will eventually go away but may last several more months. 

I'm glad to see you posting and will be thinking about you tomorrow.  Good luck!

((()))

__________________
Bev

lizws

Friendship Goddess
Registered:
Posts: 1,424
Reply with quote  #4 
Cheryl, I'm so sorry you've been this sick.  I got Aloxi in my IV as well as the dexamethasone IV.  I took the Emend for 3 days.  I didn't get sick.  Aloxi is much better than Zofran.  I hope it helps you.  So glad you're almost done!

Hugs
Liz

__________________
"I can be changed by what happens to me. But I refuse to be reduced by it!" - Maya Angelou
Karen1956

Goddess Forever
Registered:
Posts: 1,218
Reply with quote  #5 
Cheryl - I went for IV hydration 3 days following my chemo.  The best anti-nausea med for me was B-D-R suppositories. The Walgreens near me is a compounding Rx and they made it for me - Benadry-Decadron-Reglin (sp).  I also took Kytrel and Ativan.  Also had compazine suppositories but the BDR was better.  I got Emend the day before, day of and day following chemo and Decadron pills the day before and day of chemo.  I took whatever they would give me for nausea.  I did not through up, but was so quesy.  By about day 4 I would start to feel 1/2 way human.  From reading Liz's post, I think that I got Aloxi in my IV with my chemo.  ITs funny how much we forget when we think we never will.
 
Good luck to you tomorrow on your last chemo.  I hope it will be kinder to you.  Hugs, karen
AlaskaDeb

Avatar / Picture

Angel
Registered:
Posts: 673
Reply with quote  #6 
I got Aloxi and zoforan in my IV and then oral compazine and Zoforan for after.  It worked like a charm for me....hope they find an answer for you....
 
Hugs
Deb C

__________________
http://glassylady41.spaces.live.com/
nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #7 
((CHERYL))) your LAST ONE!!!

My method was emmend in the morning,
ativan at the infusion with aloxi in the infusion and then compazine and ativan for home.
And I took the steroid too.

I took the compazine the minute I walked in the door and took it at exactly four hour intervals.

I also never let my stomach get empty... I forced myself to nibble.

I hope this time will be easier!!


__________________


WE WILL PREVAIL





Cherlilly

Goddess
Registered:
Posts: 143
Reply with quote  #8 
Is compazine a generic name?  She has never mentioned that one. I take the Emend and Dexamethasone (spelling) and Lorazipan if needed and they gave me a prescirptiion for Zofran to take on day 5 if needed.  Said the Aloxi will stay in my body for 48 hrs.

Heading to bed.  Been a long day.  I almost threw up the whole time the RN was putting in the Adrymycin.  I just couldn't look at the red bottles.  She had to cover them up.  She said many have that problem and it stays with you.  I believe it will.  I cannot look at even something with red on it and I don't think of chemo.  This does a head trip on you doesn't it!!!!!!

I am nauseated unfortunately but I am hoping I wake up feeling much better.

Cheryl

__________________
DX 8-14-07
Invasive Medullary Carcinoma
Triple Negative
Stage 1c
Grade 3- Poorly Differentiated
Lymph Node-Negative
nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #9 
cheryl, I don't know the generic name for compazine but it is a very common drug.
If I were you I would take the ativan before you need it- not "in case"...
Also, there is no reason to wait five days to take zofran! That is crazy. You can take it tomorrow. I had it for second day emergency use.

This is what my onc did:
He gave me oral compazine and also the suppository. That was to be used in case I got so nauseated I couldn't keep anything down.

Please give your onc a call tonight- it isn't that late- let his service know that you need something for "break through" nausea and ask for compazine... then take it like CLOCKWORK- BEFORE YOU NEED IT.
And it will really help.

But Cheryl.... YOU DID IT!
YOU FINISHED CHEMO!!!

CONGRATULATIONS!!!!!!!



Love, g


__________________


WE WILL PREVAIL





Cherlilly

Goddess
Registered:
Posts: 143
Reply with quote  #10 
The oncologist and the pharmacy guy that comes in and talks to you about any drug changes both said that Zofran and Aloxi are in the same family of drugs, but Aloxi is proven to sometimes work better for people?????  That to be determined by me as to how it will work.  If I am still nauseated she said by tomorrow afternoon at the latest it did not work.
She and the pharmacist said that the Aloxi will stay in my body and KEEP working for 48 hrs. and that is why I am not to take the Zofran?

Isnt the dexamethasone and Emmend for the breakthrough neausea/??
Neither of them seem to do a thing though!!!

I was just looking at my bloodwork which I get a copy of and have some concerns!
My lymphocytes, monocytes, both absolete and electronic are either doubling or marked int he HIGH or LOW range. 
Also my WBC went from 4.8 to 5.3 this time???
RBC ok......3.98
But RBC distribution is 16.4 HIGH
PLATELET COUNT went from 283 TO 409???????????  Does anyone know why?

AND.........I have 2 new lumps.....same breast as lumpectomy that I am going to be getting an ultrasound on January 10th.  One is pea size and the other seems bigger.  RIGHT ABOVE my lumpectomy scar.  I got clear margins.  Oh I pray this is a cyst and scar tisue or something.

Yep, I pray I am done with chemo for a long time.  I got a cool certificate to prove I did it!!!!

Cheryl

__________________
DX 8-14-07
Invasive Medullary Carcinoma
Triple Negative
Stage 1c
Grade 3- Poorly Differentiated
Lymph Node-Negative
nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #11 
Dear Cheryl,
I was told the same thing that Aloxi is the same family of drugs as zofran, but my onc said that I could take it the next day.

When I did chemo the first time, six years ago, they didn't have emmend or aloxi. I was really really sick.

Emmend is a preventative. So, too, is Aloxi. But Compazine really does work on break through nausea.

I found the best way was to take it no matter HOW I felt. My onc also insisted on the Ativan too. He said it works very well with nausea and it does. Don't worry about becoming addicted to it- you won't. Trust me.

Now as far as your lumps go...
Why does this happen to everyone? I had lumps after my lumpectomy six years ago and his time I have them under my arm. For some reason it can happen. YOU GET LUMPS... but the chances of you being on chemo and getting a new cancer growth are very very slim. But, unfortunately we get the begeebers scared out of us when we are at our most worn out and vulnerable.

It will be ok!

I hope you can get ahold of your doctor and get some compazine.... both oral and suppository.

Hang in there Honey.  This is the last one you will have to get through.

((((Hugs)))))
Love,
g


__________________


WE WILL PREVAIL





bac10

Avatar / Picture

Goddess Forever
Registered:
Posts: 203
Reply with quote  #12 
I agree about taking something before you need it especially considering how much nausea you've had.  My doctor emphasized this to me over and over again.  I got zofran IV with my chemo and was told I could take it even that evening if I needed it. 

It's strange that you bring up what this can do to your head.  I was talking to the chemo nurse yesterday about the nausea when I eat.  She didn't doubt it but said it may be that because I got so sick with the chemo that my body just says no to all food now.  I'm still eating but am nauseated for about 30 minutes after every meal.  She told me that they have one patient who throws up in the parking lot before she comes in for every appointment.  She finished treatment a year ago but it's still playing with her mind.  Sadly...I believe it. 

I also pray that I never need chemo again.  I don't know if I could go through that again. 

Good luck this time.  I hope this treatment is a little easier on you.  ((())) 

__________________
Bev

nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #13 
Bev, I can't stand the smell of plastic wrap! The smell of it reminds me of something I smelled during chemo.

__________________


WE WILL PREVAIL





bac10

Avatar / Picture

Goddess Forever
Registered:
Posts: 203
Reply with quote  #14 
Gina...I think I'm going to feel that way about hats.  I've never been a hat person but I'm not comfortable just going bald (and it's too cold ).  My wig is even more uncomfortable.  I don't think I'll ever wear a hat again after I get some hair back. 

Same for chicken noodle soup.  Even the thought...yuck!



Cheryl...I hope you're feeling OK today.   ((()))

__________________
Bev

nosurrender

Avatar / Picture

Moderator
Registered:
Posts: 7,476
Reply with quote  #15 
oh I know! One of these days i am going to forget and walk outside with nothing on because the first thing I do when I come home is take everything off my head!

__________________


WE WILL PREVAIL





bac10

Avatar / Picture

Goddess Forever
Registered:
Posts: 203
Reply with quote  #16 

Until today I haven't driven at all since my first chemo treatment.  I was too sick, fainted a few times and just didn't feel safe behind the wheel of a vehicle so my family drove me anywhere I needed to go.  We got several blocks away from my house one time when I realized that I didn't have a hat on.  I made Katie turn around so I could come home and get one.  I do walk out in the yard bare headed and get some strange looks from people passing by.  I just smile and wave.      


__________________
Bev

Naniam

Goddess Forever
Registered:
Posts: 1,341
Reply with quote  #17 
Must say I loved hats before and I still love hats. 

Bev, I feel like you do about chemo.  I've often wondered if I could do it again, I say no, but then if I'm faced with it ----   I just hope I never have to find out. 

Like all of you I would sit and watch the "red" bag hung and going in the IV.  Each chemo treatment seemed to get longer and longer - I learned to hate that bag of red.

Glad that the chemo is over - that is a BIG step. 

Brenda

Indigoblue

Avatar / Picture

Queen Blue Sky & Golden Light
Registered:
Posts: 1,681
Reply with quote  #18 
I always imagined the little red bag of poison as cherry cough medicine, and ate and drank cherries, cherries, cherries...cheery cherries.
 
The colors still triggers a feeling of nausea; and so does the smell of plastic.
Thank goodness, I still love cherries, cherry cough syrup, cherry candy and cough drops, and cherry blossoms!
 
Went to the Oncologist today; Everything appears "NED".  Dr. Blue Eyes tells me we begin counting our "NED" the day after our last chemotherapy treatment.  Mine was on my mother's birthday when she was living  ( she died from IBC).
 
It is almost 18 months for my NED.  I was counting from the surgery date sometimes, and then the final Radiation treatment. I am glad to have that question resolved...at least I hope another opinion or controversial objection doesn't change what I think is the correct way to tack one's NED.
  
Funny, time has flown by so fast; I remember before surgery and most of the time passed is blank, like living in the mountains.   I don't remember 2 summers; So this August will be the two year mark. 
 
I asked why I was not given the newest , less toxic "gold standard" versions of Adriamycin, Cytoxin,  and Taxol, (Abraxane).  Apparently, patients are only given these treatment under special circumstances, such as; when the first line of drugs are ineffective, or they have metastasized.  Also, these haven't been proved entirely as to how safe or effective while  clinical trial testing is processing results to prove whether or not these new/old chemicals actually work at eradicating cancer cells; and the long term side effects continue to be studied, as well.  
 
I wanted to know why "triple negative cancers" are given  the "current standard" treatment...I reminded him that "let's not forget the additional cost, for example; Abraxane costs about $20,000.00/treatment...After all, I consider triple negative hormone receptor disease a definite peculiarity and "special" aggressive, difficult to control form of breast cancer.  Treatment...I don't think we really have so-called "choices".  They just like us to think we do (unless we're billionaires or famous).
 
I love Dr. Blue Eyes...  he is brilliant, sweet, and explains things well.
He can't help it if the "system" forces him to used specific medications.  If Oncologist's don't follow the FDA's rules and protocol, they would lose medical license, and/or worse.  Oncology is a difficult profession, no matter who is working within it's bounderies.  Nurses, receptionists, researchers, pharmacists, even the pharmeceutical industries.  Does anyone not know someone with some kind of cancer in need of chemotherapy, etc.?

I can't imagine the emotions, pressures, headaches, stress and the incredible knowledge on must have to meet the criteria to specialize in any form of Oncology.  True "Medicine Men and Women".  However I look at it, if you've found a compassionate, intellectual Oncologist, it is a blessing and the angels are watching over you.
 
Love, prayers, hope, (((((gentle hugs))))))
 
Indi

Cherlilly

Goddess
Registered:
Posts: 143
Reply with quote  #19 
Indi,

Congratulations on being NED for as long as you have.  I am sure it will continue for you!  I am triple negative and was given adriamycin and cytoxin.  What are the first line of drugs???
I had really wanted the Carboplatinum (spelling) drugs as they seem to be so effective for triple negs.

I also just asked the question on here yesterday as to when do you start counting you are NED?  So your oncologist told you from the last chemo treatment and not after your last radiation?

"G" said that it starts the day you are given your diagnosis.

There is a few months or more between diagnosis and last day of chemo treatment.  It is still so puzzling why oncologists all give different answers.

I haven't asked mine yet but am going to and will let you know what she says.

Good thoughts coming your way for staying NED forever!

Cheryl

__________________
DX 8-14-07
Invasive Medullary Carcinoma
Triple Negative
Stage 1c
Grade 3- Poorly Differentiated
Lymph Node-Negative
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.