Sign up Calendar Latest Topics
 
 
 


Reply
  Author   Comment  
Naniam

Goddess Forever
Registered:
Posts: 1,341
Reply with quote  #1 
Sitting here with my compression sleeve on, I found an article in current issue of MAMM .  It is titled : The lymphedema diet

Since I'm not sure it would be OK to copy and paste the article here, I'll just give you the link:
http://www.mamm.com/news.php?&newsid=3



Naniam

Goddess Forever
Registered:
Posts: 1,341
Reply with quote  #2 
For months I have been trying to wear the compression sleeve and gauntlet that was measured and specially made for me.  It NEVER fit.  I'm right handed and I've always been active outside and with running a sub, pizza, salad place it gets lots of use.  If I tried to wear the sleeve, it fell down to my elbow.  I hurt but couldn't wear the darn thing.

Yesterday, I had enough.  Went to the pharmacy close by that has certified folks there in BC garments.  The girl ask me there if my sleeve was just made to use to my elbow. No, they said I needed the gauntlet to meet the sleeve so the hand didn't swell.  For the first time in about a year that I have tried to wear the other "special order" stuff.  I have a sleeve that actually fits, doesn't fall down.  It is longer and so much more comfortable and my arm feels better. 

So, have a question.  Since I never could wear the other one, I have forgotten much that I was told.  I do remember I must wear it if I fly - no exceptions.  That is about it.  Do I wear the sleeve every day, take it off at night; only when it flares up; or when I am doing lots of arm movements, like gardening?  

Brenda

DoreenF

Princess Kindheart
Registered:
Posts: 974
Reply with quote  #3 
Hi Brenda -  I wear my sleeve and glove every day -  from the time I get out of the shower 'til I go to bed at night ..   at that point I put my night sleeve on.  I know some people get by without wearing the gauntlet - and others can go days without wearing their sleeve.     

I think you can experiment and see what works best for you ...  for me -  if I don't wear my sleeve - my arm feels heavy and gets tired VERY quickly.  

For certain you want to use your sleeve/glove when you are doing an repeatitive motions -  gardening, exercising,  moving things around ...   I typically wear a latex or nitrile glove over my gauntlet when I'm working with water, cooking or doing anything outside -   

Bottom line - the answer is "it depends"  -  mostly on how well you've got your lymphedema managed - and how much your arm, hand bother you if you're not wearing the garments.  

when I order my sleeve I have them put a band on it - the band goes around my torso and helps to keep my sleeve in place.  I use bio-concepts compression garments as my day-time garments -  the fabric is nice - particularly in the summer -- and you can order the garments in about 30 colors!!  To top it off - it's an american company - out of Arizona....

Hope this helps,
Doreen


__________________
"Cancer May Leave Your Body, but It Never Leaves Your Life" - Lance Armstrong Foundation Manifesto.
Naniam

Goddess Forever
Registered:
Posts: 1,341
Reply with quote  #4 
Doreen,

It does, thank you for taking the time to answer.  The special order one had a band at the top and the "gripper" type backing but it just would not stay up and there certainly wasn't any compression.  At work, scooping ice for drinks, wipping down tables, sweeping, my arm is constantly in motion and it was hurting.  The sleeve I'm wearing now has a band at the top AND the bottom, is longer and fits better.  Made by a local company - Jobst.  The other sleeve and gauntlet were by Juno.

Thanks again.  I do appreciate your help.    Brenda

wildabouthorses

Avatar / Picture

Paparazzi Princess
Registered:
Posts: 1,895
Reply with quote  #5 

I have the Jobst sleeve, needed it for when I flew to San Diego. I haven't used it otherwise for anything else. So you recommend wearing it during repetative motion work?


__________________
Jan
"Photographers see more than others, not because they have better eyes, but because their eyes are always open."
cowgirl

Avatar / Picture

Goddess Forever
Registered:
Posts: 712
Reply with quote  #6 

I have heard of using Vet Wrap to wrap your LE arm. There is a medical wrap but Vet Wrap is cheaper to buy.


__________________
http://brazoscowgirl.wordpress.com/
cmb35

Avatar / Picture

Goddess Forever
Registered:
Posts: 312
Reply with quote  #7 
Hi Girls,

I have a LE question. I don't have noticeable swelling, but I do have swelling that I can feel. It' primarily along the inside of my arm and side, from armpit to elbow. I frequently have that very heavy feeling, and the tired, achey feeling, and sometimes a burning feeling. I try to be very careful of my arm at all times.

I have never had a compression sleeve, and I'm not sure if I would benefit from one given my symptoms, or if they are really only for cases with noticeable swelling. Are they ever used as more of a preventative measure?

Thanks for your input!

__________________
Colleen
Warren's Mom Has Got It Going On!
DoreenF

Princess Kindheart
Registered:
Posts: 974
Reply with quote  #8 
Hi Colleen -  many times Lymphedema "presents" exactly as you've described -   you may think that the swelling isn't visible -   but if you went to see a lymphedema therapist they measure many points up your arm - and compare to the other arm -   they will then know for sure if there's any swelling.   My swelling has never been extreme - I wear my garments and I'm careful with my arm. I think that that has gone a long way to keeping my lymphedema managed and not letting it progress or get out of control. 

If you do decide to get a referral to a lymphedema therapist - they will cover the prevention guidelines with you, they'd measure your arms and  if you have LE they  will  teach you how to do the manual lymph drainage (MLD or CDT) and probably some exercises as well.  They'd also measure you for a compression sleeve and glove. the compression garments really help my lymphedema -  I do not have the heaviness, or pain in my arm when I wear the garments. 

The swelling is a pain -  but its' the risk of infection -  cellulitis - that scares me and keeps me compliant with wearing my compression garments.

Doreen


__________________
"Cancer May Leave Your Body, but It Never Leaves Your Life" - Lance Armstrong Foundation Manifesto.
Previous Topic | Next Topic
Print
Reply

Quick Navigation:

Easily create a Forum Website with Website Toolbox.