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nosurrender

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Reply with quote  #1 
Sometimes it feels uncomfortable to post about mets. You feel like you may be scaring the newbies or the girls who don't have mets.
Well, we are all just an MRI away from the same dx.
Say whatever you want.
Get all your fears out.
You can't scare us- we are your sisters and  you are safe here.



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WE WILL PREVAIL





CalGal

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Reply with quote  #2 
Mets ... the club no one wants to join ...

I was dx'd 12/05 with recurr bc and mets to the liver.   Hearing metastatic is terrifying ... but I've been living and really enjoying life despite that ...  As of 6/30/07, I've been 1 year NED for liver mets! 

Unfortunately, in 7/07, I was dx'd with a lung met ... but my liver is still clear!

I feel lucky that I'm in a support group for women with mets (any type of cancer), although on any given week, all or all but one of us, have bc mets ... Oddly, the group skews younger too ...

CalGal






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BRCA1, triple neg.
1st dx - 9/04 (bi-lat lump's, clear SNB, 38x rad'tn). Mets 12/05. Liver met, then NED for 13 mos; then a lung met; now liver mets are back.
nosurrender

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Reply with quote  #3 
Hi Calgal!
I am SO GLAD you found us!!!
There are a few metsters who have joined or are going to join so this space should be fairly active.
I hope you are feeling well and things are on course for you.
Love,
g


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chemoabi

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Reply with quote  #4 
Calgal:  Im sending you the biggest hug!  We are all sisters in all different stages - and we support each other through it all.  Sounds like you have been on a terrifying roller coaster ride.  So sending some love your way.



Nicki

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Reply with quote  #5 
Hi Calgal,

I have followed some of your posts on BCO and YSC.  I am always hoping to read from good news from you.  Glad you are here.

Newter


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Reply with quote  #6 
member of the club also although I would love to get kicked out of it.

04 breast cancer
06 mets to bone and liver
Friday found out liver and bones are still good and no progression but mets to the lungs. 

the fun never stops!
Amy
CY

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Reply with quote  #7 
I too have heard those words.
Original dx was 10/05
Mets to liver DX 4/07
I will fight on as I know each of you will too!
Live every day to the fullest. Remember the it could be anything that stops our days on earth not just cancer. It just gives you one more reason to fight harder!

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Cy,
Smile you'll make someones day!
nosurrender

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Reply with quote  #8 
Hi my mets heroes!

Can any of you tell me about Xeloda???

That may be next on my dance card.


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fd411

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Reply with quote  #9 
I started out with a low dose because I was also on Navelbine. The side effects weren't too bad; Hyperpigmentation on the hands and feet. The one thing that got to me is remembering to take the pills and having to take it within 30 minutes after eating. And that you have to take it with alot of water.

When I graduated to my calculated dose, I got the hand/foot syndrome. It made it hard to walk and touch things by the end of the cycle (2 weeks on/1 off). My hands and feet burned and felt like I had blisters on them. My hands and feet are really dark now. It did affect my taste buds and gums. They got sore and food started to taste a little bland by the end of the cycle.

I had progression with Xeloda, so I'm not taking it anymore. I hope you have success with this drug Gina.

Ferne

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