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Sandy

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I have a low grade, non invacive DCIS cancer in my right breast.  I'm less than an "A" cup in my right size.  A size "A" in my left best.

I've been leaning towards doing a double mastectomy so I get rid of any chance to having cancer again.  My mother's brothers have died of cancer lymphatic, stomach and colon.  Not breast cancer history.

When I saw my doctor she said that if I was going to have a lumpectomy she didn't recommend an MRI.
Today, after I told my doctor yesterday about having the double mastectomy, my doctor's nurse call me saying that she wants me to decide if I want to do a MRI in my left breast or just wait to she can check the satellite lymph node, during surgery.  She said it was up to me.. like she does not want to take responsibility for the decision, but didn't say what was her professional recommendation.  I don' know what to do.  Please help.

mrsb

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Reply with quote  #2 
Hi Sandy welcome. i just wanted to say hello and will come back  tomorrow and post. I am sure others will also be along by the morning.You are doing the right thing gathering information before making a decision.Shelagh
mrsb

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Reply with quote  #3 
Hi Sandy I am hopeful soemone will be along soon that had dcis/lcis. I myself had invasive cancer that was first treated with al umpectomy and then a mastectomy. I had immediate reconstruction with my mastectomy. I researched my options this is a great site as is breast cancer.org.It has many members in common. I think if it were me i would want an MRi of both breasts before i proceed.do lots of readign here and other sites and make a long list of questions for your surgeon. Good luck hope this helps a little .things are scary right now but  will improve once you have some answers and have made your decision.Hugs Shelagh
ChrissieD

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Hi Sandy,

I would think if you decide you are going to go forward and have the bilateral mastectomy you would not need the MRI.  My understanding is that is is used to give the patient additional information when making a surgical decision.  If there was only one area of DCIS and nothing else suspicious the surgeon might advise you to have a lumpectomy.  If, however, the MRI showed other areas of DCIS and or it was extensive the surgeon might have a different recommendation.  I would certainly ask the surgeon the pros and cons of the MRI and what value there is in having it given the surgical options. 

~Chrissie 
nosurrender

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Reply with quote  #5 
Hi Sandy, Welcome

DCIS is a very confounding cancer.... what to do-what not to do.... so frustrating!

Here are some things you should condsider:

1. The cancer history in your family. Hereditary breast cancer is tested with a blood test. Before you go, you meet with a genetic counselor who does your family tree with you. I had that done. We had a lot of colon cancer, in the family, not direct, but uncles, etc. There is a link to BRCA1/BRCA2 gene if you have certain types of other cancers. So, I would speak to the doctor about this and see about the genetic testing. If you test positive, that is a vote for the bilateral mastectomy.

2. Have they tested your tumor? Do you know if it responds to estrogen and progesterone? Or is it what they call a triple negative tumor, meaning it does not respond to hormones or the HER2/nue gene. Also, is your tumore HER2/nue positive? If it is, then you would consider a drug that help eradicate that. If your tumor is estrogen/progesterone positive, there are drugs you can take to control that cancer. If your tumor is Triple Negative, you would need to consider an agressive approach. This cancer can be beaten if you knock it down when it is found very early. DCIS means your cancer was still contained inside the milk duct which is great. It has not invaded your breast tissue. You also may want to consider the bilateral mastectomy if your cancer is triple negative, as well.

3. No matter what you need scanning. I personally think you would be better off with a PET scan. Since you have small breasts, the breast MRI may be hard to read, which is why your doctor may be hesitating. But you need to know if there is cancer anywhere else in your body and a PET scan will do that. You may have to fight for it- but do so. If anything, it will give you tremendous peace of mind when you find it is clear, and then you will be able to make your decision with more information.

I hoped that helped! Good luck to you. Don't be afraid to fight for what you want. This is YOUR LIFE and the doctors WORK FOR YOU.

hugs,
g


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Sandy

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Reply with quote  #6 
thank you so much to all of you for your advise. it is highly appreciated

The pathology report came back positive, so the doctor told me that I can take one of the medications to block estrogen for 5 years to prevent the cancer to come back. 

My cancer is very small, but I'm afraid that if they do the lumpectomy and radiation the right side will be almost in-existent.  It is small already... now with radiation it will be even smaller.

I don't want to put implants when i still have brest because i read that it is difficult to identify cancer with the implants.  that's why I'm leaning towards the double mastectomy.

I'm going to ask my doctor for the PET exam.  Not sure what it is but will research it right away.

I'm a very practical person.  Usually, i don't hesitate to make decisions.  This don't know what to do is killing me.  I also suffer of depression. I have been in medications for the past 6 years. Now, i see how my depression is also trying to come back.  Some days, i'm fine ready to fight the cancer.  other days, i'm very depressed and just want to get rid of both breast.


 



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