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csp

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Reply with quote  #1 

Hi everyone,
I had my first appointment with my LE therapist last week for the Lymph edema in my foot, leg and hip. I was really excited to start and get some relief from pain and be able to bend at the knee without feel like I was tearing something apart and relief from all the tightness and heaviness.

My therapist Heidi is a sweetie, She started my therapy by measuring me from my toes all the way to my hip, then wrapped my foot and leg with first a netted stocking , foam , cotton and finally an ace type wide bandage then she put netting over the very top of my leg to help it from slipping down. She said she could wrap my toes individually but it makes most her patients crazy, and did not do that. She asked me to keep the wrap on until my appointment the next day if I could stand it. During the evening I started to get itchy places, Good gravy I hadn't thought about that happening!! Nearly drove me to madness with all that padding I just couldn't get a good scratch. But I was a good patient and left it on until I saw her the next day.

When she unwrapped me to measure I was amazed my foot and toes and ankle looked normal again ( minus the wrap marks lol). I had the first sighting of a knee cap I hadn't seen in months, and although still pretty large my thigh had some give and was softer. My hip is still hard but softened after a couple more wraps.

Next she got me all comfortable with pillows a sheet and dimmed the lights.
I was thinking oh good here comes the relaxing part the LE massage..
She surprised me by starting across my chest and under my arm on the same side as my LE it was gentle half circle movements  .

I was just getting relaxed when she went to my feet and ankles and started up my leg . Oh my stars it hurt so bad, she stopped right away.She said this should not hurt and tried again even more gentle. OUUUUCH! So she went and got a frozen dixie cup and rubbed it over my scars and leg to try and numb it OUUUUCH! She told me I had such a deep wound and so many surgeries that my nerve endings were very sensitive.She also told me that my scars were very hard . She asked me if I wanted to stop but there was no way I want to postpone this I am sick and tired of this swelling and pain and stupid purple foot!

When we were done with my second appointment she told me to start rubbing my skin gently with different textures when my bandages were off.like terrycloth, silky, and work up to a baby brush to try to desensitize.
So far that is not working. I am going to ask my PS if there is something I can take for nerve pain? She is also working on my scars to soften them.

I ask her to talk to me to keep my mind off the pain of the massage and it does help. She feels bad, but it's not her doing it too hard. After she is done she helps me bend my knees up and has me do deep belly breathing.

Anyone else have pain with LE massage, and what did you do for the itchies?

Lv&Hgs,
Carrie

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courage does not always roar. sometimes courage is the quiet voice at the end of the day
saying.. i will try again tomorrow.
~maryanne radmacher
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Reply with quote  #2 
I love you Carriokie!!!!!!

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csp

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Reply with quote  #3 
I love you too Gina

I went to see my PS today, and we talked about starting a medication for nerve pain. I go see my Primary Thursday.


Carrie


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courage does not always roar. sometimes courage is the quiet voice at the end of the day
saying.. i will try again tomorrow.
~maryanne radmacher
Limner

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Reply with quote  #4 

Sounds like real progress Carrie - Touch is very healing, too - Love, Mary


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