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onecent

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Reply with quote  #1 
I have been following along but not writing much.
We have had quite a bad bit of weather here and had some damage to our roof.
I have finished the adria and sytoxan and have started taxol. I'm doing ok. Tim was great helping me and TJ shaved his head which really touched me. Tim didn't have to shave his head since he is already bald!
I look just terrible.
My face has the worst consistency to it.
I don't know what to put on it because the chemotherapy has made me allergic to a lot of things and I can't stand the smell of soap or anything. It makes me gag.
I don't have any eyebrows or eyelashes either and that is making me feel worst.
We decided to go ahead and have the family here for Christmas like we always do. So now we are trying to figure a way to get things organized.
I just wish I didn't look so sick for when my family sees me. Most of them have not seen me since before I came down with cancer and I think I will be a shock to them.
I like my wig. Thank you for telling me to get my hairdresser to style it. That makes me look normal. But I take it off as soon as I come home because I get very hot and itchy in it.
How long does it take for eyelashes to grow back? Is that why my eyes are watering so bad?
I just want to thank all of you here. I don't write but I read you everyday and you have kept me entertained, and made me laugh. You also have cheered me up a lot. I am so glad I found you.

Merry Christmas almost!
Penny

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onecent

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Reply with quote  #2 

error- I took cytoxan not sytoxan. typo


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Cherlilly

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Reply with quote  #3 
I am taking the same thing.  Have one more treatment to go.  I haven't lost my eyelashes or eyebrows yet.  DId you have more than 4 treatments?  I was hoping I wouldn't loose the eyebrows or eyelashes.  When did you loose yours.  Defnitely lost the hair though!
I am day 10 from last treatment and feel pretty good!  Other than weak.  Do you worry what all it did to your body.  I ache and my vision is so bad (which should come back around after tx)  I do have a funny taste too.
Nice to hear from you!
Are you doing radiation?  I am triple negative so no more treatments will work for me except the radiation.  (35 times after finished with chemo)
Praying this all worked and I can live a few years with no worries of it coming back somewhere else.  Just want a little break before that would happen if it does.
I am amazed at the amount of BC that shows up in other places.  It is so scary.  BUT.........new treatments are on the horizon every day. 
Cheryl

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DX 8-14-07
Invasive Medullary Carcinoma
Triple Negative
Stage 1c
Grade 3- Poorly Differentiated
Lymph Node-Negative
onecent

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Reply with quote  #4 
Hello,
I had 4 treatments and two taxols treatments. I only lost my eyelashes and eyebrows after I started the taxols.
I am negative too!
I am worried about what it did to my body, but when I look at my son I am glad I did it. I really want to see him grow up and get married and make me a grandmother!
I had some very weak days on the first chemo not so bad with the taxols. My hands hurt on this one.
Tim, my husband, is a great cook so he tries to make sure I eat but every time he cooks the smell makes me gag. I think he is insulted. I try to tell him it isn't him or his cooking but he is starting to get real upset when I open the window the minute he truns on the stove!

Penny


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Cherlilly

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Reply with quote  #5 
Penny,

I am a grandma and plan on being around a very long time too!  We will! 
Sounds like you have a wonderful husband!  My husband I think for the first time in 31 yrs. of marriage is now going to the grocery and cooking which I am praising him bigtime so it will continue after treatments

I asked my oncologist about getting another dose of something once I am done with my 4 tx's of ac and cytoxan, but because my tumor was 1.2 she did not feel it was necessary to do more than what I am doing, also node negative.  You always wonder if  you are doing the right thing.  I guess everyone questions that.  I think it is common.

I hope you are feeling well and just have a wonderful holiday season!  I am getting ready to go out to Kohls which I haven't been out much, trying to avoid the crowds, but just need to run in and get a few things.  I am excited to get out for a little bit.  I feel so good today.

Cheryl

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DX 8-14-07
Invasive Medullary Carcinoma
Triple Negative
Stage 1c
Grade 3- Poorly Differentiated
Lymph Node-Negative
nosurrender

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Reply with quote  #6 
Hi Penny! Long time no see!
I am glad you are weathering the storm of chemo.
Cheryl you are such a doll- I just have to tell you that!

About your skin, yes, chemo does a number on it!
Make sure you stay moisturized.
There are moisturizers that do not have a scent that may good for you.
My family was in the cosmetic business so maybe I should give everyone a little pep talk here!

First, don't waste your money on department store brands. They are all made in the same factory in Edison, NJ and some are put in a regular container and are sold at CVS for $7.99 and some are put in a fancier container and are sold at Saks for $79.99-- exact same product.

When looking for a moisturizer you want something that is appropriate for your skin type- if you are young, don't buy a moisturizer that is made for mature skin because it won't work as well.

The Oil of Olay line seems to always win tests of the best moisturizers
Eucerin is a good, solid moisterizer for very dry skin.
Neutrogena and L'oreal are all good products.
Garnier is gaining in popularity but the scent may get to you.

As far as your complexion, what exactly is happening? Is it dry? Scaly? Irritated?

For eyelashes - OH how I HATED that!! mine have finally grown back for the third time and I pray they stay there! They have never been thicker!

When I had none, I used a very fine artist's brush and wet the tip and moistened some dark eyeshadow and made a very fine line along the base of my eyelid where my eyelashes USED to be. If I had some stray ones I would put mascara on them! The false eyelash route is tricky. I like the individual ones but I hate that permanent glue that they come with! It is like superglue!
So I bought a tube of the regular glue that comes with the strip false eyelashes. I would hold the individual ones with a tweezer and dip the end in the glue and then put on my eyelid.

As far as brows- I used that artist's brush again and used a light brown eyeshadow that I wet and made very fine lines where my brows used to be.

I took some pictures of myself doing all of this in case it was needed. I will try to find them and post them for you to see.

hang in there! You are almost done!!!


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csp

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Reply with quote  #7 
Penny,
From a care giver of someone that was very sick on chemo.
She could not stand the smell of food cooking either. One word...
MICROWAVE! Another trick was to shut her bedroom door and use
the fan to keep the smell away from her, and hurry and get it cooked.
Sandwiches and soup anything I could fix quick for her .
Hope this helps {{{{Penny}}}

Carrie

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saying.. i will try again tomorrow.
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Naniam

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Reply with quote  #8 
Penny,

Glad that you like you wig.  I hated wearing one; bought two and just never liked them and found them to be hot. On chemo, I was hot -guess it was the steroids.  I bought hats and loved them.

Gina gave some good advice on the eyebrows and eyelashes.  I also went to Merle Norman and they gave me a gray eyeshadow looking product and I just used it to brush across my eyebrow line.  That looked good for me - but I'm much older. 

Glad you are through with the Adria and Cytoxan.  I know you are worried as to how family might react when they see you at Christmas.  I found that even though my family and friends knew what I had gone through, once chemo was over they expected my life immediately returned to normal.  Takes the body quite a while to recover - it would be just fine for them to see and understand the chemo harsh realities.  We often try to protect the ones we love from how difficult treatment can be - just enjoy them and yes,
you are going to enjoy lots more Christmas gatherings!!

Wishing many blessings to you and your family this holiday season!!  Brenda
Indigoblue

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Reply with quote  #9 
DEAREST PENNY-ONE CENT...YOU ARE A ZILLION SENSE, CENTS, TO ME.

I had 4 Adriamycin/Cytoxin and 12 weekly treatments of Taxol.
Then the radiation treatments, wanted to get it all done, finished, goodbye, so long, good riddance...

I was frantic about the wig, so frantic, I never bothered to get one.  I remember my mother; she detested the wig...so, as a former glassblower and sculptor, painter, gardener and overall nutcase, I chose to wear shear soft scarves, cotton home-made hats decorated with art, embroidery, beads, and my nieces and nephews help, we made fun out of having silly cancer.  Silly disease....a mean and nasty foe, to which we will laugh in it's face!  Life is not forever for anyone...you never really know when it is your time, anyway.  You may be a fighter, a lucky one, nae beat the beast!
You might live longer than those who are fearing the "cancer" they know they witness, or maybe they don't know.  So, you are you!  beautiful, courageous and walking on the edge of the earth right now.  Just say to yourself, so what?  I can do this, it's easy.  You are beautiful, don't forget it.  You   are  beautiful.   

I used aloe products on my skin during the treatments; amazing...Lilly of the Desert.com?  99% pure aloe and I swear by it.  I also concocted various Lentil Recipes...no one responds when I talk about the eggplant or Lentil Stews...sounds bad, but there are "light" lentils,, and like Tofu, they take in the taste and spices of whatever your pallet craves or desires, while giving you protein, bulk, vitamins and iron, so much more,,,I'd list it all, folic acid, zinc, the list of "goood Lentil Vitamin" is endless.  And, it' is extremely wonderful with controlling constipation and if you go the other way, bread, ice cream, whatever you want to eat, really.  Whatever your nose says:  I like this, is good...stay healthy, drink water, and if you can stand it, electrolytes in the gator aid or the exercise drinks are truly beneficial.  I didn't believe it, until I started drinking healthy, fitness drinks.  I was stunned at how improved the health was when I Began drinking the health food health beneficial drinks and health bars. 

Had to stop eating and drinking it after the Taxol...weighting.  Yikes!
Forgot about it....gain 25 pounds after radiation treatments!  So enjoy!
and remember
You are pretty, beautiful, and gentle thoughts will help you through this time.  You WILL be a grand mommy, and all will be well.  Think yourself through it, and I truly believe the positive thoughts and prayers bring miracles and peace of mind. 

If you don't like the wig, hey, tell your kids, make me a hat!

You are sunshine, I have a feeling you will be Okay...

((((gentle  hugs))))

Indi

deese

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Reply with quote  #10 

Hey Penny,

Hope the Christmas get together was wonderful! I was wary of shocking anyone too but , for the life of me, I don't know why now!!!

My eyes watered like crazy. Appearently dry eyes cause them to water. Ask your onc about some eye drops. My nose dripped alot too!!! Guess that is just from lack of 'nose hairs'! heehee!

Keep up the good work sweetie!
Deese
Indigoblue

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Reply with quote  #11 
Deese, One-cent Penny, G,
 
I completely forgot about the weepy eyes and the runny nose...it still comes and goes...and after burning off my eyelashes in a stupid move using a kiln, I thought they were gone forever.
 
After A/c x 4, Taxol with 12 wkly tx., and rads., they grew back like the lush eyelashes of a child.  Too bad my eyebrows grew in like Groucho Marx...I am now an expert at pluck, pluck, pluck...
 
I used to play the violin, was pretty talented when I stopped the lessons...who knew the "pluck, pluck, pluck" would apply to eyebrows? 
 
And it is an exceptional talent...the tweezer one.
 
Plucking off...
 
Love, prayer, hope a (((gentle hugs))))
 
Indi
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Reply with quote  #12 
Indi, that is how my lashes grew back the last time they fell out- #3- lush like a child like you said. NOW that is all coming out again.

My eyebrows are more like Leonid Breshnev! (I know I didn't spell that right!)
Love,
g


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Indigoblue

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Reply with quote  #13 
Penny, Gina, and all who visit this site:
 
I love having no hair anywhere!
 
I actually asked the oncologist to give me something to make it go away.  Hair is a pain is the follicle.
 
I had long light brown hair when I was young.
So strange how the hormones change our appearance.
It happens, regardless of cancer or not.  Change.
 
Would it not be remarkable if our body rhythms imitated the wildflowers, trees of the winter forest, and the currents of the rivers, oceans, and inland seas.
 
I did not miss my hair.   In facts, I am considering shaving it off and keeping it as short as possible.
It was the the only side effect I loved. 
 
And, I made the hats.
 
Love to all,
 
Indi
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