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bac10

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Reply with quote  #1 
I think about her every day but I don't think she's posted since her last chemo treatment. 

Please check in so we know you are OK.

((()))

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Bev

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Reply with quote  #2 
I am worried about her too.
I hope she checks in!


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Cherlilly

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Reply with quote  #3 
Hi Bev and "G",

I finished my last treatment Dec. 28th.  I won't go into the details, but it was a very mental, emotional one.  Very nauseated the whole 3 weeks and the day of my final treatment.  But, it is over with now.  Still a little nausea, but it is subsiding and now on to radiation.  I don't have the exact start date, but meet with them next week, so I will know next week. 

I have wondered about you too Bev.  I would love to have your email address.  Here is mine if you want to email me and let me know yours.  If not, I understand.  cherlilly12@yahoo.com

I am on 500mg. of Zythromycin because I have a sever ear infection. Just 5 pills.  Taking the last one today, but ear still hurts so will have to go back to Dr. on Monday.  I haven't had an ear infection since I was a child! 

Been walking on the treadmill everyday and need to get off this weight and get my blood sugars in line!  I read where high insulin fuels breast cancer.  I wonder if I caused my breast cancer because of being overweight, no excercise and high insulin.  I have told myself all I can do is move forward and do everything I can regarding those changes. 

"G"  How in the world do you stay at 45 carbs or less in a day???  I went grocery shopping yesterday.  It is going to be hard, but did find some foods.  Breakfast is the hardest.  Carbs just shoot my blood sugar up and I don't want to take medicine for it and want to reverse it by correct eating and excercising.  I have read the boards for the healthy recipies, etc.  Great ideas! 

Also "G" how much flaxseed do you eat a day and what vitamins do you suggest?  How soon after your last treatment can you start taking like the CoEnzyme 10, etc.?

Bev.....have you started radiation yet????  Are you feeling more energy since your last treatment?  My hair is already sprouting up!  hehehe!  I tried to post some pictures here, but my file is too big?  ANd I am clueless about computers.  I hope you had a nice Christmas.  I did.  It was wonderful.  My grandchildren, as I know yours does too, keep me going!  I love them so much.

HUGS and I really, really want to stay in touch!!!!!!!   I am coming to Florida to see my sister in Orlando this year and would love to meet you somewhere Bev!


Cheryl   (SORRY SO LONG!!!!!!!!)

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DX 8-14-07
Invasive Medullary Carcinoma
Triple Negative
Stage 1c
Grade 3- Poorly Differentiated
Lymph Node-Negative
bac10

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Reply with quote  #4 
Cheryl,

I'm so glad you checked in but sorry to hear about how rough it's been for you.  I can certainly sympathize. 

My ears hurt after every chemo treatment...never an infection but they just hurt for a couple of days.  Of course the doctor said it had nothing to do with chemo even though it only happened the weekend after a treatment.  I learned to just ignore that response after a while (and some very weird things that happened after every treatment).  I hope your ear is better soon.

I'm a diabetic and have to watch my carbs very, very closely.  I try to stay within the 40 - 50 range all of the time.  I take two shots a day plus oral meds so it's not worth it to cheat.  I did lose about 20 lbs during chemo but gained about 5 of them back as soon as my appetite reappeared.  I need to lose about 20 more.  I'd like to start exercising since my strength is coming back but I've got a bulging disk in my lower back that causes pain all down my right leg.   Even walking irritates it. 

Breakfast is hard, especially since I'm not an egg person.  I have coffee and maybe a cheese stick rolled up in a piece of ham or a piece of whole wheat toast or some leftovers from the night before.  

I went this past week and had a CT scan done for radiation and got my markings.  It upset me this morning when I saw them in the mirror while I was getting dressed.  I guess I'll just have to get used to it like I did the bald head.  Or...maybe not.  I still have problems with the "no hair" sometimes.  It's just a constant reminder.  I'm having a real tough time with the radiation because I saw what it did to my Dad.  He had prostrate cancer and radiation destroyed his bladder and colon.  He was in constant pain for several years before he died.  I just really, really don't want to do this. 

I am also starting to get some fuzzy hair.  Everyone asks what color it is and is it coming in curly.  Well, it's all gray and it sticks straight out.   I'm just glad to see it!!!

Of course I'll share my email...bacreel@yahoo.com.  I'd love to hear from you and would also like to work out something so that we can meet this summer.  I am in NW Florida though and about 6 - 7 hours from Orlando.  We'll have to work on it.

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Bev

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Reply with quote  #5 
My new hair.  This was taken last week and it's a little longer and a little thicker now.  It's amazing how fast it's growing. 



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Bev

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Reply with quote  #6 
Hello Bev and Cheryl!

So glad to hear from both of you!

Cheryl, I don't stay on 45 carbs a day- I stay under 35 FAT GRAMS a day. Big difference!! With the flax seeds start slowly so your digestive system gets used to them. I would sprinkle a couple of tablespoons on my cereal in the morning to start.

Don't start any supplements until you are done with rads. My onc was adamant about that.

I am so glad you went the distance and finished everything!

Bev, you got fuzzle! I had fuzzle and the next thing I knew it was more and more and now I would say my hair is almost an inch long! I am using Nioxin shampoo and conditioner and it really grew once I started it.

I finished my first week of rads and I am no worse for the wear.... I must say this is SO DIFFERENT from six years ago! They have really improved things. We'll see what happens.

BUT BE SURE YOU GET THAT BIAFINE CREAM. Better safe than sorry. Maybe I am doing so well because THIS time I started using it from the start.

Look at us three- all done with the blasted chemo and now on our rads together!

I couldn't ask for better company!!

Love to you both,
Gina


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CommandoBarbie

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Reply with quote  #7 
Good morning! I hope you don’t mind if I pop in here, but I wanted to add my .02.

I finished Rads September 11th. I didn’t think I would ever get done! The absolute worst part is the fact that you have to go every day! Bev, ask your Rad Onc to show you your plan. I was freaked about it as my rads were on my left side really close to my heart. Then my Rad Onc showed me my plan and how the beams would  not touch my lungs or heart. The digital imaging was very cool, and it really put my mind at ease. Also, whatever creams or oils are recommended for your skin, keep ‘em in the fridge! They will feel so good on your skin! I am very fair and never blistered. At the end, I just looked like I had a real bad sunburn, It cleared up really fast once the tx ended.

Hair – I started getting the 5:00 shadow hair during Taxol. I had a friend at work who had been thru chemo and he told me about Nixon. I started using it during my last two txs and couldn’t believe how fast my hair came in. I actually still use it sometimes now,. My avatar picture was taken the first week in Oct. I need to update it as you wont believe how much hair I have now. Also, don’t worry about the color. First mine looked colorless, then white. I was previously a natural “dish-water” blond, but it came in much darker. I left it alone for a while, now I’m playing with color to look more like "me."

Everyone in tx is in my daily thoughts and prayers. I cant wait til you are done too!

((Hugs!))


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Cherlilly

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Reply with quote  #8 
Bev......I was so glad to hear you say your energy was returning.  I hear ya about starting radiation!  I go next week to hear all about it and get my lst appt. set up.  "G", you and I are in this together!  We can do it!  God will protect our heart and I do feel radiation is a very necessary step in doing what we can.  Then, just think we will be all done by the end of February or the lst of March!  Just in time for spring and new beginnings!

"G"-  Thanks for letting me know about the flaxseed and to take it slow.  I just bought some.  It is ok to take now isn't it?  Also, thanks for letting me know about any extra vitamins right now and holding off until after radiation.  WHAT TYPE OF BRAS or tops do you suggest during radiation?  Do you need a prescription for the Biafine?  I haven't read the lst thing about radiation because I have just tried to get through chemo.  Any other suggestions?

Commando Barbie - What a great suggestion about putting the creams/lotions in the fridge!  I will definitely do that!  Did you wear anything specific as far as a certain type of bra or tops?  Any other suggestions.  Sounds like you had a pretty easy time of it?  Did you get any nausea from radiation?  Was your fatigue bad?



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DX 8-14-07
Invasive Medullary Carcinoma
Triple Negative
Stage 1c
Grade 3- Poorly Differentiated
Lymph Node-Negative
CommandoBarbie

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Reply with quote  #9 
Hi Cherlily!

Yes, definitely do the "fridge thing!" As for bras/clothing - I went out and spent a small fortune on soft white tees, camisoles, and bras that were more like half tee shirts. I hardly used any of it! I had two older bras that were soft and well worn and they were perfect. My rads were at 2:30 pm everyday. My Rad Onc didn't want anything on my skin for 8-10 hours before rads. However, I get up for work at 4:00 am (yuck!), so she encouraged me to put aloe on when I got up and pure vitamin e oil when I got home. They worked great, but did ruin those two bras by the end of tx. If you do buy anything new, remember to stay away from underwires.

I had no nasuea, or any other side  effects, except for fatigue. Fatigue is something I still struggle with, but that's in part because I have Rheumatoid Arthritis and a big side effect of that is fatigue. So between my RA, chemo and rads, I was pretty beat. I did work all thru tx, but only about 5-6 hours a day; and I was able to relax and just veg when I got home.

It's definitely do-able and went a lot faster than I would have believed.

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Cherlilly

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Reply with quote  #10 
Commando Barbie,

I have heard that Rheumatoid Arthritis is painful and does effect your energy.  I am so sorry you are dealing with that.  However, SO HAPPY you are all done with your treatments!  I wish you just the best 2008 and that each day you feel better and better.  It must feel so good to be all done.

Pure Vitamin E oil?  I guess you just get that at the store?  I would think that would get all over your clothes and bra?  The oil?  Did you use the Biafine cream? 

I will let you know what they say this week as far as what to do.  Isn't it funny how each one hears different things. 

For sure, I love the idea of putting whatever I use in the fridge to make it feel good and cold when you put it on your skin.

Thanks for the info about the bras.  I do NOT want to spend a fortune!  LOL!  I have 2 well worn bras that I love because they are SOOO comfortable and NOT underwire so that is perfect!  YEAH!

Have a great week and thanks for the info!

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DX 8-14-07
Invasive Medullary Carcinoma
Triple Negative
Stage 1c
Grade 3- Poorly Differentiated
Lymph Node-Negative
bac10

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Reply with quote  #11 
I have used Vitamin E oil on my nails since I started chemo because they were so dry.  I use the capsules and just punch a hole in one end of it.  My nails have ugly ridges on them now but you can see where they are growing out since I stopped chemo.  It's all new smooth nailbed!  It soaks in pretty fast, Cheryl.

I'm glad to know about putting whatever you use in the frig.  We do that in the summer for the occasional sunburn from a day at the beach.  Cold aloe sure feels good.

I switched to a front hook sports bra right after my lumpectomy because my other bras hurt me too much.  The top of the old bras hit right where the scar is from removing my lymph nodes.  I'm hoping to be able to continue wearing the sports bras because they are so comfy. 

I have a bulging disk in my lower back that's giving me trouble so last night I took a pain pill and a muscle relaxer.  It's made me feel icky all day.  I did get up and go to church this morning but could hardly keep my eyes open during the sermon.  I went back to bed as soon as we got home and slept until 3 this afternoon.  Unheard of for me.  I'm so tired of things going wrong and then the meds the doctors give me making me feel worse. 

I also started taking Arimidex today.  I wish I felt better about this drug. 

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Bev

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Reply with quote  #12 

As for bras.. I decided not to wear on! I worn camisoles withthe built in bra shelf and men's undershirts. Actually, I still rarely wear a bra. Why bother?

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Reply with quote  #13 
Bev, Arimidex give you a LOT of protection... think of it as an insurance policy.
Lori, I don't wear bras anymore either!
When i had rads the first time, aloe didn't do a thing for me. but I think that rads have changed drastically!


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FLLoriK

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Reply with quote  #14 

Thinking good/positve thoughts today for you!  

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