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BossyRenee

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Reply with quote  #1 
Hi All!

I'm new here and have questions concerning fatigue from rads. I will be starting rads within the first few days of April. I live about 45min from the center where I will be receiving treatment. How soon does the fatigue kick in? Will I have time to make it home or is it an almost immediate effect. Just finished chemo on the 16th and read somewhere that radiation fatigue sets in quicker coming straight from chemo than it does with just having rads. I will be driving myself and just want to know if I should plan for "pit stops" during this phase.

Any help/advice is welcomed and greatly appreciated.

Thanks,
Wanda
nosurrender

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Reply with quote  #2 
Hello Wanda!
Congratulations on finishing Chemo!

I found I was more tired from rads than I was from chemo. It was a different kind of tired... I just sort of spaced out and felt like a lump. I remember driving home from rads one day and I was at a stoplight and it turned green but I was just sitting there, not moving, admiring how GREEN the light was... living in New York, the people behind me were quick to remind me they didn't give a hoot how green the damn light was.

I had a 45 minute drive, too. If you eat a lot of protein, it actually helps with the fatigue. I took my rads in the morning and that helped too because I got worse at the end of the day. Eat a good breakfast, drive over, the actual treatment takes only a couple of minutes, and you will be back home again before you know it.

Also, ask for some Biafine Re cream to use from the beginning. It can prevent any burns before they even start.

Good luck and please check back in!!!




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1rarebird

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Reply with quote  #3 
Wanda--
Everyone is different and my case was just that--it may not be anything like yours.  

But 4 weeks ago I finished 33 radiation treatments which began about 12 weeks after finishing 6 rounds of TCH chemo.  My radiation oncologist wanted to get me started sooner than we ended up doing, but the chemo knocked my red blood cells, hemoglobin and hematacrit numbers down so badly it took 12 weeks to get them back up to a level where he said we could start.  I believe he was correct because I actually felt a little stronger and less fatigued as the six weeks of radiation continued .  We were checking my blood counts every week and they continued to slowly improve during the course of radiation.  The doctor said they would have increased faster had it not been for the radiation, however.  The worse part of the radiation for me was the skin burns I came down with towards the end of the treatment.  With the help of the Silvadene creme those have now healed very nicely. 

So in my case it was the chemo that caused me the most trouble.  I hope you will find the radiation not so bad as well. 
Good luck--

Phil

BossyRenee

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Reply with quote  #4 

Thanks for the welcome and info. I am sooo ready for all of this to be over. (but is it really over?) Although I got through chemo pretty well I am praying that the rads are much more easier to deal with. I think the biggest hassle will be the driving to and from the tx each day but you do what you gotta do huh?

Calico

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Reply with quote  #5 
Hi Wanda

I was so very happy to be done with chemo, I was looking forward to rads...however after chemo, I got so scared because it was over if that makes sense.
I do not remember being fatigued with rads at all...I walked 2 miles every day....the most uncomfortable part was for me when the area itched and I couldn't really scratch it...
I had a total hysterectomy too in the middle of rads...just glad to attack the beast in one form or another....
Everyone is different!!! hope rads will be kind to you!

Another milestone for you, yayyy!!!

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BossyRenee

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Reply with quote  #6 
Thanks Calico.

I know exactly what you mean by being scared. I mean for TNBC there's nothing after rads so even though the tx sucks you look forward to it because it makes you feel like you're doing something. I have a great medical team so I'll just trust and believe that they're gonna see me through this from the medical side. Everything else is gonna be through prayer and faith.
nosurrender

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Reply with quote  #7 
Dear Wanda, as an 8 and a half year TNBC survivor, I just wanted to reassure you that yes, there is something you can do after your done with rads to help keep yourself cancer free:
Low Fat diet- reduce your fat intake to under 30 grams a day
Eliminate animal fats and switch to plant fats, ie olive oi instead of butter
Lose weight - eliminating the fat really helps with that!
Eat ground flax seeds every day
Exercise at least 5 times a week
Stop drinking or reduce alcohol intake
Make sure your Vitamin D blood level is high and take D every day...

You can read more HERE

Just think, the summer is coming and you can start to heal from all your treatments in the nice weather and your hair will grow back and you will feel so much better!


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