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Limner

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Reply with quote  #1 
Dear Mr. Edge, in your travels, are you aware of anyone who might actually be interested in this predicament of two relatively unusual cancers in one person? 
 
I came across an abstract citing a woman in England, I believe, as the only one "in the literature"  http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=317372  "A rare case of breast carcinoma co-existing with axillary mantle cell lymphoma."  It does not appear it was 3N.
 
Anyway, since my resources dictate getting treatment close to home, I believe my oncologist, Dr. Martin Gutierrez, would be open to consultation if I packaged it.  I feel so inadequate to the task.   You and Gina give me not only the hope I need, but the information to back it up. 
 
Thank you for your time and consideration - I am taking the information from your 3N discourse with me tomorrow to discuss Avastin with him. 
 
So far the A+C has not phased me a bit. 
 
Have a great New Year - Mary
 

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Limner

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Me again - Amendment to previous post.
 
I had the last A+C today, and spoke with Dr. Martin Gutierrez about densifying the Taxol or whatever Taxus-type chemo he will use next.  He was in favor of it, and also told me that due to BCBS insurance, he could not use Abraxane or Avastin in a first line treatment.
 
He did OK D3 and tumeric, and added that whatever Calcium supplement I wanted to take, test it in a glass of water and vinegar;  if it dissolves readily it would also be absorbable in me. 

Many thanks for your thoughts - M

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Reply with quote  #3 
Dear Mary,
{she clears her throat sheepishly and fiddles with the hem on her sleeve as she says....}
Um....
Ya know......
If you have enough of a reaction to the Taxol they - uh - HAVE to give you the Abraxane......
{Clears throat again.... mentions something about Meryl Streep and wanders off..................}


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Limner

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rehersing.........


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I believe in you!



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edge

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Reply with quote  #6 

Mary (Limner):

 

Your oncologist Martin Guttierez is quite well known, coming from NIH/NCI and having done important research in PARP inhibitors, HDAC inhibitors and, among others, in brain metastases from breast cancer, an area I also specialize in.  He is certainly a good candidate re the case study you referenced - breast cancer and MCL - as I know he works with lymphoma.  And he is clearly uncommonly open-minded in agreeing without resistance to dose dense paclitaxel (Taxol) - and to D3 and curcumin.  As to Abraxane deployment, Gina's hint is shrewd so I need say no more.

 

I wouldn't quite agree re the calcium water/vinegar test, as this conflates solubility with absorbability and ultimate bioavailability, all different as the great calcium expert Robert Heaney often notes; the vinegar is the trick, as it is intended to mimic an acid environment, but antisecretory agents (PPIs and  H2rAs and even standard antacids) can effect a low-acid internal environment, and in addition calcium transport at the intestinal cell level is dependent on Vitamin D biosynthesis.  And in the MD Anderson meta-analysis on this issue, over 90% of the studies reviewed showed greater absorption of calcium from the citrate salt than calcium carbonate by an average of 22% to 27%.  But in any case, the differences I have to admit are modest not massive, so the test is certainly suggestive (although I think not definitive).  But this continues to be a controversial area where reasonable professionals can differ reasonably.

 


Constantine Kaniklidis
Breast Cancer Watch
edge@evidencewatch.com

Limner

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Reply with quote  #7 
Merci beaucoup, C. Edge.  I greatly appreciate the experienced and unbiased comment on Dr. Gutierrez; I have felt not only priviledged but blessed to work with him on what seems like an unusual case.  My confidence in my own methodology has been shaken by too much reading and advice-getting.  I spend a lot of time pushing the river instead of letting it work for me -  Indie says it best: Many thanks for turning your brilliant intellect to this arena.   
 

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Dear friend, theory is all grey, and the golden tree of life is green. - Goethe
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