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Limner

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Reply with quote  #61 

Hi Stacey - I am just reading through recent posts and wanted to say hello and I hear you.  This site is a God-send for me, too.  I have no experience with Taxol yet, but I hope you are feeling much better within the next few days.  I am having my third dose of A/C on Friday, and it has not been bad for me, either.   I have not missed any work, except for the chemo Fridays.  Taxol is next.  My oncologist split it up so I could keep working.  I had a 3N tumor removed in September.  You will hear from others who can give you feedback on your Taxol side effects - I will be paying attention.  Hang in there and let those adorable boys take care of you a little bit - Mary  


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energybunny

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Reply with quote  #62 
Hi Stacy,  I have been through AC and taxol and am hear to tell you that it is the cumulative effects that got to me.  One word of advice for you is that once you get over the worst few days of taxol, get some type of exercise, walking, stretching, etc.  It does help.  I did not get the neuropathy (sp?) associated with taxol, but was very fatigued and depressed from time to time.  Working out was my magic bullet for it all and I have yet to have the pins the needles feelings. 
Hang in there!!  You are doing great and almost at the end.  I was VERY depressed at #3 taxol, but when it was over, WOW, felt so good to have made it through!!  You can do it!!
Hugs,  Lee  PS>  Keep drinking your water and/or other fluid and get those chemicals through your system and out!! 

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StacyL

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Reply with quote  #63 
Thanks for the advice. I am a member of Anytime Fitness, but my Onc. told me to hold off on any exercise, for now. I can't wait to go back. My heart mugga during A/C had me in the normal range, but at the bottom. I did a lot of stretching over the weekend, it felt so good.  Today, I actually feel a lot better. I have a dull achy sensation in my lower legs and feet, but I can handle that. The pin pricking feeling that I had all of Sat. and Sun. was awful. I am so glad that it has subsided. I hate feeling like I can't do anything, staying in bed makes me feel lazy and I have a lot of support, but nobody really knows how bad it is, or if I am exaggerating. Believe me I don't look for excuses to not do anything. I hate feeling that way. Sometimes I feel like a burden, because I can't make dinner and we have to order out, especially when money is tight. I went to bed with a sink full of dished Sat. night. I didn't even want to go in the kitchen Sun., but guess what, they were done. I had to rub my eyes a couple of times. Chad (fiance) jokes about dishes. He says if there are still dishes in the cabinets then they don't need washed, yet. ha ha. I'm doing laundry today and taking it easy. I have a Holiday Concert tomorrow (Brady-1st grade). A Birthday 12/15 (Braiden-4), Dentist appointments that day.A trip to see Santa next weekend. Haircuts, pictures. Another Birthday right after Christmas 1/5 (Brady-7). Mine is 1/7. I will be 39. I sure hope next year will be better than this. Actually it wasn't so bad up until Sept., that was my diagnosis. I had reached my goal weight with Weight Watchers, lost 72 lbs. Feeling great!!!! So most of the year was good. This will be over soon. I am nearing surgery (after chemo). That's making me anxious. I try to just take it one day at a time. Thanks again for the supportive feedback. I will do stretching and mild exercise throughout the week.

Stacy
nosurrender

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Reply with quote  #64 
Mary, how are you holding up?

Stacy, what you are feeling is normal- and it is all OK. I happen to agree with your fiancee! If you still have dishes in the cabinet and clean underwear in the drawer- laundry and scrubbing can wait!

Lee said it all-
I want to tell you that last year at this time I was in the last month of nine straight months of chemo. I had no hair. I had no feeling in my feet, along with no skin on them, and my skin was a lovely shade of avocado.
Here I am today- my hair is over 6 inches long, I ride the bike at the gym 4 times a week for ten miles and then swim laps. I have eyelashes again. My feet are fine. And I am looking forward to the future. I made it through chemo twice- six years apart- and came out the other side fine. YOU WILL TOO!
Just wait, you'll see!


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StacyL

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Reply with quote  #65 
Thank you Gina,
You are such an inspiraion. I will get through this. I can't wait to get back to the gym.
Karen1956

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Reply with quote  #66 
  Stacy -  During chemo, DH and I would walk, even if it was just two doors down. I usually started to feel better by day 4 or 5 post chemo. The day I had chemo it was all I could do to crawl into bed when I got home.  What about paper plates?  Your are right - it is one day at a time, but sometimes it is just one step at a time!!!  Be gentle on yourself and allow others to help when/where they can.  Hugs, Karen

Limner

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Reply with quote  #67 
Keemo - I have to say I am fine in spite of having two kinds of cancer (that I know of) and being rear-ended at high impact on Friday night.  Honestly, I was feeling pretty discouraged until I logged on and started reading on this site.  NO SURRENDER!  We just keep on heading for the prize!  We are all so tender and fragile and unbelievably durable.

Saw my Oncologist & Nurse Cathy today.  I am fine - I search for complaints - none.  Chemo 3 is Friday.  Even tho I know it makes life harder for my poor little body, I eat quiche and carrot cake and 'forget' to walk.  I need a coach and cook.   My thought is that my body, while being tired of it, has a high tolerance for chemical abuse from years of sign painting and house renovations (not to mention the 60's). 
 
Stacey, keep in mind that new strenghts and abilities are being developed in those around you who share this experience with you.  I know how hard it is to let go when you have been the care-taker.  Glad the worst is passing.  And congratulations on that 72 lbs!!  Awesome - that takes discipline & perserverance. 

Good night fellow warrioresses and friends -Mary




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Karen1956

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Reply with quote  #68 

Mary - glad to hear that you were not injured in the car accident.  Hugs, Karen

nosurrender

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Reply with quote  #69 
Mary! I am so glad to hear you survived that car wreck!
that is scary. hang in there  for chemo #3
You always have us! We are one hell of an army


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snowgirlc53

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Reply with quote  #70 
Hi everybody, and hello to Stacy and Mary.  Mary, glad you came through the car crash OK, Stacey, just keep hanging in there.  Your 'friends' here will listen to all the good and bad, happy and moaning.  Trust me, I've done my share.  I finished my last round of Taxotere & Herceptin 2 weeks ago but I still have as much energy as a wet noodle.  However, I did manage to join DH for 4 days in Orlando (got back in the wee hours this morning) and it was nice to escape the freezing temps and snow for some warm weather and sunshine.  However, I probably completely overdid it on my shopping extravaganzas while he was at the show and my legs are so weary today I could hardly get up the stairs!  BUT, we did go out and get our Christmas tree and I managed to hang the cedar garland around the door and create my annual 'greens' pot from stuff from our property.  DH is refereeing a couple of hockey games at the moment but a fire and getting the tree up and decorated tonight is on the list - even if I have to sit and rest every 10 minutes.  I think this endless fatigue is the hardest part and I'm hoping that will start to wane in the next few weeks.  I'm going to join the morning 'mall walker' crowd after the New Year to try and get some exercise to build my strength before the next surgery (mast) on Jan 27th.  Oh, and if anyone has seen my real tastebuds could you please return them???  I'm sooooo hoping that everything at Christmas tastes like it should, not this tangy, slightly 'off' taste that everything has at the moment.  My kingdom for a good tasting glass of wine!  And if there's a remedy to stop my nose running and eyes CONSTANTLY watering, I'd appreciate any tips (maybe something like Claritin or Benedryl???).  Around my eyes is so chapped it's painful from wiping them. 

Onwards a little bit better every day - my 'eyebrow' watch is in full swing.

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energybunny

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Reply with quote  #71 
Snowgirl, You are doing an amazing job!  I remember that fatigue and most of it, for me, eventually subsided, or I just plowed on, like you are doing.  The tearing, yes, I remember that!   Don't have any suggestions for you other than use a good, oily eye cream! That may help with the chapping.  You know, being and 'ol Mary Kay lady, that skin under our eyes is VERY tender, so protect, protect!  There is a nice MK cream, a pink, waxed based cream, that might do the trick for you.  But is kind of heavy.  You may want to check that out.

Hugs to you and your door looks lovely!!  Lee

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snowgirlc53

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Reply with quote  #72 

Thanks Lee.  Right now, just after I've woken up, my eyes are almost 'gummed' shut... it will take about an hour before they really start to see properly.  I'll try the eye cream... maybe even good old vaseline!  As for the fatigue, I agree that most of the time you just ignore the leg pains and tiredness and keep going!


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StacyL

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Reply with quote  #73 

snowgirl, I have the same eye problem. I have small eyes in the first place, and since I have no hair, I rely on makeup to feel good, but I can not stand mascara for long (still have eyelashes) with out all of the watering and crusting driving me crazy. By the way, has anyone on Taxol gotten itchy, rash (red) not sure if it's hives? It started 8 days after 1st Taxol. The first place was on my hips, legs, stomach, face. I think it might be an allergic reaction to this Sally Hansen lip inflation gloss I bought the same day this started. I only wore it the one time. The next day my face, head, hands were swollen. I still itch all over. Yesterday it was mainly my back, chest, arms. It's like it's working it's way through my body. I will talk to my Onc. about it, but I'm pretty sure it's the lip gloss. Just wondering if anybody knows of, or has experienced this type of reaction to taxol. Other than that, since the pin pricking feeling stopped around day 4-5 I've been pretty good. 2nd Taxol Wed. We're suppose to get a few inches of snow 3-6 starting tomorrow p.m. I hope our drive (45 miles approximately) goes well. Today is my youngest 4th B-Day. Gotta make a cake and decorate soon. Take care everyone. Have a Merry Christmas and thanks.

snowgirlc53

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Reply with quote  #74 

Good luck with your next treatment Stacey.  I finished almost 3 weeks ago and go for my 1st Herceptin only on Thurs.  I'll ask about the eye problems when I'm at the clinic.  Glad your pins and needles have gone... never had that problem, thank goodness.  We're getting wicked winds and some flurries tonight... it dropped almost 20 degrees in about 4 hours today. Brrrrrrr.


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CherylG

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Reply with quote  #75 
STACY... I never had that but it sounds like an allergic reaction to me. Did you try Benadryl?

SNOWGIRL... hang in there, you're doing great. The teary eyes and runny nose do clear up but it takes a bit of time. Hopefully it will be gone by Christmas and you will be able to enjoy that wine.
Hugs
Cheryl

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nosurrender

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Reply with quote  #76 
Wow, you girls are rock and rolling!

Gluey eyes.... ugh. Sometimes the eyes get too little moisture and they get like glue. And then the reverse is too much and the residue makes glue too...
There are eye drops your doc can write for you.  I used Genteal and homeopathic drops from the health food stores.

The fatigue will slowly go away... it just takes patience! I know you must be sick of hearing that.

I never heard of Taxol causing an allergy that long after the treatment. Normally, if you are going to get a reaction it would be right away. Here is what Chemocare says about it:
"Hypersensitivity reaction - fever, facial flushing, chills, shortness of breath, or hives after Taxol is given.  The majority of these reactions occur within the first 10 minutes of an infusion.  Notify your healthcare provider immediately (premedication regimen has significantly decreased the incidence of this reaction)."


Personally? I think you are all doing an awesome job. This is not easy. But we find the strength to get through it and soon, it will all be a memory- the memory of what you did to kick cancer butt so you can live a wonderful, long life.

Love,
g


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StacyL

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Reply with quote  #77 

thanks for your information. I really think it was the lip gloss I bought. I'm on my sixth day of itching, not as bad, but in different areas, weird. I wrote an email to the Sally Hanson company asking if anyone has reported this kind of allergic reaction. Haven't heard anything yet. I wrote the ingredients down for my Onc. to look at. I go for Taxol #2 tomorrow. Hope we don't get that much snow here. They're calling for 2-5+. Yuk!!!!! Starting any minute. I need to go to the store.

snowgirlc53

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Reply with quote  #78 

Gina and Cheryl, you're so right that this will all seem like a distant memory after a while and we can get back into enjoying life to the fullest.  I must say, however, that this forum has allowed me to vent, moan, complain and ask questions that I don't do with anyone else.  'Pretending' that everything is generally OK to the outside world - kids, colleagues, even DH - is just a part of my personality, but you girls get the brunt of the 'poor me' misery I've been feeling.  Without your support, humour and knowledge, it would have been a completely different journey.


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StacyL

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Reply with quote  #79 

snowgirl, I feel a lot like you. Even when I complain of achy body, or just tiredness, I know no one can truly understand, except those of us that are going/have gone through this. I try not to complain too much. Only when I really need help with household chores do I ask. My DH helps with baths/bedtime.  I usually do it all (household chores) still myself. I can let the dishes sit over night once in a while. It bothers me, but I can't see them in bed. I usually feel better by morning, then I drink my coffee and do the dished. It's ok.

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