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csp

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Reply with quote  #21 
 Good morning,
Gosh some rest sure makes a big difference.
Joan a Troy cake sounds so wonderful! You made me laugh
and bought back memories of rapid fire emails and Brenda yelling at us for going so fast because she had dial up in the mountains I think lolol.

Gina I have been mispelling it too. Iris is the only one that spelled it right lol

Iris the very cute bag you sent me I took to the hospital with me friday as they wanted me to bring all my meds and I also used one of the note pads yesterday for my daughter to use to take notes when we went to see the surgeon.

 Cali Katie is still doing sentry duty today She got up with me at the butt crack of too early meowed at me as I fed the dogs  and is sitting on the kitty food table in the computer room munching away at her food.

Seychelles I love you too. Your words in the pms you sent me helped me get through the hell waiting so much. Thank you.

Cheryl I am glad you all are googling but I can't right now. I will scare the carp out of myself.

Denise so good to see you at NS. Thank you for your words.

LV&Hgs,
Carrie

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Naniam

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Reply with quote  #22 
Carrie, good morning - glad you got some rest.  I knew your sisters would be there loving on you and letting you know how much you are loved.  Quite the family Carrie.

Guessing the doctors office is making contact with someone at Ohio State or checking to see where you need to go.  Hope you have that worked out soon so you know your plan - it seems to help when the appointment is in place.  I doubt you come this far but you always have a home away from home if you need it.  Duke, NC Memorial, Wake Forrest, Charlotte and Mission in Asheville are all close.

Quiet still in the house, Richard is still sleeping so I came to check on you.
The main thing is -you have the strength, the love and support to get you through the days ahead.

I remember the Troy cakes and yes, I did have dial up that was slower than dirt and I the country mumpkin couldn't keep up. 

Sending lots of hugs and prayers your way.  B
lizws

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Reply with quote  #23 
Hiya kiddo,

I'm glad you got some much needed rest.  Just wanted to pop in and let you know I'm here sending lots of good thoughts, lots of prayers and an abundance of love.  I hate the waiting to know what is next.  Hopefully, you can get some answers today. 

Love you sweetie,
Liz

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MicheleS

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Reply with quote  #24 
good morning Carrie.  Sending up healing prayers for you today!

xxoo

Calico

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Reply with quote  #25 
Carrie,
can't stop thinking about you.

Glad you rested well.

I was just thinking why do you have a kitty food table....duhh....because of the dogs lol

How is the battle plan coming? What's next for you?
Where do you go? What tests do you have planned?

Holding you close!!!


Joan,
sooo good to see you

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SoCalLisa

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Reply with quote  #26 
Carrie,  we are all surrounding you will concern, love and hope.
and so many hugs...


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MicheleS

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Reply with quote  #27 
Hi Carrie~

here's a list of clinical trials for liposarcoma:
http://clinicaltrials.gov/ct2/results?term=liposarcoma&recr=Open&age=12

I really like the Avastin + radiation one:
http://clinicaltrials.gov/ct2/show/NCT00356031?term=liposarcoma&recr=Open&age=12&rank=4

love you!

DoreenF

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Reply with quote  #28 
Carrie - I first googled lympho sarcoma and all I was seeing  was cancer in cats and dogs...  so I thought that there must have been a mistake in the communications .. then I tried to find info on lypo sarcoma and all the hits came back as liposarcoma ...  when you're ready to know more post the pathology ...  as with any cancer there are several cell types ....  we'll help you know as much as (or as little as) you want to know ...  You're in limbo land right now ...  waiting for another appt - probably waiting for more tests ...   in order to determine what your treatment plan is ...   we're with you ... holding your hand - and fluffy will be our chopper pilot taking us to each of your appts/tests ...    

I'm going out of town for the long weekend ...   leaving this morning ...  I doubt I'll have internet access but I'll check in when I can. Please know that you're in my thoughts and prayers .. 

Love you CarrieOkie ...  
Doreen


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Jennine

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Reply with quote  #29 
I've read about this cancer too. Seems like a lot depends on the path report, just like all cancer.

I'm thinking of you Carrie..even though you don't know me, know I am praying to all of the Ascended Masters to help and guide you.
Angels, please surround Carrie with all of your healing energy and light

You are loved dear Carrie,
Jennine

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A mind that is stretched by a new experience can never go back to its old dimensions. - Oliver Wendell Holmes
Joanna1

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Reply with quote  #30 
Thursday....

As soon as you hear the plan- you and the rest of us will feel some control again. It is the unknown that makes for high stress. Hearing the C word comes with stress and there is no getting around that! However, you are a trooper and you will come up with whatever coping skill works for you.

Thinking of you.....

mrsb

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Reply with quote  #31 
Carrie god bless may you be cared for and much loved by family here and elsewhere whilst you await THE PLAN Shelagh
CommandoBarbie

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Reply with quote  #32 
Hugs Barney.
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CherylG

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Reply with quote  #33 

(((Carrie))) thinking of you ... hugs


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nosurrender

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Reply with quote  #34 
I looked it up. It will take me 10.5 hours to drive to your house.
That means Fluff and I need 11 hours notice.
I love you Barney,
Ang


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WE WILL PREVAIL





JoanofArdmore

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Reply with quote  #35 
Sweet Carrie,
Yes, those were fun days.Bren might have only been able to have dial-up in the mountains, but I can't type well, and the "faster" I type, the more typos-which is where Troy's Cake came from in first place.
I just want you to know now that I'm in the loop I'll be thinking of you, sending love, good wishes, white light, prayers.
Hugs and troyscake, Carrie.


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So I continue to continue
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and flowers never bend
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JoanofArdmore

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Reply with quote  #36 
Hi Cali(co)!
So nice to see you!
I've become a facebook fanatic-spending all my spare time ranting there.It's very addictive, plus I felt like the witch of Endor ranting around here about AIs.
I see you are your usual lovely self, good for you! (And for us).And yay the Femara didnt do you in!
Sending you congrats,and love.


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So I continue to continue
to pretend
my life will never end,
and flowers never bend
with the rainfall.
(Paul Simon)
CommandoBarbie

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Reply with quote  #37 
Carrie, Gina - I looked it up. If we need to have a staff meeting, I can be there in 24 hours, or just over 3 if I fly. Say the word. ((((Carrie)))
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csp

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Reply with quote  #38 
Good grief!
My head is going in circles. I have an appointment with a ortho not from the James and not from University of Cincinnati on Tueday.
I want to know what type of  STS I have, I want to know if I can do adjuvent therapy before more hacking is done. I am scared and wish this would just fall into place. Of course a surgeon refers me to a surgeon( DUH Carrie.) I think I need to take the reins and direct everyone and question more. I don't want a garden variety ortho surgeon! I think I should be seen by a onc specializing in Sarcomas for consult and one in Rads and then surgeon. I want to go to the James or Cleveland! I chose James first only because it is familiar and closer.
I'm calling the surgeon this morning.

Love,
C



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courage does not always roar. sometimes courage is the quiet voice at the end of the day
saying.. i will try again tomorrow.
~maryanne radmacher
MargaretB

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Reply with quote  #39 
Carrie, I've been out of touch for a few days dealing with my sister and logged on last night and heard your news.  I am so sorry you have to deal with this but we are in this together.....what happens to one of us happens to all of us.  I would want to see specialists too.  Go with the best.

Hugs,

Margo
lizws

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Reply with quote  #40 
Carrie,

I'm glad you are being your own advocate.  I made my own appointments with docs.  I never had one refer to another.  Of course, things may be different where you are.

I'm sending lots of prayers to you girl.  I wish I could give you a big hug in person but my cyber hugs will have to do for now.

Love you bunches. 

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"I can be changed by what happens to me. But I refuse to be reduced by it!" - Maya Angelou
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