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CherylG

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Reply with quote  #1 
Hi Nurse
Friday in the night I had a horrible leg cramp (like a charlie horse). Took forever to get it to go away. My leg is still sore today. Is this normal or should I be worried about a blood clot? I see no bruise, feel no lumpiness, it doesn't hurt unless I am walking. Whaddyathink?
I know Tamoxifen can cause leg cramps and clotting... do you think there could be a connection?
Thanks
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CherylG

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MargaretB

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Reply with quote  #2 
Cheryl, I just saw this question - and it appears that no one answered you - do you still have leg cramps?  I used to get them and I assume it was from the tamoxifen.  I don't get them very often but I try to minimize them with potassium supplements or bananas.

Margaret
Karen1956

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Reply with quote  #3 
Cheryl and Margo - I've been getting leg cramps lately along with the knee pain.  I've just attributed it to the Aromasin.  It is not the charley horse pain that Cherly described, but just achy, sore, tired type of cramps.  Hard to explain.  NASIDs don't seem to work, so I don't take them. Sitting makes it worse, but it never really goes away.  I've seen in several magazine articles that docs are now Rxing Neurontin for hot flashes so when I see my onc next month I am going to ask him for an Rx.  I see my PCP the same day in the morning, so I could ask her as well.  If I could find something to help manage the discomfort from the  AI's, I would be more inclined to stay on it. Hugs, Karen
Indigoblue

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Reply with quote  #4 
I also am experiencing hip and thigh cramp and pain; began months after last radiation treatment.

Restless Leg Syndrome can cause spasms and pain, as well.  Taxol can also cause strange leg pains, and I was told it eventually goes away...

Indi
fluffy

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Reply with quote  #5 
I get leg cramps and cramps in my feet and have gotten them since I was a teenager. My dad gets them too. Eating a banana once or twice a day really works to prevent them. I notice that if I don't eat bananas for a while, the cramps return. Also, keep your legs warm at night, even in the summer. Wear long pants and socks. This also helps. I used to get the leg cramps at night on a regular basis and I'd have sore calves in the morning. And they sometimes took a long time for the cramp to go away. Massaging it helps and stretching it helps and walking on it helps.
Now I get them in my feet more and they are milder than the calf cramps.
I hope yours go away with the bananas!

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CherylG

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Reply with quote  #6 
Hi everyone
Thanks for your comments. I think I will try a potassium supplement ... I cannot stomach bananas unfortunately
The bad cramp that I had when I posted this was in my calf and eventually the pain went away. Now I get  a bad cramp that starts in my big toe and goes all the way up the side of the leg. It's a worse pain than the charly horse one and I can't move my foot or leg when it hits  But at least it doesn't happen as often.
I thought it was the AI's but I have quit for 3 weeks now

Hugs to everyone

CherylG

 


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Indigoblue

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Reply with quote  #7 
Cheryl,
Did you receive Taxotere, Paciltaxol, or Taxol treatments?  I have known since before the treatments, there might be nerve damage and/muscle and joint pain from any of those treatments;lasting anywhere from a week, a month, years, or even showing up years later after having had no previous pains.  My pain in the spine increased tenfold; and the hip and thigh pain are completely new.  I suspect there are some nerve complications from the Taxol and Steroids combined with Rads; but if I can't find any answers, I suppose a Pain Management Physician, Neurologist and Physical Tberapy will be the next step.  It keeps getting worse, and pain pills are worthless.  I have peripheral neuropathy in the shoulders, arms, hands, fingers and feet; neck, etc.  Something tells me they are all involved and related somehow.  I was pretty healthy before surgery, chemo and rads; now I feel like I am a hundred years old.  All the doctors say it is because of something the other did, or that it's a pre existing condition; except, it didn't exist before, so as always, I remain confused and feeling like an idiot. 

Seeing Blue Eyes tomorrow; maybe he will tell me more from the recent Pet Scan and Head and Neck Cat Scan.  I hope he has some answers, but I am not counting on it.  All I know is this whole experience is nothing but a giant headache!

Hope you feel better.  I will let you know if I find any conclusions or reasons for these mystery pains so many cancer patients experience.

(((hugs)))

Indi
CherylG

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Reply with quote  #8 
Indigo ... I am in Canada and had FEC which is very commonly used up here. Not sure how it compares to Taxotere, Paciltaxol, or Taxol but I completely agree that these are all side effects of TX. Anywhere I have issues now is in places where I had a "weakness" before tx.
What I don't get though is I quit Tamoxifen to see if it was SE's or not. Everything .... and I mean everything went away for about a week. Now, things are starting all over. The leg cramps are worse, my ankle is swollen and sore again and the brain fog is back with a vengence. I too feel "old"
I just want to feel better
I hope blue eyes gives you some help ... keep on keeping on hun... together we will get there.
Hugs
CherylG

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MargaretB

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Reply with quote  #9 
Cheryl, I must be having sympathy pains, as I woke up with a cramp in my calf this morning....grrrrrrhhh.

Margo
CherylG

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Reply with quote  #10 
Nice of you to care enough to have sympathy pains for me Margo
But seriously ... this has got to be SE from tx. When will it ever stop??
Sorry to hear you are in pain. Did you enjoy your holiday??
Hugs
CherylG

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fluffy

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Reply with quote  #11 
Indi..did your get answers from blue eyes???
 
Cheryl..check with a doc about the potassium and how much you should take. That's what the bananas are full of. There are other foods full of this as well..just not sure what. I bet you could google and find out. if I find something, I'll let you know.
 
I believe that the chemo awakens things that you had in your body that never bothered you before. I had herniated disks in my back and neck for years and never knew it til after my chemo treatments. I never had any pains and of course when I had pains they sent me for scans. No mets..but herniated disks for many years (they can tell) that never bothered me til NOW. Thank you so much AC and Taxol!

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Indigoblue

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Reply with quote  #12 
Fluffeth,
Just kidding as I love your fluffy heart; but you will always be my intellectual leader and research powerhouse, Ravideb.  When I think of Fluffy, a white Loppyeared Rabbit, Alice in Wonderland, and a Great White Pyrinese appear in my subconcious; every time I use Puffs or a cottonball, fluffy comes to mind.  Fluffy mittens and scarves knitted from the wool of a Chinchilla or Angora.  Fluffy, what fun!

Speaking of Fluff, I did see Dr. Blue Eyes; I forgot what he said; mostly, we talked about his beautiful new baby.  He's so charming, smart, caring, and hopefully honest, kind, prince charming, etc.

He said there was no evidence of METS, has refused the MRI, and claims the Onc., Surg, and Rads doctors are not responsible for seeking out "other" cancers.  He has referred me to a Pain and Body Dx. Specialist.  I will likely get some answers from the Physical Medicine Specialist; I was told they are usually extremely thorough.  Meanwhile, my ribs feel broken, lungs hurt, and it's difficult for either the PCP or the Oncologist to diagnose anything beyond what blood tests or Radiology Reports indicate. 

I want my darn MRI!  It's really making me furious; perhaps my family doc will order it.  I am feeling worse than I can ever remember.  I want some answers, and someone who will level with me.  I was given good advice; that is, to contact a Patient Advocate at my Insurance Co, who will stand up for my requests, and push for the necessary tests I believe we, as triple negative cancer patients should obviously be having done as a matter of protocol. 

How are you doing?  Have you heard anything from your MRI "run around"?
Aren't we stressed enough?  Reading the prayer chain had me feeling so tearful; not hysterical; just sad...very sad.

Hope you stand up for your rights and get these buggers to MOVE! We know, the long they fool around the longer it takes to take a sigh, one way or the other.  I feel like I am continuously holding my breath. because I keep forgetting to breathe.  I must be worried, but there are so many crisis going on, it's hard to distinguish one from the other.

Peripheral neuropathy just gets more painful and numb.  Apparently there is a blood disorder which might be affected if I take Neurotin.

Ugh.

Have a beautiful week, Fluffers...luv you

(((hugs)))

Indi
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