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Anamaria

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Reply with quote  #1 
I've had lumpectomy and a second excision to confirm clean margins.
I've gone through chemotherapy and now I'm mid way through radiation.  My tumor was a Medullary Carcinoma (according to my oncologist, the rarest form of cancer 5% of all) but I cannot find anyone who has had this type or what their treatments have been.
Is there anyone who has had this type and would you like to share your thoughts of what might have been the cause of it?
I have the idea that mine could have come from 4 blows to my right breast. I took care of an elderly demented person who was the "giver" of those blows.
Naturally the doctors say "not so"... but I wonder.
Also, what do you know about the book "Your life in your hands" by 
Professor Jane Plant about her eliminating dairy products and getting a quasi miraculous recovery. I am buying her book today.

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Anamaria
Cherlilly

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Posts: 143
Reply with quote  #2 
My first pathology report came back IDCS but then after my lumpectomy the pathology report said Medullary Carcinoma.
I am triple negative and have stage l, grade 3, no lymph node involvement.
I will be having my 3rd chemo treatment this coming Friday which is Adriamycin and Cytoxin and then 35 radiation treatments.
Did they stage you?  How big was your lump?  Mine was 1.2
What kind of chemo did you have and how many treatments?
I don't know a whole lot about medullary carcinoma, but I feel as though my oncologist is treating it ias IDCS.  Now that you posted this, I am going to talk to my oncologist about it.  I had only talked to my surgeon about it before meeting my oncology team.
I am glad you posted this and I will let you know what she has to say.
How are you feeling after your chemo.
I haven't started radiation.  Does it make you really tired?
Cheryl

__________________
DX 8-14-07
Invasive Medullary Carcinoma
Triple Negative
Stage 1c
Grade 3- Poorly Differentiated
Lymph Node-Negative
Anamaria

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Posts: 2
Reply with quote  #3 
Mine was a 3.5 cm, also triple negative (Progesterone, Estrogen Her2neu)
My chemo consisted of 4 infusions of Adriamycin and Cytoxin (spell?) and it played havoc with my sense of taste. Also made my sense of smell so sensitive it was sometimes hard to sit by anybody who, although looked perfectly clean, had smoked or imbibed the day before... a real pain while on a train trip. 
No appetite at all. Had to force myself to eat. Did not lose any weight. Gained 10 lbs. betw. 3rd and 4th infusion (water retention I guess) but lost them right away.   Raw fruits (mango, papaya, apples, pears, blueberries) and salads were well tolerated.  I like hot pepper and couldn't even think of eating it.Nor wine. Had to use Baking Soda for brushing teeth. Did NOT get any nausea. My oncologist gave me anti-nausea meds at the time of the infusions. Don't remember names. Can get them for you. Second excision proved clean margins. Sentinel lymph nodes clean also. I feel fine so far. Have had my 17th radiation yesterday. Maybe a bit tired but not alarmingly so. I am 70 and always had ironclad health. My children call me the "iron lady" because of that health.  I generally don't believe in resorting to pills of any kind except when absolutely indispensable.
By the way, acronyms are my nemesis... what does  IDCS  stand for?... Invasive  Ductal Carcinoma  S=???  or what exactly?...
I have also read a very interesting research on the consumption of grapefruit by about 4 thousand women, who developed breast cancer. If you want it, I can send you a copy. Two big universities participated. The interesting thin is that I like grapefruit a lot and during our stay in Arizona (winter birds) last year, I ate at least one or two whole fruits a day plus 4 oz. of grapefruit juice daily, the whole year long.  Again, I've given this to my oncologist and he promised to study it. And now, another one of my favorite foods (dairy) seem to have adverse effects according to this Dr. Jane Plant. Again, I'll give the article to my oncologist and to my surgeon and see what they think.
Keep in touch... and we will see if there's other women out there with this Medullary type.
Anamaria



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Anamaria
Cherlilly

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Posts: 143
Reply with quote  #4 
Wow!  No nausea at all????!!!!!  That  has been my biggest complaint.  ALthough, this last treatment (2nd one) has been much better!  Can you find out what you took for the nausea?  Thanks so much!

That is interesting about the grapefruit, but no grapefruit here.  I don't think I have ever tasted it really.  About the dairy, I don't really eat much dairy either. 

It is so hard to understand any of it.  Although, I do have high cholesterol, am (was) 50 pds. overweight.  Didn't exercise and am borderline diabetic.  I wonder if that all caused it?  My oncologist said no, but I can tell you dietary changes have already been made and will continue the rest of my life.  I have been walking on the treadmill and will add much more exercise when I am all done with radiation.

I still have 2 more treatments to go with the AC.  How did your last 2 treatments go????  Did you get more tired?

I am 52 and just am so inspired that you are 70 and zipped right through chemo and doesn't seem like radiation is bothering you either!  That is wonderful!  What is your secret?  I thought the radiation is suppose to make you so tired?  I will start that in January.

Sounds like you have a GREAT oncologist.  I am in Ohio, what state are you in?  I am just OK with my oncologist. 

Did you just do 4 treatments of the chemo or 6?  What grade were you?  I am stage 1 but grade 3 because my cells were poorly differentiated. 

Great hearing from you and that we are basically the same diagnosis!

Cheryl

__________________
DX 8-14-07
Invasive Medullary Carcinoma
Triple Negative
Stage 1c
Grade 3- Poorly Differentiated
Lymph Node-Negative
Cherlilly

Goddess
Registered:
Posts: 143
Reply with quote  #5 
OOPS. forgot to comment on the IDCS.......I didn't mean to put in the "S"  It is IDC.
Also, I just saw you had 4 treatments, not 6 of the AC.

Cheryl

__________________
DX 8-14-07
Invasive Medullary Carcinoma
Triple Negative
Stage 1c
Grade 3- Poorly Differentiated
Lymph Node-Negative
ScoopInOK

explorer
Registered:
Posts: 8
Reply with quote  #6 

I was diagnosed with medullary carcinoma of the left breast, it had metastasized? into the lymphnodes. I had a lumpectomy followed by a breast preserving mastectomy. Cytoxin and Adriamyacin and radiation. I found the lump in November of 1997 at age 30. Was finally able to get someone to do the biopsy and was diagnosed in March of 1998.It is a relatively rare form of cancer that is thyroid based. I always believed that mine was caused by phen phen, or actually the thyroid meds given to me while I was on the phen phen. My docs at the time believed that it was probably genetic, although no one in my family, paternal or maternal, have had it before or since. I went through the genetic mapping December of 2006 and was told that I do not have the genetic make up to form cancer. That was kind of funny. I did go into early menopause due to the chemotherapy. However, I had one short little cycle in May of 99, some 5 months after finishing radiation...that little cycle resulted in a little red headed boy!! He kicked started my cycle for the years to follow. And now, at age 40 I am going through menopause all over again! I currently am undergoing more testing due to a suspicious breast MRI this week.


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Who has the right to ask "Why Me?" No one deserves it, no one is immune from it. The question should be "Why is it still around?"
ScoopInOK

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Posts: 8
Reply with quote  #7 

Sorry, I forgot to add that I was on Zofran for nausea while in chemo and it was great for me. My family doc prescribed it for me again while I was experiencing pregnancy nausea later but it didn't seem to work as well. The radiation was harder on me than the chemo was. I guess it was because it was three hours daily for such a long long time. It just drained me slowly until I was exhausted. I gained weight during the chemo but lost during radiation and kept losing afterwards. By the time I found out I was pregnant I had lost a significant amount of weight and was wearing size 0-1. Precancer I was in a 10.


__________________
Who has the right to ask "Why Me?" No one deserves it, no one is immune from it. The question should be "Why is it still around?"
MsBliss

Goddess
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Posts: 103
Reply with quote  #8 
did they tell you it was "true medullary" or medullary features?  An acquaintance who learned she was true med chose no treatment beyond surgery.  Sometimes they can skip the chemo and rads because the benefits are not large enough for the risk. 

Quote:
Originally Posted by Cherlilly
My first pathology report came back IDCS but then after my lumpectomy the pathology report said Medullary Carcinoma.
I am triple negative and have stage l, grade 3, no lymph node involvement.
I will be having my 3rd chemo treatment this coming Friday which is Adriamycin and Cytoxin and then 35 radiation treatments.
Did they stage you?  How big was your lump?  Mine was 1.2
What kind of chemo did you have and how many treatments?
I don't know a whole lot about medullary carcinoma, but I feel as though my oncologist is treating it ias IDCS.  Now that you posted this, I am going to talk to my oncologist about it.  I had only talked to my surgeon about it before meeting my oncology team.
I am glad you posted this and I will let you know what she has to say.
How are you feeling after your chemo.
I haven't started radiation.  Does it make you really tired?
Cheryl
MsBliss

Goddess
Registered:
Posts: 103
Reply with quote  #9 
This is interesting--I also have a tumor right where I took a sharp blow from the corner of a piece of furniture.  It is medullary featured, prob not true med, but I am waiting to confirm it's characteristics with additional pathology.

Quote:
Originally Posted by Anamaria
I've had lumpectomy and a second excision to confirm clean margins.
I've gone through chemotherapy and now I'm mid way through radiation.  My tumor was a Medullary Carcinoma (according to my oncologist, the rarest form of cancer 5% of all) but I cannot find anyone who has had this type or what their treatments have been.
Is there anyone who has had this type and would you like to share your thoughts of what might have been the cause of it?
I have the idea that mine could have come from 4 blows to my right breast. I took care of an elderly demented person who was the "giver" of those blows.
Naturally the doctors say "not so"... but I wonder.
Also, what do you know about the book "Your life in your hands" by 
Professor Jane Plant about her eliminating dairy products and getting a quasi miraculous recovery. I am buying her book today.
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