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Limner

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Pathfinder Angel
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Reply with quote  #1 
4 more boosts to go.  I am pretty inert, grateful and pink.  The skin on my breast was sore until I started with a comfrey/red clover/burdock brew my sister brought to me.   They problem solved immediately after I dabbed it on.  Everything else seemed to be smothering, even the calendula & biafine.  Anyway.  Hot and thundery here.  Hoping you are all mending and savoring this life - Love, Mary

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Dear friend, theory is all grey, and the golden tree of life is green. - Goethe
Indigoblue

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Reply with quote  #2 
Mary,
Your posts are like cool, misty rain...always provoking a healing thought or two; bringing forth a ray of healing light...helping anyone who is struggling to get past anything.  You made it through the rads, almost...yalzahooey~ hooray!

Love,
Indi
Limner

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Reply with quote  #3 
Indie, I would love to take a walk with you in the cool misty rain.  I think often of you and send cool healing gel-bubbles to enfold  you.  It was the good witch Glinda who made them for you -

I've told you once or twice about my bouts with horrible itchy skin.  A month ago I got a few mosquito bites - one turned into an enormous blister as big as my hand.  The dermatologist had already diagnosed bullous pemphigoid last fall, an auto-immune skin response.  My skin just over-reacts to everything - mites and no-see-ums included.  This time he gave me tetracycline and 100 mg of niacin a day.   All better within a week.

The comfey tea brew has been very soothing and healing on my radiated skin.  My sister brought me a bag of it the size of a pillow. I would be happy to send you some, just don't drink it they say -   

One more treatment!  They gave me a pin today that says  'Happiness is the last day of treatment....'  So good to see you posting - Love, Mary




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Dear friend, theory is all grey, and the golden tree of life is green. - Goethe
nosurrender

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Reply with quote  #4 
MARY~~~~~~ YOU ARE A RAD GRAD!!!!!!!!!!!

YOU DID IT!

INDI SAID IT BEST!!!

YALZAHOOEY!!!!!!!!!!

Love, love, love to you!!!
g


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WE WILL PREVAIL





wedsnthings

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Reply with quote  #5 
Mary,

I'm so glad to see you have arrived at the FINISHED line. Congrats to you.

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NATALIE
Melanie

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Reply with quote  #6 
Hi Mary,
Newbie here to site...just wanted to say CONGRATULATIONS I'm still running in the race but I see the finish line for me.....# 27 today then 5 boosters...almost done !!!!



Big Hugs,
Melanie

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Limner

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Reply with quote  #7 
Well Melanie - I'm glad you found this deep well of No Surrender - Those two words gave me hope and determination when I first saw them, after going through the diagnosis, biopsy and surgery stages pretty much alone.    27 rads - you are hardly a newbie to the breast cancer experience - - Just another week for you? 

Thank you all for your encouragement, and for bearing with my tattoo melt-down.

Happy Independence Day! 


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Dear friend, theory is all grey, and the golden tree of life is green. - Goethe
nosurrender

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Reply with quote  #8 
Hey to Natalie, Mary, Indi and welcome Melanie!

You are almost there!!!!!


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WE WILL PREVAIL





SapphireSky

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Reply with quote  #9 
Yay Mary!!!!  You are DONE!!  Sounds like you found some things that worked for your SEs, and that is really what it is all about.  

We must have finished about the same time.....I was done on Tuesday.  I am glad to put that part of treatment behind me, focus on recovering from the skin reactions and fatigue, and head into my Tamoxifen journey.



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"There are only two ways to live your life.
One is as though nothing is a miracle.
The other is as if everything is."

[ albert einstein ]
StacyL

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Reply with quote  #10 
Congrats Mary - you are awesome...
Hi Indi, Natalie, Sapphire
Welcome Melanie, wow you are almost done
Gina, Gina, Gina, my hero - how are all of you? I don't check in often enough, I know, but...
I have 5 more treatments and 5 boost left....wooooohoooo for me.

I get my CT/MRI on Mon. to plan the last boosts.
I am doing pretty good with it. Pink, flaky and sensitive, but not too bad.
The gave me radiagel and I use it 1-2x/day.

I have a ? cyst/infectious something on my left side right below the breast and toward the side....has a fine needle aspiration done yesterday, so I will know, hopefully Mon. it is very sore, especially because it is in the rads field and the FNA numbing needle  hurt like a you know what...hahaha.
It is fluid filled and I was told it is very unlikely to be cancer. Well, I should hope not. After everything I've been given and being in the line of fire (rads.) right now......right?
Well, anyway, I just wanted to check in with my girls.

I love you all and take care. I'll try not to stay away very long this time.
I am so busy everyday w/ rads. a 2 hr. round trip, I'm beat by the time I make supper and give the boys baths, etc., etc.,

I'll be back soon...........xxxxx
Indigoblue

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Reply with quote  #11 

Hi Stacy,

Fairy kisses are fluttering eyelash kisses, pedals of wild flowers, or the morning sunlight softly falling through leaded glass, or the tickle of a snowflake.  With this little break in time, when the kisses with wishes is gently brushed away by the recipient, good health, love, wealth and wisdom are to follow.  So, upon the rainbow, the gentle sprinkles of rain, the wispy breezes of an Angel's sigh...I send my thoughts for blessings, prayers, and good results for your tests results next week. 

(((hugs))), Stacy.  You're the best! 

Love,
Indi

(((hugs))) and loads of candy hearts, fairy kisses, fragrant, pastel clouds tumbling through woodlands and meadows of brilliant wildflowers.  Behold, a bottle of Moet Chandin (spelling, sorry, expensive $200.00 Bottles of Champagne taste like drinking star-bursts and magical clouds), awaits a toast to MARY, the Pathfinder~  A WELL-DESERVED CONGRATULATIONS!!! is in order. ALL FINISHED!!!YALZAHOOEY!
ANOTHER TOAST....applause, to SAPPHIRE!!!  YALZAHOOEY-TWO!!!~TO YOU (AND FIREWORKS FOR YOU BOTH THIS BLESSED 4th of July, 2009!!!(((hugs)))

******************************************** 
                                                                                                       
~~~~~~~~~~~~~~~
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

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SapphireSky

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Reply with quote  #12 
Thanks for the "toast" Indi....it feels so good to be done!

Stacy....I've wondered how you are doing!  If you are having the planning for your boosts, you are almost done!  Yay! 

So sorry you are still having fluid problems, and I hope that is resolved for you soon.  It just has to be painful and, I am sure, really annoying.  The seroma I have under my arm was acting up until the end of my radiation treatments, but now seems to be lessening as the days go on.  So, I hope that will happen for you, too.  Once you are finished with radiation, your body can heal and recover a little.  {Hugs}

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"There are only two ways to live your life.
One is as though nothing is a miracle.
The other is as if everything is."

[ albert einstein ]
StacyL

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Reply with quote  #13 
I didn't get the path report yet on the fluid aspirated out of the "lump" but, my rad. onc. is very happy that there was fluid in there and no infection. It seemed to be some type of puss sack. ewwww and good.

anyway....9 more treatments left. 4 reg. and the 5 boost. I'm almost done.

My moods/depression is getting very "annoying", is this normal. I don't want to be around anybody and I really just want to be left alone w/ my thoughts. The best time out of my day is the drive up and back from treatments. 2 hrs. round trip. So, peaceful...
someone tell me it's because of rads. I don't want to be a depressed person.

I spent all day in bed yesterday. Today didn't feel much better.
Just hoping that tomorrow will be different.

Can anyone relate?


thanks Sapphire,I love this home knowing that no matter how things get in the way whenever I come back it's like i've never been gone. Indi and your wonderful thoughts, so beautifully brilliant you are...

love you all, xxxxxxx
wedsnthings

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Reply with quote  #14 
Stacy you are not alone I still feel that way sometimes. It does get better. You need rest so rest. No guilt no worries. Take care


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NATALIE
SapphireSky

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Reply with quote  #15 

I think it is totally because of the rads, Stacy.  I still feel super tired and need to nap every afternoon, and I was done with rads 6 days ago.  The last couple of weeks have been kind of tough. This past weekend I felt so out of sorts and spent a lot of the day crying and sleeping.  Just felt sorry for myself and needed time to feel better.  No matter what, I feel like we need to go with the flow and when you feel the need for some TLC, just take it.  It really will get better over time.  Your body has been through so much. {Hugs} 


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"There are only two ways to live your life.
One is as though nothing is a miracle.
The other is as if everything is."

[ albert einstein ]
Limner

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Reply with quote  #16 
Well, I am done, but I am in that state you describe, Stacey - I get plenty of alone time, yet still don't feel like engaging.  Basically I do what I have to, like floss my teeth.  Call one or two people a week, though I feel I owe my kin and friends more than that right now.  Just don't feel like it!  My Russian Rad onc did tell me to stay off the sofa!  She said try not to sleep more that the usual 8 hours - and don't baby yourself or you will get WEAK.  I am going back to the gym, but it has been so hot -90 -100 degrees on a regular basis- it drains me immediately.  And the freaking bugs, Indie -  - huge welts again from invisible insects, but they don't last as long as they once did - lots of niacin, vit C and some quercetin.  Benedryl just makes me even sleepier.

Anyway, I told myself this weekend not to push the river.  When I feel some focus, I am going to lay out a little routine and try not to deviate - gym, yoga, music, get my food act together - right now i hate the fridge.  When you live alone it is all you.  Get my career together, (heheheheh) and knock out a painting.  Oh, and call some more people....

Stace - I got a lump like that on my inner thigh - maybe from riding the bike.  I thought - is this a boil or what?  but it did not come to a head, and I put calendula baby oil on it and it went away, though there is a dark spot there.  The dermoltologist said I would have to have it lanced if it came back.  So far, so good.  I think our skin really takes a beating with this treatment.  Hydrate hydrate hydrate - I have to remember that, too -

You must be done Melanie - Hallelujah!!    Saph-fire - We are never done - this is one long adventure with little rest stops here & there, and such fine companions -

Thanks for your CHEER my friends.  M 


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Dear friend, theory is all grey, and the golden tree of life is green. - Goethe
StacyL

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Reply with quote  #17 
I wish EVERYONE could understand that when I get a little depressed and need to be left alone it doesn't mean I don't "like him" (obviously I'm talking about DH) anymore. I can't explain it to him....but, I am "crabby", "being bitchy" or "complaining all the time".

I know it's hard on the people around me too, but sometimes I feel like all I do is try to make them happy and when I take a day or two off from that to "be depressed" I'm failing everyone....

I actually do feel a little better today. I have to make myself snap out of this funk, I hate it. I don't want to let this bring me down, I need to stay strong and positive and humorous.

Thank you all for sharing

xxxx
Stacy
nosurrender

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Reply with quote  #18 
Hello Warrior Angels!
Natalie, Indi, Sapphire, Mary, Melanie, and Stacy, How are you all?

I want to say a few words about what you are feeling now that you are "done"
It is totally normal to be feeling the way you are right now. You need to recoup. You have all been through so much!
Sometimes we need our cavedays to hide out and regain our strength.
Mary, your doc is right about getting moving. I noticed a big difference the second time  I did rads compared to the first time. The first time I turned into a couch potato and did get weak. The second time I made sure I moved. Walked, rode my bike, etc.
BUT I did have down time. I was exhausted from the treatments. I got more tired from rads than I did from nine months of chemo.

Stacy, your husband hears your are done and thinks presto chango you are suddenly going to be your old self. It takes time. It is a process. Remind him how the chemo effected you! Tell him that you have a lot of healing to do and if you have to rest and be by yourself in order to get back to the woman you used to be. But also tell him to hold on to his hat because the new woman you have become is quite the tiger now!!

I hope your tests turn out fine. I am sure they will be.

Love to you all
g


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StacyL

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Reply with quote  #19 
Gina -

xxxx

I'm doing better. I went to the gym yesterday and will really try to do that a few times a week. I've gained around 15 lbs. since Oct. and am so disappointed in myself, after losing 70. Well, anyway thanks for the encouraging words.

Today is my last reg. rads. before my 5 boosts next week.

My skin is just starting to peel and turn red w/ little black dots in it. But, I expected worse so I'm not complaining.

I don't know what I'll do w/ myself after treatment....hahaha


kmobley

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Reply with quote  #20 
Hello everyone,

I am behind as usual.  Had my 2nd Taxol treatment yesterday.  So far no fatigue.  Hurray!  I have been running errands, shopping some and watering my tomato plant.  Ha!  I have also worked in the yard a bit.  I even drove myself to treatment yesterday.  The only thing I am having is yeast.  Gynecologist says due to taxed immune system and steroids altering my PH.  Anyway, I pop a Diflucan and all is better.  My white cell count was at 7.5 yesterday and red cell at 4.  The Onc told me up front that I might have to take some iron with the Taxol.  So far, so good.  I have never had to take the white cell shot.  Hurray! 

You know I took Mammosite Radiation.  I think you have to be over a certain age to qualify, Stage I, less than 2 cm node, etc.  However, I am being treated aggressively with chemo due to the Grade 3 and TN.

Your radiation treatments sound trying.  Good luck to all.

Mary, you sure have weathered the storm well.  By the way, you might try over-the-counter Claritin instead of Benadryl.  Much less sedating.

You all sound like your plates are full. 

Stacy, bitch all you want.  You have earned it.  

Indi, you write such magnificent things.

From my Mammosite radiation, I have a seroma in my breast.  At first it was painful.  Still a little sometimes.  I learned that massaging it very gently would bring fresh blood to it.  The fresh blood helps the body absorb the fluid.

Hello, Melanie.

Gina, you are the one that has given us the chance to be together as sisters.  You are the best.  (However, at my age I feel more like a mother.)  Ha!

Kay



  
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