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delphinus

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Moon Goddess of Love & Hope
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Reply with quote  #61 
hi everyone!!! I would love to join you on this thread...have been meaning to for some time, the days just seem to be flying by!

thank you all for such great info and inspiration here...

I have been keeping up best I can with diet and exercise recommendations on the Edge CAM...I have been doing pretty well, I have to say I have lots of energy, I truly believe regular exercise gives me more energy even when I am on chemo (which is pretty much all the time!)

Wanted to share what I did, in case anything strikes a chord with anyone looking for new ideas...I'm not big on going to the gym, never been into it, and especially now with 2 young kids, it's way more convenient for me to be able to exercise at home. I go for runs around a nearby park when I can though, a few times a week, even in winter, usually in the evening when my hubby is home and can look after kids.

For my home exercise I do Kundalini Yoga, and I have a mini-trampoline, sometimes called a "rebounder". I also have been trying to add some work with weights to strengthen my arms. I lost a lot of muscle mass on a couple of previous chemo regimes, so I am still trying to regain strength. My current chemo has been pretty good to me so I can do more.

A little about rebounding: A mini-trampoline is super cheap (I bought one at a local fitness store for around $40)--great for those bad weather days when there's 2 feet of snow outside! In the summer I take it outside to the garden and jump on it out there...very nice to be out when the weather's good...the kids love to boing around on it too of course...

I was introduced to Kundalini Yoga and rebounding by Sat Dharam Kaur, she is a Naturopath here in Ontario who has a special interest in breast health--she teaches workshops, has written books, and has a DVD on Kundalini Yoga and Rebounding exercises especially designed for breast health. There may be some details here and there in some of her books that are out of date, (of note one of her herbal recommendations was Astralagus which Constantine pointed out has potential estrogenic properties--perhaps she no longer recommends it herself I'm not sure) At any rate, for supplements and advances in science I now always stay on the "cutting Edge" with our dear Constantine. But for the most part she is saying much of the same things about healthy diet and exercise--her Kundalini/rebounding DVD is great:
http://www.healthybreastprogram.on.ca/video.htm
I also have this DVD by Gurmukh...I love it, it's very aerobic but meditative too, lots of it is done with eyes closed. It gets my heart rate up, the exercises are mostly simple, but done for several minutes each and so therefore become very challenging. It has taken me several months to work up to a level where I feel like I am really "getting it" but it was fun from the very beginning, even as I was learning...here's a youtube video with the intro to the DVD:

and this link has a bit of the intro and a sampling of the rest of the video:


there are also lots of FREE youtube videos explaining the basics of Kundalini, and I found one with a 50 minute full session of Kundalini...I haven't tried this set but it looks really good:


To get an idea about the rebounding here are a couple of samples I found:


I know lots of moves now so I sometimes just wear my iPod and bounce around like a maniac...wonder what the neighbours think? oh well...

Anyway just wanted to share... and dear (((Indi))), I have started so many conversations with you in my head, I love you so much, one day I hope we could be in the same place at the same time and talk and talk and talk! I wish I had more time to sit down and write all the posts I want to. Anyway one of the things I have heard you speak of are your fungal infections, etc. I am so sorry about this, how distressing this must be, especially when you have had a hard time finding good medical care in your area. I also used to suffer a lot from candida...just before I was diagnosed with cancer, I had recurrent mastitis while breast-feeding my sweet baby Julian. Also suffered with my first baby Maxwell, we both had over-growths of yeast. I craved sugar so much (I heard those little yeast guys love sugar and make us lose control!) I tried everything natural to get rid of it, but ended up both times having to take fluconazole. I also had periodontitis and pneumonia just prior to being diagnosed with breast cancer. Also, a few months after I finished my chemo way back when I was diagnosed with my primary breast cancer back in 2005, I got shingles (a recurrence of the chicken pox virus). I still have scars on my face from the shingles, it was so painful!!! I'm not sure what I'm trying to say here, but I think one of my theories is that while there may not be a direct relationship between fungus, bacteria, viruses and breast cancer (I'm definitely no expert on this!) I do have a theory that my body was really out of balance, and that when my body was out of balance, I was more susceptible to all sorts of undesirable organisms, including maybe cancer. I now feel much more balanced. I don't think any one thing has brought me to this place. I think maybe it's a combination of so many things. Here's my shortlist:

meditation
exercise
sweating
healthy eating
chemotherapy
CAM therapy
probiotics
psychotherapy
couples counselling
artwork
supportive friends
beautiful family
nature
the sun
the moon
laughter
this website

I don't feel like I've fully mastered anything, and don't feel totally balanced, but I'm trying, I'm taking baby steps on lots of this...by nature I am not very disciplined and a chronic procrastinator but I'm doing better sticking with my routines these days...

More on this and other conversations soon I hope. I better run and get my kiddies to bed! and speaking of organisms my hubby can't help 'cuz he's got Norwalk! (a gastro thing) Became violently ill last night...fingers crossed he hasn't passed it on to the rest of us! I read incubation period is 24-48 hours...

I will keep checking back with you all for inspiration!!!

xoxox
love
janet







kmobley

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Reply with quote  #62 
Cheryl,

Mary actually introduced me to Stevia.  I was looking for a sugar substitute.  I use it in teas, on cereals and to sweeten frozen berries, yogurt, etc.  I made Spanish Quinoa today instead of Spanish Rice.  My mother always put a bit of sweetner in anything with a tomato base.  I put a little Stevia in the Spanish dish.  It was good.  I do read that cakes do not rise well with Stevia, and that Stevia doesn't carmelize well for candies. 

Kay
jenni__ca

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Reply with quote  #63 

ok - i too need to knuckle down and get this weight off ... i'm up two pounds since i last posted so here's a toast (water yuck) to the next 10 pound goal ..... we can do this ...


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Indigoblue

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Reply with quote  #64 
(((Janet)))
 
Reading your story was like reading my own account regarding the Candida yeast infection.  I also was diagnosed with Breast Cancer in December of 2005.  I was taking Yeast Infection medicines prior to the Breast Cancer, and never fully got rid of the infection.  After my surgery, it was in my mouth, throat...and bladder again.  When the rash on my skin appeared, the Oncologist finally gave me Diflucan, which seemed to help, somewhat.  None of the physicians ever ran a culture to see exactly what it was, and like you, I believe, truly, that there were other bacteria, viruses, and fungus having a party in my body. 
 
When my immune system became compromised following Cancer Treatments, all kinds of strange infections appeared;  joints swelling, peritonitis, nail infections, ear, nose & throat infections, and oddly, mastitis...something I'd also suffered with for many years prior to the Breast Cancer.  I went to specialists, many doctors, because neither the Oncologist, Surgeon, or Family Doctor were knowledgeable about the side effects of Breast Cancer.  It was, and continues to be a bad dream, a nightmare, and it's so frustrating.  I switched all of my care over to a teaching hospital, and it was a humiliating waste of time & energy. 
The main problems I had were chiefly due to the family physician who didn't bother to diagnose anything, and was insulted when I called her on it.  She didn't believe me when I mentioned that I was worried about the terrifying pain in my breast, and gave me anti-biotics, pain pills, etc.  I was relatively young, in my early 40's when all of these symptoms began, and had no idea that Dense Breast Tissue was typical, making mammograms useless.  A good doctor should have cultured the skin, urine, etc., sent me to an excellent Breast specialist for a biopsy, and insisted an MRI be performed.  This witch doctor was not my friend, and did not give a hoot about my health.  I didn't know much in those days, and even now, finding a "good" doctor who actually cares, is next to impossible.  It's difficult when a patient lives outside of an urban area where there are few doctors, who are overwhelmed with patients' needs. 
 
Thank you, so much, for your caring heart, and brilliant mind.  I adore you, Janet.  Also, I am not into gyms, religion, or anything requiring membership...lol.  This is the best site for someone like me, because of the variety of thoughts, ideas, connections, respect, dignity, and a wealth of intelligent people, and of course, Gina & Constantine.  I just love No Surrender.
 
Well, I'm off to Canada, to watch the Olympics.  It is fantastic, marvelous, stunning.  The cross country skiers were crossing the finish line a few moments ago, and now the downhill, and later, the women's skating!  Watching all these athletes allows me to cybernetic calories...lol. 
I'm fixing plumbing...talk about sweating; and what a work-out! 
 
I meditate every morning between 3 and 5 a.m., and it's a form of Yoga, I suppose, as it's a natural thing to do.  It's what keeps me sane...if, in fact, I am sane...I think I'm sane...I think I'm sane...just like "The Little Engine That Could"..."I think I'm sane, I think I'm sane, I thing I'm ...
lol.
 
I think I saw part of a sidewalk today...when it's safe, I'm walking again, no matter how painful it is!!!
 
Jenni, It's great to see you!  I was missing you!
 
I wonder how many calories are burned by watching the Olympics and pretending we're leaping, bounding, flying, and twirling, whirling, tumbling, and tripping?  Probably 0, and I get so hungry...lol!
 
I'm making Vegetable Soup, and a Carrot Salad...and Egg Salad...but need to go shopping, because I'm missing ingredients.  Soup & Salads, and Flax Bread, my favorites. 
 
Love,
Indi
 
Please, forgive me if this is OT...it is directly related to why I'm bloated, in pain, and gaining weight.  Thanks for your help & understanding!!!
lizws

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Reply with quote  #65 
Hi everyone,

Sorry it's been a busy time at work and is going to be worse until Monday or so. 

I started my diet (again) Monday.  So far I've lost some and plan to continue watching what I eat.

I haven't read back but hope I can later.  I'm going to the OU girls basketball game tonight in Norman (2 hrs south) and then going to the Elton John/Billy Joel concert in OKC tomorrow night.  I think by Friday after going to work at 5:30 each morning I will be a walking zombie.  lol

Keep up the good work everyone.

Hugs

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MicheleS

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Reply with quote  #66 
Hi everyone! Still recording everything I eat in a notebook and eating "clean".  I gave up my beloved dark choc for Lent.  That has been really HAAAAARD.  I'm still exercising everyday too.  I'm in a bit of an argument with my MD about my weight so I'm choosing to ignore.  lalaaalalaaalalalaaa

xxoo
CherylG

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Reply with quote  #67 
Well something finally worked for me lol.... -2 pounds this week. I feel encouraged.

LIZ... enjoy the concert. I'm jealous!

MICHELE ... bet you lost! Writing everything you eat really does help and so does eating clean. Ooooh ... some kind of courage that took giving up the chocolate! You go girl!

Hugs
Cheryl

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jenni__ca

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Reply with quote  #68 
ok here is my check in
10 lb goal -

2/24     -1

congrats cheryl !
tnx indi - i've been pretty busy we've been taking out the old front yard and putting in a new one - lots of work seems like it should have translated into lost pounds
hiya let's-lose-some-weight-together gang !

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kmobley

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Reply with quote  #69 
When water gets really really boring, I have been stiring in some lime juice, stevia and ice.  Pretty good!

Kay 
jenni__ca

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Reply with quote  #70 
ok everyone ready for tomorrow's weigh in ????????????

last night had black eyed peas we froze from our garden last year with salmon cooked with lots of sliced lemons on top (thank goodness for our lemon tree .... killed me last year to pay 99 cents per lemon in kansas !)

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jenni__ca

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Reply with quote  #71 
10 lb goal -

2/24     -1
3/3      - 1/2   i waved at the other half a pound on its way out the door and it must have thought i wanted it to come back ... so it did   


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lizws

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Reply with quote  #72 
I've been so busy at work and my hours have changed again that I've managed to lose almost 6 pds.  I sure hope it stays lost! 

Congrats to everyone and I'm glad to know I can come here for help.



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CherylG

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Reply with quote  #73 
Way to go ladies!!! I totally forgot to weigh in Wednesday ... my bad!

-10 pound goal
Feb 24    -2
March 3  -0

LIZ ... 6 pounds is great and it will stay off you'll see

JENNI ... well you did better than I did ... I must have found that 1/2 pound you lost lol

KAY ... thanks for the helpful hints

Well, that nutrition centre I signed up with just closed and merged with another centre in a town 30 minutes away from me. I got my money back but I am so mad I could spit. Just when something was working for me   There's no way that I have time to travel every other day to weigh in. At least I got a list of all the ingredients in the supplements I was on so I can find them in the store. I am still do the Wave (vibration) Training. I love it ... and my LE has all but disappeared!! I don't think it helps me with the weight loss but as well as helping my LE it has also  improved my posture, flexibility, stamina and reduced the joint pain.

Have a great week everybody .. see you Wednesday!
Hugs
Cheryl

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Indigoblue

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Reply with quote  #74 


SNEAKY WEIGHT GAIN...20 ADDITIONAL POUNDS!
HELP.
I AM SO FAT~ this winter did me in.  I am having a Brain MRI, a Bone Scan, and Breast MRI next Friday...Last April, a lesion was spotted on my Pituitary Gland, and it was recommended that I have an MRI of the Brain.  None of the, no-longer, physicians thought it was necessary, and I am assuming it is because if Insurance refuses to pay, the hospital, doctors, or clinic are stuck paying the bill.  It's a mess, but, this round, I will tie up all of the loose ends, contact insurance, and be certain about whether or not the MRI's are covered. 
 
I'm wondering if the weight gain, aches & pain, neck pain, back pain, headaches, and long list of weirdo symptoms have something to do with the lesion.  The last Oncologist (no longer going there) said that lesions on the Pituitary Gland are common, and go away on their own.  Great...meanwhile, I'm dieting, in too much pain to walk across the room, swelled up like a whale, or an elephant...my dh buys me cards with pictures of Elephant's rears, pigs, and fat people;  he thinks it's uproarious...I'm not laughing...well maybe a little, but then none of my clothes fit, and I feel like a crudulite...er, cruduheavy...
whhaaaaa...
I asked the nurse today if she would accept a bribe and not make me get on the scale!  OMG, I knew I gained a few pounds...but I almost fainted! 
My chocolate eating days are done!  Of course, after the Oncology appointment, I ordered a Frappa-cappachino with whipped cream, hazelnut, and sugar... it tasted so good. 
The sugar addiction is out of control...I feel like having my mouth sealed shut...
Any ideas? 
I know it's affecting my health, and I am exhausted all of the time.  The doctor said my blood counts and blood pressure are good...
I was so nervous about the weight gain, I could barely think about anything else. 
 
I need help!

It may be necessary for me to lock the computer up in the closet with the television, books, magazines, and all hobbies that require sitting!  Whaaaa...

 
Love,
Indi

Calico

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Reply with quote  #75 
girls,
I gained a pound...nothing but window estimates and chocolate, bad weather and no walks.....this is so not me and I am disgusted
roofer is here....sigh....

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Calico

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Reply with quote  #76 
Indi,
I have known a few people with a benign pituitary tumor, my uncle had it removed, I even have a video from the discovery channel on a surgery like it....I am weird....it was soooo very interesting!!!
It caused his diabetes which went away and he lost a lot of weight afterwards, he had a disease called 'acromegaly' (sp?) from it.

Another lady took pills to shrink it and it worked....the good thing was it isn't something bad.

I find if I give into sugar, it is down hill.....putting the numbers visibly in sight like on the fridge with a magnet,helps....also....get a scale, don't rely on the doc....it is sort of defering the responsibility to someone else...I know this because I am so good at it lol

Liz, 6 pounds....you rock, Cheryl, good job, Jenni too....awww....you guys I am getting back at being good...I hate myself lol

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Limner

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Reply with quote  #77 
Food - favorite subject!  ME weighing in.... hehehe .... This is where the healing energy is...
 
Indie - I was reading a mag today at PT called Eating Light ( I think) - It had all sorts of yummy simple recipes in it that are free of fat & sugar -  It makes you want something good instead.  Do this for you!  A secret deal you make with Indigo Amethyst to nurture the essence and  let go of the rest - too complicated to figure out, but as soon as you improve the diet and moving as you can - miracles occur. 
 
My sister Violet is a happier, more energetic and thinner person since they told her she had type 2 diabetes and she seriously changed her diet in small steps.  Amazing change to see in her at 57. 
 
Breathe Deeply - Mary

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Indigoblue

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Reply with quote  #78 

Thank you, for your encouraging ideas, warm thoughts, and colorful ideas...  Pain has been the worst part of my journey through Breast Cancer.  I wanted to share what I consider to be a great "find"...  I found this site yesterday, and it doesn't require you to "buy" anything.  It offers a free fitness routine for beginners, and there is a recommended diet which sounds very much like Edge's recommended diet.  I have not checked out the diet, yet...I was so excited, I had to bring this Guru to your attention!
 
Scott Sonnan, creator of Intu-Flow, The Freedom to Move~
is "the" perfect programs for me...and perhaps for you.
My nephew lost 30 lbs, and feels re-born, after working with this program for 3 months.  It requires 30 minutes/day of minimal stretch routines, which is individually attained according to the levels of pain, arthritis, illness, etc, from which someone is suffering.
 
I was skeptical...and went to the website.  I did the first two routines for the head, neck, arms, torso, hips...and actually felt better! 
 
There are some free lessons for beginners.  Scott Sonnon, Founder of the discipline of joint mobility, demonstrates:
After watching the promotional video...click on lesson #3, and try a few routines...then click on #1 & #2, to listen to his philosophy...http://www.intu-flow.com/

Scott Sonnon at a lecture in Australia


Scott Sonnon's story (OMG!!!)
http://www.intu-flow.com/sonnon-bio.php

(((JANET)))...Scott Sonnon does the same type of Yoga as you posted above...I'm re-posting two (bumping?)  of your websites!  Thank you, Janet...I will try anything and everything you recommend; if you say it helps, then it must!
 



There are various levels, and strengths...he works with Olympic Athletes who have suffered from injuries; while in fact, overcoming his own pain from injury, as well.
 
I just love this guy!
 
There are more videos on You-tube...which can be accessed from Scott Sonnon's site.  Please, let me know what you think...  I am not a "yoga" person...but I love his concepts, and if this is yoga...then I'm Yoga Bear...er Boo-Boo in Jellystone!  Seriously...this is something everyone can benefit from...without pain, injury, or strain & stress.
 
Plus, he's really cute...
 
Love,
Indi
Mary, Your sister, Violet, I love her name...her birthday (same as mine)...
lol!!!  Kindred Spirits, clearly!!!  I lost weight using a macrobiotic diabetic ~ no sugar ~sensible diet...it took about 4 years, with exercise 1 hour/day, to reach my goal weight.  This is pure weirdness...the weight gain; brought on by feeling blue, being isolated, unhappy, physically digressed, pain, and the sudden onset of cytoxin-induced menopause, and an undiagnosed pituitary gland condition...which is standard treatment, believe it, or not.  When I find substantiated literature to support why doctors do what they do...I always feel a little better...

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